Scarring on the Brain, Medications, has this happened to anyone?

[kayla4brains]

Hi all - I'm new here but have been dealing with this particular issue for a long time now.  I was diagnosed with a macro-pituitary-adenoma when I was 8 and most of it was removed through surgery.  The rest of it was removed by gamma-knife radiation about 8 years after that.  I had no history of seizures until about 2 1/2 years ago (12 years after the surgery!!)  Out of the blue, I had a grand mal seizure.  I had an MRI, an EEG, and a 24 hour EEG done that showed nothing abnormal except for the scarring which I already knew about.  So, I went through a few different medications and am having difficulty tolerating them.  As far as the seizures go, I have not had one since, but I was put on Keppra for a short time and was not functioning well at all, Depakote I was on for about 6 months and the side-effects were too severe for me.  I thought I had found a match with Topamax, but I just found out that my recent hospitilization for about a dozen kidney stones that were causing infections and my kidneys to not balance acid levels properly are most likely due to the Topamax.  I am wondering if anyone has had a similar experience with just an isolated seizure and what your thoughts are about being treated - meaning, do you think these medications are actually preventing seizures from occuring or do you think that incident was a one time fluke?  I know that no one can really make that call but I thought that if anyone had been through something similar...it might help to shed some light.  Thanks!

[kayla4brains]

Thank you for the advice - I will check it out.

[crwstar]

Hi - there is a great pituitary forum on here. Go to Forums - scroll down and look for "Brain/Pituitary Tumors"......you might get a few more responses in there in addition to here.

I have a pituitary tumor but have not experiened what you have. Hope someone comes along and answers your questions.


All the best