long positng - possible stroke?

[Deltha Myrtle]

I am a 42 yo female w/ a history of small seizure-like events since my early 20

[jan]

Are you aware of these epilepsy support clubs?

http://clubs.yahoo.com/clubs/epilepsysupportgroup

http://clubs.yahoo.com/clubs/epilepsychat

Maybe they will be a help to you. :o)

[wildcat]

Deltha,

By the way, if you want to discuss your seizures further feel free to respond and we can share experiences. Sometimes just being able to talk to someone who has experrienced the same sort of problem makes it not quite as bad although seizures when you are still conscious are very painful like torture, so the unconscious ones are almost lucky except they can't drive.

I got fired from my last job for the seizure disorder. I had been forcasting typhoons for nearly 20 years and now I changed career fields. I was feeling it was time for a change. Now I am on a disability sort of work deal with another company doing clerical work. I know what you mean about being worried about your job. I always worry about it because I am still on the probationary period and with no job I can't pay my bills. I have no family to help me and I live alone so I pay everything alone. I support a house and a truck along with 10 cats and four dogs! I depend on my work and really need it. I never call in sick even when I have had seizures at night and feel like doggie doo-doo the next morning. Hang in there and feel free to talk about your seizure problems to me. I am really interested.

I also know what you mean about the anti-convulsants and side effects. I take Klonopin for mine 10 MG a day 2 MG five times a day. and also for the chronic pain 8-Ultram a day and 6-8[30 mg] of Codiene a day. I tried 300 MG of Tegratol and found myself in la-la land. I was almost hallucinating. There was no-way of working like that. That was before I tried the other stuff now except the Klonopin which I have been on for over one year.

Yes this is long too, I call it the typical Temporal Lobe Babble Syndrome!!!!!LOL  Take care and good luck,,, Hopefully no more [shakedown-breakdowns] as I like to call them.


wildcat

[wildcat]

Sounds like seizures to me. They call the stiff muscle phase [tonic], and the shaking or jerking phase [clonic]. It is common in partial complex seizures to have memory lapses during the seizure before and after as well. You may even have complete blackouts for a while along with inter-ictal and post-ictal delirium periods which leaves your mind in a state of la-la land! I've had this **** for almost two years now and it sucks, so I know some of what you are going through.

[Deltha Myrtle]

Thank you Wildcat for the words of encouragement. It's good to know that other persons have prevailed. I'll att Temporal Lobe Babble Syndrome to my list of nickmanes for my "problem". And I just thought I was long winded!  My own favorite I use most often is "brain cloud" ala Joe Vs. the VoLcano.

Deltha