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complex ovarian cyst questions

Hi...I'm new here and have a few questions that possibly someone out there could help me with.
I had an U/S done a couple months ago which showed a complex cyst on my ovary...I had a follow up U/S done 6 weeks later which showed it had grown 1cm (it's 2.5 cm now).  I had a CA-125 test that came back normal.  My doctor is recommending a complete hysterectomy.  I only have one ovary (other one was removed when I had a huge dermoid cyst at age 17...I'm 42 now).  
My questions are...does this seem drastic to anyone?  Has anyone had a complex cyst go away?  I suggested a third U/S to my doc and she said "I was just putting off the inevitable", but agreed and scheduled one for me.  I'm having it done next week.  My gut is telling me that this is an extreme measure to take (total hysterectomy).  Any thoughts...advice?  Anything would help me at this point, I'm pretty freaked out.
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Avatar universal
I didn't have aa CA125 done until the day of my surgery. It came back at 150; in December it was 3.9.  I will have it checked again in March; hopefully it will remain low.
Also, my niece is in her early twenties. When she was tiny she had several annurisms and multiple surgeries.
Is there a clear cause for this disease?  My niece had a sore throat when she got immunized with the MMR and that seems to be the beginning of her symptoms; any correlation or just coincidence?
I hope you find Peace and good health.   dian
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Avatar universal
Oh that's good news about your CA test!  Great!  
Hmm...to my knowledge there is no cause and no cure for Hashimoto's...just maintenance.  I've read and heard that it can run in the family...both of my parents have thyroid issues but not Hashi's.  I hear that it's more common in women my age, but it can happen in younger people too...I've not read anything about the immunization possibly being the reason (sounds unlikely but heck...I dunno).  I wish your luck a speedy normal reading!  Some people get lucky and regulate really fast.  Hopefully she's one of them.
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Avatar universal
cip
I had a complex cyst also -and fibroids-my Ca125 elevated over 2 months from 37 to 95. However, I had several ultrasounds done, and the cyst was smaller in the latter ultrasound. I had 3 opinions - all total hysterectomy, because of my age 52 and fibroids and possible risk of ovarian cancer. I knew that a shrinking cyst is not generally a sign of cancer. I went through with pre op bloodwork. Before surgery, I asked about my CA 125 level. It went down to 16. I cancelled surgery, over the objection of my gyn. I went to another gyn. He did an ultrasound right there in his office and showed me. the ovaries looked good - the cyst had totally resolved! I did not have ANY surgery recommended by him. He turned out to be friends with my second opinion guy(an oncologist) who said he wasn't very concerned with OC, but went along with the hysterectomy idea because of my age fibroids etc. That part wasn't reflected in his report. So, I too, went with my gut, and am glad. In the end, it is always up to us -we can't leave our healthcare to the doctors alone. Keep asking questions, keep researching options, and always do what you think is safest and best for yourself. I wish you luck.Take Care  Claire
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Avatar universal
I'm so sorry to hear about everything you've gone through.  I have to admit...that's my fear if I wait.  Can I ask you if you had a CA-125 test and if so how did it come out?  I know it's not a screening device, I just was curious if yours showed negative.  This whole thing is just so scary.
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Avatar universal
Getting a second opinion never hurts.
I am 55 and I had a TAH last spring; I had no pain either, but did have ovarian cancer. My synptoms were occasional pressure on the rectum and, sometimes, pain during entercourse.  Other than that, I was just fine, or so I thought. I had an ultrasound and a trans-vaginal ultrasound on April 25th; I had a large tumor on my left ovary which had been thought to be fibroids in the uterus;I had everything removed April 27 at 7:00 a.m. by a gyn/onc surgeon.
I finished my chemo in October, and now go routinely for follow up blood work, paps, and to get my port flushed.
Somehow my ob/gyn was experienced enough to recognize trouble when he saw it; I am not a person to rush into anything, but ovarian cancer wasn't anything I wanted to mess with.
I was referred by my gyn to a surgeon who specializes in gyn/onc for a second opinion. I saw him the next morning and surgery was scheduled immediately. My gut told me something was wrong; I think I knew something was wrong before I even went to the gyn; I followed my own instincts and I am glad I did. I guess, in the end, we all make our own decisions.
Good luck in your decision making; I hope yu find Peace.  dian
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117289 tn?1391712825
I am with the others, get a second opinion - it can't hurt.  Keep us posted.
~Tascha
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