Tardive Dyskinesia and Botox

[SandySurf]

I have tongue movements (along with all the other movements) with Tardive Dyskinesia. My Neurologist wants to put Botox in my tongue for this.  I'm 64, and will do just about anything to stop this, but it scares me somewhat.  Has anyone else had this done, and what were the side effects?  Sandy

[SandySurf]

Thanks for replying! Sorry about your chemo, and your teeth. My front bottom tooth is about to break off, the tip of it is anyway, because I have always pressing it  with my tongue.   I've been to four Dennis, and I can't find anything wrong, but I have a 100% feeling of something behind my front top and bottom teeth.   Sometimes it feels like there's big bubbles behind them, sometimes it feels like there are strings attached and I can trust them with my tongue, it's always different, but it's always there. I'm just afraid if I get Botox, I told him to stop moving but that feeling will still be there. I don't know, Tardive dyskinesia is something I wouldn't wish on anyone.

[karima19]

I have had tardiv dyskinesia since 2004 when I had chemo.  The oncologist then told me I would need a neurologist but I was just "done" with doctors if you know what I mean.  Are you scared of the botox.?  Heck, my girlfriend gets botox injections for migraines?  The tongue movements make me nuts but recently my front tooth broke also from the chemo and I got a plate and when I wear the plate I have less movements..