undiagnosed tingling, pain

[someguy099]

In May of  2008 after three weeks of constant stomach pain and cramps, I suddenly got very very dizzy with nausea. Felt like I had the flu. My family doctor put me on Nexium which helped my stomach pains but did not remove the dizziness or nausea. After a month or so the dizziness reduced but the nausea still remained. For the next 1.5  years and a bit I tried to get off nexium but had rebound acid reflux attacks along with minor dizziness and nausea. Went to a gastro specialist who performed an gastro scope and colonoscopy and found nothing. Finally got off nexium by using raw honey to heal my stomach. Slowly new issues starting arising that would come and go. Such as muscle twitching all over and waves of anxiety.

In late 2009 I had another severe episode of dizziness. It was so bad I went to the hospital. A cat scan of my head was done and all was okay, an MRI of my head (taken in Jan 2010) was ordered and that revealed nothing. It took many months but the dizziness slowly passed. Since then I have had other symptoms come and go. Such as slight tremor, waves of anxiety,  and dizzy spells, muscle twitching and waking up not being able to breathe in the middle of the night, pain while urinating, extremely smelly gas.

In Jan 2011, along with all the other issues I began to have tingling in my feet and arms. My limbs seem to fall asleep easier than normal. The tingling began to move up from my feet to my entire body all over. After a few weeks of this, I started to feel pain, cramping and soreness almost everywhere.  I can no longer run for very long without getting extremely fatigued. I can only walk for 30-45 mins max without needing to rest.  Exercise makes my legs worse.  I got my family doctor to refer me to a neurologist. I had the following done which revealed nothing. An MRI of my cspine, nerve conductivity testing, evoke potential testing, extensive blood work for things like RA, ANA, lyme disease, thyroid and an extensive neurological assessment (reflexes ect).  The only thing revealed in blood work was low vitamin D. Neurologist says she cannot diagnose me with anything.  Went to see a rheumatologist and she claimed my problems seemed more neurological. Could not determine anything. I got a referal to a second nuerologist who feels that this is all related to anxiety and stress. I am seeing a naturalpath who says my b12 level of 265 is too low and have started taking shots of b12. The fatigue has improved a bit since then but symptoms still persist.

Current constant symptoms
-Perceived weakness in limbs
-Cramping in all limbs
-tingling and burning all over (mostly feet, legs and bum)
-cannot run very long, can only walk for 30 mins
-pain all over (feels like a deep bone or arthritic pain)
-dizziness
-white powder substance in urine
-excessive bone cracking
-white coating on tongue
-loose bowel movements

Symptoms that come and go
-tremors
-burning pain when urinating
-bladder urgency at night
-muscle twitches all over

[Dr Sharma]

Hi there. You have multiple neurological symptoms which need to be investigated for multiple sclerosis. MS is a chronic demyelinating disorder where the disease phase is characterized by active phase and remissions. It has multiple symptoms and signs and is a diagnosis of exclusion. The symptoms of multiple sclerosis are loss of balance, muscle spasms, numbness in any area, problems with walking and coordination, tremors in one or more arms and legs. Bowel and bladder symptoms include frequency of micturition, urine leakage, eye symptoms like double vision uncontrollable rapid eye movements, facial pain, painful muscle spasms, tingling, burning in arms or legs, depression, dizziness, hearing loss, fatigue etc. The treatment is essentially limited to symptomatic therapy so the course of action would not change much whether MS has been diagnosed or not. Apart from clinical neurological examination, MRI shows MS as paler areas of demyelination, two different episodes of demyelination separated by one month in at least two different brain locations. Spinal tap is done and CSF electrophoresis reveals oligoclonal bands suggestive of immune activity, which is suggestive but not diagnostic of MS. Demyelinating neurons, transmit nerve signals slower than non-demyelinated ones and can be detected with EP tests. These are visual evoked potentials, brain stem auditory evoked response, and somatosensory evoked potential. Slower nerve responses in any one of these is not confirmatory of MS but can be used to complement diagnosis along with a neurological examination, medical history and an MRI in addition, a spinal tap. Therefore, it would be prudent to consult your neurologist with these concerns. Hope this helps. Take care.

[trdofbeingtrd]

Please take a two week journal of what you eat and drink and how it affects you. In the journal, also list any and all medications you take, and how much of the medication (please be honest, it is the difference between doctors helping you and not knowing how, no offense, maybe you take none). Take these and all the symptoms written down in the journal to a NEW doctor.

This sounds like an organ issue, I wouldn't know which one (I am not a doctor). I know the suggestions I have for you is kind of a pain, but it might help. If the doctor you have is not helping, please switch ASAP but make sure if the first doctor has you on medications that you take them until you see the new doctor.

Keep us posted.