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Avatar universal

glossopharyngeal neuralgia

I have severe r  ear and r side of throat throbbing and r eye nerve is stabbing.  I was hospitalized for it a few weeks ago, the couldnt fina an explanation.  Now its back.  Some physicians suggested glossopharyngeal neuralgia/trigeminal neuralgia.  I was wondering if there is anyone here who has this problem/symptoms.
11 Responses
Avatar universal
sUFFERING FROM GLOSSO PHARYNGEAL SINCE TEN YEARS
LAST TREATMENT WAS ACCUPUNCTURE AND WAS GOOD. GOT RELIEF BUT COME BACK. EVERY TIME I JUST DO ACCUPUNCTURE. BELIEVE ME THIS HELPS A LOT
637722 tn?1245086059
Hi,

I am familiar with this ailment as I have suffered with it for two years. I started with a sore throat that went away for a brief period then came back. Went to my PCP with the complaint and therefore tried anti-biotics, allergy medication & testing for thyroid. Everything came back normal so I said enough! Send me to an ENT doctor. Upon my first visit, he diagnosed me with nuralgia. I then looked to the Internet for help and low and behold there really was an actual disorder. I had all the symptoms stated. I was put on gabapentin and it worked for nearly a year (did have pain on and off throughout). Then the pain came back and the ENT said there was nothing else he could do for me and sent me to a nerurosurgeon. They wanted to do surgeyry but I wasn't ready so they increased the dosage of the medication and I was good on that for another year (did have pain on and off again). Then the pain was back again with no relief with another increase of medication. They also added tegretol and the combination of medications were making me sick and my quality of life was being interferred with so I opted for the surgery. I had the microvascular decompression done June 2008 and so far so good, no pain. Was stated that the ninth cranial nerve was being compressed by a blood vessel.

Good luck and I hope your brother finds relief.

The doctors told me the surgery was good for at least 15years. I will take what I can get.


MaryAnn
Avatar universal
Was Dr Ivan Ducic the doctor you saw?  We are researching this doc to possible cut the nerves to help my son, who has had 13 years of constant head pain from occipital neuralgia...... any info we can get is so appreciated.  Beth
637722 tn?1245086059
No, Dr. Ducic was not the doctor I dealt with. I am a patient of Dr. Peter Jannetta, located at Allegheny General Hospital in Pittsburgh PA.

He had concurred with the ENT that diagnosed my situation in 2006 as Glossopharyngeal neuralgia. I did the pain medication for a year then decided upon the surgery when the medication wasn’t controlling the pain to my satisfaction. I am glad that I underwent the surgery. I know they did not cut any nerves; they put Teflon between the nerve and the offending blood vessel.

I hope this helps you. If you have any other questions, feel free to contact me…elantra2006

MaryAnn
637722 tn?1245086059
To: Beth

I don't know if you got this post or not...so I sent it again.

No, Dr. Ducic was not the doctor I dealt with. I am a patient of Dr. Peter Jannetta, located at Allegheny General Hospital in Pittsburgh PA.

He had concurred with the ENT that diagnosed my situation in 2006 as Glossopharyngeal neuralgia. I did the pain medication for a year then decided upon the surgery when the medication wasn’t controlling the pain to my satisfaction. I am glad that I underwent the surgery. I know they did not cut any nerves; they put Teflon between the nerve and the offending blood vessel.

I hope this helps you. If you have any other questions, feel free to contact me…elantra2006

MaryAnn
Avatar universal
Yesterday my husband was tentativly diagnosed with Trigeminal Neuralgia.  After doing some research, all of his symptoms indicate GN instead.  The only loose end is that he experiences pain in both sides of his throat-neck-ear, although more on one side than the other.  Is this possible, or should I continue to search?
757701 tn?1238041828
I have GN and I have pain on both sides 80 percent right side 20 percent left if that helps you any....
1098081 tn?1257446602
I was just diagnosed with Glossopharyngeal Neuralgia yesterday.  I turn 40 on November 15th.  The pain is unbelievable when it comes on, and unfortunately I have a very difficult time taking pain medications as they make me very ill & drowsy beyond belief.  I have had 2 MRI's, a Fine Cut CT Scan, met with an Otolaryngologist and a Neurologist.  We now know that I have this rare neuralgia condition.  I am just now trying to figure out my plan and ways of dealing with this, so I am researching as much as I can. I have only had my condition for less than two weeks since it came on suddenly on Oct 27th.  I thought I had a tumor or aneurism because the pain was so severe and it came in waves.  I know surgery is an option and I will consider this if my pain continues at the severity I experienced when it first came on.  For now my pain has slowed to a dull ache in the right side of my throat, ear area, and upper head with sporadic shooting pains every once in a while.  I have been prescribed Nortriptyline which I am to take daily.  I am concerned about the negative side effects with any medication as there is dizziness, and they make you really tired among many other things.  My life is altered and now I need to learn all I can on how to deal with this.
Avatar universal
I have gloss on both sides of my head for going on 20 years now. It started when i was 17 years old. I found out later i also have bilateral trigeminal as well. I have had 3 MVDs on the right and the right trigeminal nerve burned. On the left so far i have had a balloon compression and a glycerol injection and thinking about a MVD as well for the left. The right side has been by far the worst. I know its going to come back stong on the right side it always does. I think when it comes back im going to see about having the gloss nerve sectioned on the right side. This scares me but im running out of options. For everyone who is just experiencing this nightmare i want you to Know i have had this bad for most of my life now. I have a family and a good job. Try not to get depressed, get a good DR. and you will be fine.
1236502 tn?1267929487
I am not alone, it seems.
I have had this problem off and on for about 4 years. There are periods when the pain is tolerable with occasional twinges, or completely absent. The worst bout was after Thanksgiving 2006 and it lasted about a month, during which I had all sorts of tests, and lost about 16 pounds in the first 11 days. It was horrible, with severe stabbing pain lasting 10 to 15 seconds on one side triggered by eating or swallowing, sneezing, even laughing too hard. I have not had much pain since October 2007, but it has started up again, tolerable, but the terror of the possibility of the pain coming back to full force is depressing. If it comes back like that I would consider decompression...
This condition has been a humbling experience.
1093617 tn?1279302002
MEDICAL PROFESSIONAL
Thank you for your question. Although without being able to examine you I can not offer you the specific advice on diagnosis and treatment that you need, but I would try to provide you some relevant information about your health concern.

Trigeminal neuralgia as you have typical one sided facial pain extending to temple and eye( ophthalmic branch of trigeminal nerve may be involved) and sore gums of the teeth of same side (maxillary branch of 5th nerve). Trigeminal neuralgia may have a triggering factor like recent history of tooth extraction, touch, cold breeze or hot sensation etc. which you need to evaluate and avoid. Drug of choice for trigeminal neuralgia is carbamazepine but as the dose may vary according to severity therefore I would advice an oral medicine specialist consultation or at least a physician to confirm this diagnosis and get you treated accordingly. Take care.

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