real or not?

[nicobella]

Hi there. I am a 31 yr old female. My major complaints for about the past year have been vertigo/lightheaded and headaches/sinus pressure. I also have this overwhelming constant feeling or fear that I am going to pass out...go unconscious...or have a seisure or something worse. I have been to an endo, neurologist, internist and ENT.  I have had an MRI of the head and neck with contrast. BOTh normal. I am still waiting to go for my balance test. I was diagnosed with hyperthyroid last April but have been off meds since last August and levels have been stable. The vertigo is really bad some days and then others it is bareable. However it is always there to some degree. I am not sure if the dizziness is making me think i am feeling lightheaded, going to pass out or have any of those other fears i mentioned above OR if i really am feeling them and could possible happen. I also was anorexic/bulimic for about 10-12 yrs. Been in remmission from that for about a year. Could the purging have caused a brain or neuro problem?? Is that possible? All the doctors tell me It is just anxiety but i don't see how i can have vertigo ALL the time if that were the case. I forgot to mention that i also have floaters and extreme brain fog (or detatched vision). I am really feeling like I am going crazy....!! Can there be something else neuro going on that the MRI would not show??
thanks.
Melissa

[sally456]

So for you..do you feel lilke you need to keep pursuing the ms thing?
Sometimes i feel that since i really feel ok most of the time..that knowing i have ms will just depress me...and the treatments for it suck!!!  Who wants to inject yourself with toxins.
I dont think my symptoms warrant that...my friend's mom has had ms for over 40 years....she had symptoms when she was 18...she did ok..they didnt have the treatments back then..she was never in a wheel chair.  Some things came and wnet over the years...
But she managed...
I did read somewhere that alot more people have it then are reported...they say that only 400,000 in the us have it but now they think that its over a mil. because everyone seems to know someone who has it and its somewhat of an epidemic.
Where do you live> How old are you?

[jan]

I am 49, so I think I am safe.  Yet, when they say the ages you usually develop it, doesn't mean it is found then, right?  I def. have something neurological going on, but I don't believe it is MS.  My neuro exam is always abnormal one way or another.

You're right about the treatment.  My friend is trying LDN.  I think that is something you do on your own, not sure.  You can look it up, there's a group for it.  I am told it's used for many autoimmune disorders.  I have some of those, but don't want to put anymore into this body right now.  I am taking 11 prescriptions daily as it is.  Yuck!

I follow up with my neuro and an epileptologist, but I am done seeking an answer.  I now believe there isn't always an answer.  When I was diag with MS my PCP said it's about time someone put it altogether.  Now that I am told it's not, back to square one with the exception that I no longer stressed at finding the cause/reason.

Good luck to you, Sally. Oh, btw there is a Yahoo group for MS, they are very nice.  Here is the link if you are interested:

http://health.groups.yahoo.com/group/FriendsWithMS/

[jan]

If some of the above didn't make sense it is because I wrote it to a friend who thought I had MS (she has it).

The neuro said my lesions could still be a problem and my C-spine issues are part of it.  I think that she still suspects MS.  She says some of her patients only ever have one attack.  Who knows.  I just know I am much better today (this year) than I have been for years.  A lot of the symptoms above don't bother me or are infrequent.

[jan]

First, the ones I have been told I have or have had:
spasticity, dysarthria, clonus, myoclonus,  paraethesia,  vertigo, my fav -
constipation;  sleep disorder (alpha intrusive sleep), autonomic nervous
system (the tachy and syncope), my other fav - epilepsy; L'hermittes but just once and it could've
been from neck or ?, neuralgia

What I believe I have:
cognitive dysfunction, I think the jerking when trying to touch neuro's
finger is intention tremor, vestibular ataxia - when my body leans so bad
can't walk w/o Tom exerting force the opposite way by hold'g my hand,
aphasia/dysphasia - but thought maybe seizure?,  speech
ataxia (I blame meds), Uhtoff's symptom (increase in severity of symptoms,
geez that doesn't leave it wide, open does it? :oP ), inappropriate cold
body parts (not meaning the Raynaud's, but my leg was a disgusting
horrible cold feel'g).

Here are the maybes:
I saw the babinski but think neuro did the test wrong.
swallow'g probs off and on(again, now with just sm. stuff)


bdbdbdbdd That's all, folks. ;o)

But I haven't fallen apart yet and I consider myself very lucky that I am not a horse (or else they would've shot me).  ;o)

[jan]

The MRI doesn't necessarily mean MS.  I have lesions and in the area that makes MS suspect and I was diag with MS.  Later I was told I didn't have MS.  Here's a link to the criteria to get diag with MS...and just because you have some of the symptoms, don't jump to conclusions.   I have a lot of them.

http://www.mult-sclerosis.org/DiagnosticCriteria.html

[sally456]

Hi Jan...thanks for your input..what symptoms do you have, and since you were told you dont have it...did they tell you what you might have?