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looking for a doctor

My daughter has Hopkins Syndrome, she was diagnosed almost 7 years ago. No doctors seem to know much about it. Do u know of any sites that may have some kind of help or any doctors that treat this.
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209987 tn?1451935465
You could also try contacting your local University and ask to talk to someone in the Genetics clinic. They know a great deal about this condition and will be more than willing to talk to you.
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Avatar universal
try chromosome 18 .org
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