eagle syndrome symptoms?

[esya]

An ENT confirmed Eagle Syndrome, bilateral.  This was after excluding dental issue, eyestrain or problems, TMJ, stroke, etc (fI have a serious family history and PAD, personally).  The muscle relaxant my md gave me to try for a week last spring worked the best for the pain, but put me to sleep so I discontinued it.  

I went to a neurologist in August bec of 5 months of pain.  It is located in front of ears, behind jaws, radiating up to eyes and down to throat--adams apple and the back of my neck feels stiff.  I have since had periods of double vision, ears ringing or throbbing, and increasing difficulty swallowing.  I was missing several days of work at a time, he put me on the anti-seizure stuff they are using now which allows me to work but not effectively.  Took me off analgesics. It feels like I have the headache and sore throat of strep throat all the time, just less or more depending on the level of the Depakote.  My ENT doctor says he does not do or recommend the surgery for eagle syndrome; could my headaches be problems from a blood vessel growing into my ear or what?   I am deeply depressed due to the debillitation of my life from the pain.  Who should I go to for a second opinion?  What should I ask for? I do not have a history of depression before this condition.  I am 53 and female.

[hockey1994]

Could you tell me how you are doing after the operation and how you pain level is.  How long did it take you to recover from the surgery.

[spice10]

Hi everyone, just some thoughts, I have Hashimoto's (hypothyroidism), had my tonsils removed when I was 38 due to bacteria picked up when I moved to another state.  However, when I had the tonsils removed it set off a chain of events.  My body went into overdrive when the tonsils were removed and that is how I came to get the Eagle's Syndrome.  I had styloidectomy bilaterally 2 yrs ago.  Today I am having problems once again.  I am waiting to hear from my Dr. at UTSW in Dallas.  Don't know for sure, but this may also be the reason I also have Dystonia.....? Can anyone else connect the dots on your situations?

[stillsinging]

I know this is a very late response to this but may I ask the name of the Doctor who helped you there at Stanford?

Thank you,
stillsinging

[corvette69]

Having left styloid (Eagle's) removed 9/13/2013 @ UPMC Presby-Pittsburgh, PA.  ENT. Surgeon.  Discomfort in neck/throat, swallowing difficulties, etc...Dentist identified Eagle's 3 years ago.  Took all this time to find ENT to remove styloid.

[tsmith003]

Socalt, when you noticed this bone protruding more on one side than the other, did it feel like a bump on the roof of your mouth back in the direction towards your tonsils? I have 2 noticeable bumps in that region on the upper side, but the affected side's bump is noticeably larger feeling.

Can you describe where the protruding bone was in detail?

[nokomis78]

I'm 78 and have had these severe coughing episodes till I feel I am blacking out or I have an emesis. I have had tinnitus for years and years, lately my first episode of ocular migraine. My jaw and face feel as if I had severe case of mumps.
Swallowing is really sometimes a problem and attempting to move my tongue with eating is excruciating. Even with attempting to swallow saliva can make me cough and choke because my swallowing is so bad. With my latest episode I could not even drink through a straw as the pulling was so painful.
Had a panoramic xray at the dentist.and she says the elongation is visible on the xray, and it is significantly prominent.
See an ENT tomorrow, wish me luck.
Nokomis