Seziures

[ravikanth]

My daughter of 1 year of age has the history of neonatal seziures.
when she was 7th day baby, she had an jerk and doctor prescribed the Gardinal 30Mg (phenobarbitone tablets i.p) for three months, she was fine till 7 months.
Later in the seventh month she had a high fever as well got the seziures back (she used to bend her neck front as well her both arms) . Then doctor examined with EEG and blood report, came to conclusion as MYOCLONIC seziures and prescribed VALPARIN 200(sodium valproate oral solution i.p) , B Long (yridoxine sustained release tablets) and B-complex with vitamin c syrup called Becosules.
she was fine and normal had two or three jerks,then as a routine check up in the 11th month, doctor prescribed to continue with the VALPARIN and NORMA BRAIN (2-pyrrolidone Acetamide Syrup) as new one instead of Blong and becosules.
Until 11 and half month is was fine then suddenly she started to get the seziures continously for 10 to 20 times a day..(she use to lift her left shoulder and use to bend her neck front for 2 to 3 sec).
Now she is of 12 months old, doctor has told not to use NORMABRAIN  and to continue with the Valprin,Blong and becosules as the earlier one.
i would like to know what has been the cause is this because of change in the syrup of Norma brain.
As well is there any permanent cure for this. can u please suggest..

Thanking you,

[anandappa5]

my son got seizures in his 8 th month. We were going to dr. suresh rao arror for treatment. he suggested gardinal from the age of 6 months to 2 years. now from 2 years to 3.5 years he suggested topomac. even though there is no seizures he is very hyper active,very slow in accademics,short tempered.

From the past 6 months we have gradually decreased topomac and shifted to homeopathic medicine in mysore city by a docter called KADAR.
Now he is very improved in accademics, hyper active is redused, he replies to our questions asked.

Regards:
anand  - anandappa  gmail . com

[anandappa5]

my son got seizures in his 8 th month. We were going to dr. suresh rao arror for treatment. he suggested gardinal from the age of 6 months to 2 years. now from 2 years to 3.5 years he suggested topomac. even though there is no seizures he is very hyper active,very slow in accademics,short tempered.

From the past 6 months we have gradually decreased topomac and shifted to homeopathic medicine in mysore city by a docter called KADAR.
Now he is very improved in accademics, hyper active is redused, he replies to our questions asked.

Regards:
anand
***@****

[jstmohan]

One of my sisters kid is 3 years 9 month old, she has got seizures from past more than 2 years and was treated in Jain hospital Bangalore and now at Manasvi specialists, she is on Gardinal, Tegrital and lobazam tablets. Until now nothing has helped in curing it except for some time when she gets the seizures. Somebody who is specialized in curing it please reply. Here is video of the seizures the kid gets.. http://www.youtube.com/watch?v=C-_xJk8uAz0
We can no more see the kid suffer with it.. until now she is unable to talk or walk properly. Someone please help.

My contact num is 9611777915



Thankyou for your time
Mohan

[senthilsoft70]

My son, born normal with an emergency cesarian. Got seizure on 3rd day of his life. Drs did CT Scan and informed me that he got Brain Haemorrhage and Cereberal Oedema. He was treated with Phenobarbitone Injection on IV and on his 11th day he was normal and sent home without any medicine. He was normal until his 17th day of life and again got seizures. This time the seizure was mild and he got jerks on his either of hands, either of legs and on his neck. But not all together. Some times he get contineous convulsions on his hand for 30 seconds to 2 minutes.

Now he is 39 Days old, still having the jerks and sometimes convulsions on his hand.

He is treated with Gardinal (2.5ml twice daily). We are consulting with Dr. Ramalingam, Pediatrician at Salem. Also we consulted Dr. Taranath Shetty at Manipal Hospital, Bangalore and he suggested us to continue the treatment for another 3 Months.

I would like to know about his future and developmental aspects, as we are very much afraid of the side effects for these seizures and the anti convulsant.

My Mobile Number: 00919940324061

Senthil Kumar

[SriniSakar]

hi my son is 11+ months old and is having Seizure disorder.
He is in Coimbatore and planningt to bring him to Bangalore in 2010. He is currently on Lonazep 0.25mg, Keppra and Valparin.

My no is 99452 25206. Would like to discuss with some of you folks.pls share your nos.

I am planning to take him to Dr.Suresh Rao Aroor. How will be his treatment.

My son is analyzed with Periventricular Leukomalacia

[latha07]

My child was born normal, slight sign of seizures were seen in 4 1/2 months for which Gardenial & Epithon was given, he was having a very bad seizures at least 10 to 20 in a day lasting for 30 seconds and exactly in a month he use to get for 2 years he was treated by 3 to 4 neuroligist including suresh aroor now he is 2 1/2 years with delayed milestone and speech he as improved now by giving valparine.
As I and my family as gone through this pain, I belt you there is no other pain in the world than seeing your child suffering like this helplessly so belive in yourself and god