Same here...CSS patient...also have issues with neuropathy.
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Hi, I too was diagnosed with Churg-Strauss. I lost the feeling in both feet, so I couldn't walk, I also have a paralyzed rt hand. My feet sometimes feel there are bands around my ankle or real tight socks, especially at night when I am lying down, the neurologist told me that this feeling was normal whenever there is nerve damage. The nerves can grow back, only it takes a very long time. I too was taking Prednisone, methotrexate, gabapentin, Oxycodone, you name it for this illness. The drugs were worse than the disease. I quit all drugs, of course I slowly tapered off the prednisone and decided to go to a nauropath. I am beginning to walk a bit now, whereas prior to my stopping all these debilitating drugs I couldn't get out of bed, and when I did, I used a walker and often fell! Now I can shop a little and my energy and brain are back. I don't suggest that you stop your meds, but I would suggest you seek a second opinion from a Naturopath,or an M.D. who practices Naturopathic medicine and a nutritionist. Supplementation is so important. I just believe there are other ways to approach this illness than by wiping out the immune system or suppressing it with drugs. I believe our immune system can kick in if we build it up.
Good Luck to you whatever you decide.
Hello.
As is true for any diagnostic test, there is a chance of a false negative result in EMG / NCV also.
A repeat test reduces the chances of a false negative result.
Regards
Hello.
There is no evidence of prednisolone affecting the outcome of EMG/NCV study. But if you are in doubt, you may go ahead for a fresh study.
Regards
Thank you for your response. Does prednisone have any effect on EMG results? I had been on 40mg (down to 20mg) for approx. 3 months prior to the EMG/Nerve Conduction. Is it common to get normal results, when in fact you may have a polyneuropathy? Is there any other way of testing or is it worth re-testing?
Hello.
The symptoms that you are having are due to a polyneuropathy. It is likely to be Mononeuritis multiplex. All this means is that different peripheral nerves are affect in a progressive manner.
Almost 2/3rd of Churgh Strauss Syndrome cases develop mononeuritis multiplex. The symptoms are motor as well as sensory disturbances.
Please consult your neurologist and discuss the management of the neuropathy.
Regards