Dear Avery Kalnicki:
I am not sure I can help. Assuming that it is the same twitch you had years ago, I would think that it is not life threatening like ALS. However, what exactly it is I can not tell you without a good exam, seeing all your labs etc. I would revisit with your neurologist. It might be that you have benign fasciculations.
Sincerely,
CCF Neuro MD
I have just recently stumbled onto your site and hope that you can answer a few of my questions. When I was in my teens and younger I would experience severe facial twitches at different times. They would show up once and last for a month or longer and then not appear for another year or longer. I found in my teens and a little more into my twenties that I could control them with a vitamin B. There was a span probably for around 8-10 years through my twenties where I didn't have any twitching at all. About 3 years ago it started again. It has gotten extremely uncomfortable over the last few years and seems to be uncontrollable at times. I saw a neurologist around 2 years ago and he put me on a medication which only semi depressed me and made me very tired all the time. Needless to say I went off the medication soon afterwards. Do you have any suggestions as to what might be causing this and any remedies. I would appreciate any advice.
Dear Rhonda:
Then by all means stop looking at the forum.
CCF Neuro MD
I don't understand why the doctor said benign twitching is "uncommon." It seems to me, I hear more people complain about it who do NOT have uncommon ALS. I twitch when anxious, have for years. Comes and goes. I think is IS common from what I have read and heard.
I have a problem with these forums. They seem to scare people more than help them.
thanks for the comments.
CCF Neuro MD
i have had the same problem.I am a 40 yr.old female.I had a fusion/decompression on my lower back.After the surgery,i would twitch so bad i couldn't sleep.Sometimes it felt like my whole body was going to jerk right off the bed.It happened even when i was wide awake and just sitting there.Every part of my body twitched.I was also feeking very jumpy all the time.Last night it started up again.I asked my surgeon and they don't have a clue.They look at me like i'm crazy and they've never heard of such a problem.Could there be something wrong?If anyone knows what it could be please write me.