Some people who are infected with Borrelia burgdorferi have similar problems.
This bacteria, a spirochete, can infect the brain and the cranial nerves. It can cause all sorts of mental health problems, such as depression, anxiety, paranoia, memory problems, and sometimes hallucinations.
This is a tick borne infection. It is difficult to diagnose, because the lab tests are not reliable. Doctors must make a clinical diagnosis, which means that they base the diagnosis on the patient's symptoms.
For information on symptoms, testing, and diagnosis, see the information at the Canadian Lyme Foundation, CanLyme dot com.
If you'd like the opinion of others with similar symptoms, post a query on the medical questions forum at the flash discussion group at LymeNet dot org.
This group can also help you find a doctor who is very experienced with diagnosing and treating Lyme.
When I did a search for Lewy Body Dementia, I found this:
The cause of this form of neurodegenerative disease is uncertain.
There are overlaps between Alzheimer's disease and Parkinson's disease.
In reading about tick borne infections for the last four years, I've seen information that researchers believe that Lyme Disease may be the cause or the trigger for Alzheimer's and Parkinson's.
I think you should investigate getting your father properly tested for tick borne infections.
Wishing you the best,
I'm so sorry for your dad. I too began hallucinating from Jan-May of this year and it was quite overwhelming to say the least. I have found I have all the symptoms of Porphyria (there are many different kinds... some skin related some abdominal pain...) but surgery and other triggers cause attacks and it is a possibility for your dad. The problem is... I cannot get diagnosed till I have another attack. You can do sort of a home test. First of all, ask if his urine is strangly colored. Not yellow, but tea colored, wine colored, dark etc. Second, tell him to pee in a clear jar and leave it in full sunlight for 24 hours (mine changed after only 6 or so) and it will turn a copper color. There are VERY few experts in this area. Most doctors do not even think of this possibility and will have you in a psychiatrists office before it occurs to them. There is The Porphyria Foundation in TX. and they can give you a few answers once you do the urine test. If he is hallucinating, or if his urine is a different color then now is a good time to be tested. Can take up to 12 days to get the results. God bless! I am praying for him.
Hey Sarah, I was thinking about your Dad again last night and I thought about the fact that if he'd just had surgery then he was most likely on pain relievers right now. If he is on some sort of barbituate then that is also a trigger for Porphoria (as well as the surgury and possibly any meds that would be new to him)... I just feel so bad about the fact that he is hallucinating during broad daylight... it seems so traumatic. You really might want to check out that Porphyria theory. Take care!
I hesitate to state the obvious, but did they perform an insulin clamp procedure? Of course not. Go directly to the meds from the company that gave you the vacation and the fun toys for the nurses! I don't know what is wrong, but halucinations are common in the elderly with insulin utilization problems. They are called "sugar people", and appear quite real.