Also I forgot to add that now it seems to be affecting my breathing. When I get these episodes, I feel short of breath as well (this is a new thing). I was diagnosed with Lupus; could this be related. My rheumatologist hasn't a clue.
When you say ocular migraine, what happens? Do you experience visual changes without headache or do you have a headache with visual changes?
Before you begin to shake does any part of your body feel numb?
Have you been to the ER during the shaking and to be observed and have blood work done?
I have complicated migraines and I began having these episoded that began with a strange feeling and numbness in an extremity and a sudden feeling of weakness like I may pass out. Then I would shake for a long time after this. I had EEG's done. A one hour EEG - abnormal, and a sleep deprived EEG that was also abnormal. I have been diagnosed with left temporal lobe epileptic discharges (seizures).
This may not be what you are experiencing, but you may want to see a neurologist.
God bless and I pray you feel well soon,
When I have ocular migraine, I have the flashing lights in my eyes and eye pain. I do get regular migraine headaches, but not when these occur. My body doesn't feel numb, just extremely weak. I feel as though I can't stand up; as if my muscles refuse to support me, if that makes sense. I haven't been to the ER mainly due to the fact that I have no medical insurance and owe so much already in medical bills from the lupus. I'm trying to get disability so that I can see a neurologist. Hopefully it won't be too much longer.
What you experience sounds a lot like what I'm going through. I've had drs tell me in the past that it couldn't be a migraine because it doesn't last long enough and it couldn't be a seizure because it lasts TOO long. It's frustrating, but I'm glad you answered, Kristel, at least I don't feel quite so alone in my experience :)