Can anyone tell me if it's true that you can determine if a newborn has neurofibromatosis at birth?
My mom had it (not sure if it was NF1 or NF2...can't ask because she passed away a few years ago).
A few times, she claimed that they tested my siblings and I at birth and determined that my youngest sister and I didn't have it, while my other sister and brother did.
I've developed a lot of really scary neurological symptoms starting when I was 14 that have just gotten progressively worse (I'm 22 now), though. A lot of them seem potentially consistent with an acoustic neuroma...awful balance, lack of coordination, excruciating localized pain on the back right of my head, tinnitus, poor hearing, memory loss, etc.
I'm starting to wonder if all of this could be due to NF that my mom passed onto me, but I'm a bit baffled because she always told me I was checked and didn't have it. All I know is I'm tired of worrying that I'm dying every second that I'm awake and avoiding everything I used to enjoy doing.
Thank you for any responses in advance.