a bunch of MS-like symptoms

[patsmad]

Last May, I experienced a raw sensation in my arms and trunk that developed into
a burning feeling (felt almost exactly like a sunburn) in the back of my neck, trunk, and back. This lasted continuously for 2

[sally456]

We all have similar symptoms..my main ones are bladder, vision, and then numness of tip of big toetip of index finger, and sometimes right knee cap..also, tingling, burning and feeling of liquip dripping isdie my body..i beleive i also have some hearing loss, ive had night seats for many years, worse during menstral cycle, and ive recently developed small twitching in back. The really bad tingling, burning and strange sensations i only seem to get really bad when im under alot of stress..like now...otherwise, ill maybe have a little tingling here and there, but nothing that lasts....oh and my handes and feet get pins and needles and strat to fall alseep quickly.
We all had mris and i had a spinal tap..it was normal.although my tests were done many years ago...i did stop thinking i had ms until my visin problem 5 years ago..but if i do have it my attacks..if thats what they are are so few and far between..the only "attacks" ive really had i guess is the bladder all though that lasted 7 years until it got better with the birth of my first child and has never returned to the way it was for 7 years...it feels so much better..and my vision has stayed the same for 5 years..not getting better, not getting worse...are they considered "attacks".???.does anynoe know.?.
Also, just a bit of hope for all of you who think you might have ms...my friends mom has had it for over 40 years..she raised 4 kids and now lives in fla. never needed a wheel chair, things came and went over the years, the disease never got aggressive...her biggest problem is catheterizing herself..which is a big problem, but compared to everything else, she is really doing well....

[wonderwhat]

I guess I will add my little story for some advice.
For the last 3 years I have had tons of problems.
I am hypothyroid, but I have been corrected for 3 years.
All symptoms that existed three years ago still persist, and some have worsened.  I have had all the MS tests, except for spinal (which I intend to avoid).  I have most of the MS symptoms.
(All symptoms for 2-3 years - daily) Muscle twitching ALL over (right side worst though), weakness, fatigue, numbness and uncoordination/clumsy on the right side of body (arms and legs), constipation every single day, bladder does not fully empty and shows spasms on urology tests,  brain fogged often in morning and other times of day, foot restlessness at night, some blurring of right eye vision (left eye still perfect), overall sick feelings most days, soreness, burning, headaches, sore right eye, numb face, seemingly having muscle weakness affecting right side joints.  A loss of fine motor skills in the right hand.  I play basketball 2x per week and the last three months the right hip, knee, and ankle have been very painful and weak, so I had to quit.  I hope to resume sports in a few weeks.  The right leg muscles don't seem to be as tight/solid anymore (a definite difference from the left).  My left side feels great! Just as normal.  2 hours of basketball leaves the left without any joint problems or weakness (other than normal).

The docs have really not found much and I gave up because it was costing so much money and time.  I was just letting it slide over the last year, but now that I am unable to be playing sports, I have gotten frustrated all over again.  Not sure what I should do as far as seeking new advice.  Autoimmune disease runs in my family and that is the reason for my thyroid problem, so I assume that is the cause of whatever else is going on.

Anyone have a suggestion as to a direction to take?
Anyone out there have luck with vitamins?  With a serious weight training program?  I am open to ideas of all types.

[patsmad]

That's interesting, because after I experienced the burning back in May, I was given some antibiotics "just incase" it was from a tick bite or something, and towards the end of the prescription, it went away. But since antibiotics have always worked fast for me before, I brushed it off as coincidental. Then a couple of weeks later, everything else started. I've been going through hell since. You guys think it's really possible that I have Lyme disease? I never had a rash, fever, or anything else.

[cols]

Maybe you have small fiber neuropathy.  Ask to have autonomic testing done or a dermal biopsy.  Many of your symptoms are consistant with small fiber neuropathy.  Most neurologist don't know to look for it so they may have never mentioned it to you.  
Typically, neuromuscular specialist are the ones that end up diagnosing it after everyone else makes you feel like you are crazy.

[sally456]

actually patsy isee that early nineties you had these symptoms too!
I had them after i was told i might have ms..then i became very anxious and got the burning, numbness, tingling, etc...

Now ive started with some twitching..i had bladder problems and vision..why i cant get off the ms thing i dont know. its been 18 years, you'd think id be much worse than i am right??

[sally456]

you have alot of the same symptoms as  me too..tingling, numbness, burning, floaters...ive had this for a very long time though...you've probably read my posts...i had a spinal taps years ago,..so i was thinking that would rule out lyme??
I thought it would find something in the fluid if you ahd lyme...anyway, i didnt think i could have lyme for such a long time..and i dont remmeber any rashes or anything...anyway.
Ive been so scared of ms for so long...it takes its toll.
I did read the symptoms for lyme and i hve more for that than i do ms!!