Just wanted to know how your appt went.
Hope
Thank you, Hope. I leave in 10 minutes for my appointment.
I'll post if I learn anything new.
I would make sure I was checked for Lyme considering you had found ticks in your house and on the dog.
As far as ALS, its a pretty RARE disease. It is strange that you have two friends though that had parents that died from this tragic condition. I wouldn't worry about ALS if I were you. I use to fear ALS for myself 10yrs ago, but it is a pretty progressive and quick disease. After 10yrs I'm pretty sure I don't have this problem.
Tell your DR about your fear and let him decide what avenues to take :)
Hope
3 days ago I suddenly had extreme weakness/sensation(not tingling) in my left arm and leg. I have muscle twitches when I lay down to go to bed. I had a CT and MRI done at the ER which ruled out any stroke diagnosis. Today I go to see the neurologist. I am scared, really scared. I am 36 and have 3 small children at home. I've had 2 friends whose parents have died from ALS. I know this is jumping to the worst conclusion, but I am just scared. I also have a strange feeling in my chest. Not pains, but something is different. I've tried to think of things that may relate to this. I was on doses of broad spectrum antibiotics last June, including Augmentin and Levaquin. My husband found a tick on our dog and then one in our basement about a month ago. I assume they will test for Lyme, but wouldn't I know if I had been bitten? Any words of encouragement would be great.
Kristina
Yes, Hope, you are right about the MRI.
Also, my neuro said that if you do an MRI in 100 normal people at least 50 will show some kind of brain lesion... and it's nothing.
What I really liked on her was that she said she is going to see me every 6 months and do a MRI very year. So I think it's important having some follow up, but also after you try all the possibilities (and tons of doctors) you have to hang on with your doctor, trust him/her and try to live as normal as possible.
At least is what I'm finding out by my experience...
hello everyone,
thankyou for all of your comments about this topic as I have learned that I am not alone.
I too suffer from tingling and twitching. About 5 months ago I started to notice twitches all over my body. Sme days I would feel hundreds of twitches and some days just a few. I worried about ALS, but with no other symptoms I must have benign fasciculation syndrome. I was fine with that until I started to notice my right arm felt strange, I really could not pin point what it was, but just heavy or something. Then the tingling started and then feeling like I had the flu.
Now the tingling comes and goes along with constant twitching. My right arm also does not feel any better. As I type its weak and shaky.
I have been to the neurologist and recently had an MRI. I will not know the results until the 19 of sept. Until then I am terrified.
Is this MS?