Transverse sinus Thrombosis

[soremouth]

Two weeks ago the left side of my lip started to lose sensation by wed my face especially near the sinus's and arm started to tingle. After 4.5 days in the hospital they found a blood clot in one of the veins in my brain.  My neurologist gave me the diagnosis Transverse sinus Thrombosis.  I have searched all over the internet and have not found a lot of information on this and it will be about a week until I see my doctor.  Does any one know if there is any complications or information on this kind of clot?  As of now my top left lip is a little tiny numb and tingles when I touch it but its better then my entire left side of my mouth numb.  

[ajbruno]

You need to have a MRV with and without contrast.  CT scan didn't show anything on mine either.  Hope they put you on blood thinners.  Do you have intercranial hypertension as well?  They are often related.

[jparamotx]

Hi! I was given an MRI w/contrast and was diagnosed with thrombosis of left transverse sinus and about 2 weeks later they gave me a CT Scan and they say that the scan found nothing. How can that be. Which test is accurate and how do you know? Please help I'm very desperate.

[Sassygirl272001]

I do too!  I had superior sagittal Venus thrombosis and bilateral transverse Venus thrombosis. It felt like I was hit in the head with a hammer. The 1st and 2nd trip to the ER, misdiagnosed it as a migraine and then meningitis. After a week in the hospital and nothing growing out confirming meningitis they sent me home. After 28 I had constant headaches and double vision. I went to a different hosp and the found the clot and started Coumadin and Lovinox and Diamox. It's been 5 years and I still have memory problems. Thank goodness my sight is finally back to normal! I would like to go back on hormones but they tell me I would have to stay on th Coumadin. I don't want to but I just can't deal with all the hot flashes and night sweats. Not to mention the weight gain,

[aarriaga2404]

I was recently diagnosed with a lateral sinus venous thrombosis on the left side of my brain. I can't imagine not having a supportive doctor. I wound up in the ER for blurry vision and headache, they did a spinal tap, MRI, MRA and it showed nothing. I followed up with Neurology and he ordered a MRV, he said it was a long shot but worth checking into. It showed the thrombosis. He started me on levonox and is monitoring me carefully, including giving me his personal cell # and calling me daily. Had he not thought to order the MRV i would have had a diagnosis of migraine & probably have stroked in the near future. I will be on Lovenox injections 2 x a day for 3 months. I suggest to anyone with bad headaches demand a MRI, MRV, MRA, most importantly the MRV as mine didn't show up on the MRI or MRA. keep searching for a different, supportive doctor who cares about you.

[ameliejune]

do you have cavernous  sinus thrombosis? i was diagnosed with it recently,and the symptoms that i have is sharp left headache,pain behind my left eye,swollen left eye and there is redness too.i stayed in the hospital and they started me on heparin therapy and iam just wondering why doctord did not give me strong antibiotics ,according to research the main cause of sinus thrombosis at times is a sinus infection. I had mri,angiogram and digital subtraction angiography and i have a left tranverse arteriovenous fistula ,and it's a question mark if i have the cavernous arteriovenous fistula as why my left eye protrude,and it was congested and now i suffered a retinal hemorrhage,ending with partial loss of my left eyesight.

[JennyLem]

I am 29 and have been sick since July 2009. I was originally put off by doctors telling me that the headaches were from stress over my recent break up, and that the bump in the back if my head was muscular. I had horrible fatigue and joint pain along with the debilitating headaches. After begging for a Lyme disease test for weeks from my primary doctor, I ended up getting one at the clinic. I also had some random issues occurring. O was finally diagnosed with and treated for Lyme. After this, a bout with Bells Palsy, a spinal tap, a week hospital stay for a DVT, and several pulmonary embily, I got a second opinion on the headaches. On December 18th, 2010, I was diagnosed with a deep sinus thrombosis. The treatment has been blood thinners and monitoring my headaches. It has been super frustrating and I feel stuck. Two and a half years with this pain is getting OLD! Anybody have a good doctor???
-Jenny - MASS-