Thoracic Outlet Syndrome (TOS)

[ampky]

A TOS Specialist diagnosed me with "probable" TOS and prescibed Physical Therapy (PT). My mobility and overall health continue to decline. Therapists have now told me it can't be TOS since my leg is affected (I use a walker, but now pretty much need a wheelchair. FYI - I'm F/40.)
Is it reue that TOS does not have leg involvement?

Thank you!!

[Londres70]

In my opinion, no.  

I would recommend having your thoracic and lumbar spine imaged.  

[ampky]

Yes, I had an MRI of the brain and c-spine (no thoracic or lumbar).

My thinking was if there was subclavian/vertebral artery compression, leg involvement may occur. Is this correct? Honestly, I'm lost (and scared).

Thank you for your response!

[Londres70]

As far as I know, TOS doesn't include leg involvement.  Have you had any imaging done of your brain and/or lower spine?  

[ampky]

Any help?