Seziures

[ravikanth]

My daughter of 1 year of age has the history of neonatal seziures.
when she was 7th day baby, she had an jerk and doctor prescribed the Gardinal 30Mg (phenobarbitone tablets i.p) for three months, she was fine till 7 months.
Later in the seventh month she had a high fever as well got the seziures back (she used to bend her neck front as well her both arms) . Then doctor examined with EEG and blood report, came to conclusion as MYOCLONIC seziures and prescribed VALPARIN 200(sodium valproate oral solution i.p) , B Long (yridoxine sustained release tablets) and B-complex with vitamin c syrup called Becosules.
she was fine and normal had two or three jerks,then as a routine check up in the 11th month, doctor prescribed to continue with the VALPARIN and NORMA BRAIN (2-pyrrolidone Acetamide Syrup) as new one instead of Blong and becosules.
Until 11 and half month is was fine then suddenly she started to get the seziures continously for 10 to 20 times a day..(she use to lift her left shoulder and use to bend her neck front for 2 to 3 sec).
Now she is of 12 months old, doctor has told not to use NORMABRAIN  and to continue with the Valprin,Blong and becosules as the earlier one.
i would like to know what has been the cause is this because of change in the syrup of Norma brain.
As well is there any permanent cure for this. can u please suggest..

Thanking you,

[karsar]

Hi Ravi,
How is Rachita now ? Please keep us post.
It will be help for us to do the further action.

[karsar]

Hi,
Not sure, but it is really worst to see the baby struggling with this problem
even my neuro suggest for physiotheraphy to my daughter.
Next week she is completing 4 month.
last 20 days, she didnt get seziures with jerk. But still she have problem by shaking head when she wake up & one side laugh with stiffness.

I will keep post the information & you too share the info..
Give your mobile number, we will discuss.

[Santhu162]

Hai Sir,

Hope you are doing good,How is your daughter now..?? My nephew has come across same problem,and doctor prescribed the same ACTH injection and TOPOMAC and valparain tablets,he is 1 year 5 months old now,still he cant hold his head properly,daily he is going undergone physiotheraphy in Parizma hospital,still how many days it took to become normal sir.please tell

[karsar]

My daughter of 4 month of age has the history of neonatal seziures.
when she was 2nd day baby, she had an seizer (both clinical & internal),she didn't even open her eyes for 16-days.
Neuro doctor prescribed the (phenobarbitone injection i.p) when she was in ICU.
On 17th day she opened her eyes and start crying (Initial days they gave Mother milk through tube).
After she became normal & doctor suggested levipil syrup (0.3 ml) & Gardinal (1.5ml).
Till 2 month she was fine, suddenly she got seziures back (she used to bend her neck front as well her both arms).

Neuro suggested to increase her dose levipil syrup (1.5 ml) & Gardinal (2.5ml) and Banadone.
last week she got 20 episodes in one day,so we admitted in hospital & given Levipil injection & it got controlled for 3 days.

Then Neuro suggested, Topiramate (1/8 * 0.25mg) per day & sugested to use midazolam(nasal spray) in case of emergency.

With all these medicines,she was fine for 3 days. Again seizer started back on 21st Jan 2014.

Till now i have taken 5-EEG, 2-MRI, Mitocondria (blood & urine test) and more than 200 time blood test.
All says normal.

Please suggest good Neuro any where in India to take care of my child.

Thank you.

[AbinAbin]

hello Anandappa,

How is your daughter now? Even my daughter is also going through the same condition? I am requesting your opinion to take her to Dr Kadhar. What do you say?

Thanks
Abin

[rajkumar_pb]

Go to NIMHANS. It will take some time, but do go there. They will clear the air even if it is bitter truth. Just take an referrel letter from you current consultant.