155701 tn?1230047101

Please help.

I've had problem that's been ongoing for about a year in which I suddenly develop ocular migraine, followed by what feels like inflammation in either my lower back or neck (or both).  Then the shaking starts (my whole body will  shake) and I feel weak to the point that I have to sit or lie down.  These episodes usually last for about an hour or so. I used to get them years ago, but only about once a year. Now I get them almost every day. It scares me, but at the same time it's very frustrating to go to the dr's office only to have them tell me they don't know what it could be. This disrupts my life and I can no longer afford to go to the dr.  If anyone has anything I could go on in understanding what's happening to me, I would greatly appreciate it. I once thought it was low blood sugar, but it isn't.
3 Responses
155701 tn?1230047101
Also I forgot to add that now it seems to be affecting my breathing.  When I get these episodes, I feel short of breath as well (this is a new thing).  I was diagnosed with Lupus; could this be related. My rheumatologist hasn't a clue.
1303966 tn?1296740010
When you say ocular migraine, what happens?  Do you experience visual changes without headache or do you have a headache with visual changes?  

Before you begin to shake does any part of your body feel numb?  

Have you been to the ER during the shaking and to be observed and have blood work done?

I have complicated migraines and I began having these episoded that began with a strange feeling and numbness in an extremity and a sudden feeling of weakness like I may pass out.  Then I would shake for a long time after this.  I had EEG's done.  A one hour EEG - abnormal, and a sleep deprived EEG that was also abnormal.  I have been diagnosed with left temporal lobe epileptic discharges (seizures).  

This may not be what you are experiencing, but you may want to see a neurologist.

God bless and I pray you feel well soon,
155701 tn?1230047101
When I have ocular migraine, I have the flashing lights in my eyes and eye pain. I do get regular migraine headaches, but not when these occur.  My body doesn't feel numb, just extremely weak. I feel as though I can't stand up; as if my muscles refuse to support me, if that makes sense.  I haven't been to the ER mainly due to the fact that I have no medical insurance and owe so much already in medical bills from the lupus. I'm trying to get disability so that I can see a neurologist. Hopefully it won't be too much longer.

What you experience sounds a lot like what I'm going through. I've had drs tell me in the past that it couldn't be a migraine because it doesn't last long enough and it couldn't be a seizure because it lasts TOO long.  It's frustrating, but I'm glad you answered, Kristel, at least I don't feel quite so alone in my experience :)

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