Aa
nbothian cyst, free fluid in pelvis & enlarged left ovary 5.5cm
About 2 months ago, a few months after the Novasure procedure was done, I started spotting brown blood. Not a lot but definitely brown. I was also quite nauseous. The doc checked me, did an internal sonogram and said everything looked ok, ovaries normal, no cysts, all clear but gave me an antibiotic. She told me to check with my regular doc. I scheduled an appointment. Was then sent to a surgeon after a ct scan w/o contrast showed nothing. The nausea has gotten a bit better, it WAS constant, but now I have gained nearly 30 lbs, swollen all over, a stabbing pain in my left side near waist level and a constant pain on left side running the region of my ribcage and in my back. The doc did a cat scan w/wo contract. some of the findings were: Free fluid in pelvis, left ovary enlarged to 5.5cm, a nabothian cyst 1 cm. I am still randomly spotting brown blood, pain is getting increasingly worse and I am exhausted. I have a 6-year-old with autism and he needs me to be normal again. He doesn't understand why I am hurting and can't wrestle and carry him etc. Could this possibly be an ectopic or molar pregnancy? I have had an ectopic pregnancy resulting in ovary and tube being removed after it hemorrhaged. I came very close to death as I put off the pain. Pain has to be pretty bad for me to acknowledge it. The surgeon I just saw wants to do a colonoscopy and a test where they run a tube down your throat to see intestines. He said I could either do that or we could treat this as a sport injury and I could learn to deal with the pain. I am in pain, physically growing by the minute, living on watermelon and saltines and diet kool-aid. I should not be gaining weight like this! I have had 6 pregnancies, 4 live births, 1 cord accident at 7 months and the ectopic... and I FEEL pregnant. I am praying I am wrong and at home pregnancy tests are negative. I do not know what to do. ANY help would be appreciated! Thank you so much!!
I forgot to add I am 46 and I missed the "a" in nabothian cyst in the title. Apologizes!
So sorry to hear that things are so uncomfortable and chaotic for you at the moment. I know how hard it can be to juggle your own physical needs especially when you have a high-needs someone who needs you to be 100% most all of the time. It's tough to find the balance and it makes dealing with yourself all the more important, but hard to make the time to do so! Hugs to you!
I don't have specific experience with what you're dealing with physically, but might suggest a couple of things to have checked out. You mentioned free fluid in the pelvis but didn't say if they knew if it was blood or if it was cystic fluid, and maybe they don't know. If it was/is blood, that is a serious irritant and it will take a while to reabsorb. For me, it took 3 weeks, and then it tapered off pretty quickly. During that time though, it felt like I was giving birth everytime I had to pass something through my intestines or bladder. Before it was discovered that I had a ruptured hemorrhagic cyst I completely felt like I was in labor, or had a blocked intestine, or a kidney stone, or something "not gynocological." I had never been aware of having cysts prior to that and had no clue what was going on, only that there was ongoing achy bad menstrual-like pain and then unbearable bad pain in the entire abdomen.
The weight gain -- have the doctors responded to that at all? Have they run endocrine-type tests? Hormone tests? That seems like a lot of weight to be only related to swelling. What are they telling you about it?
The colonoscopy and the endoscopy -- what would they be looking for when doing those tests and how are they thinking it might be related? I've had both of those, but associated with checking for celiac disease damage, not anything related to cysts or free-fluid in the pelvis.
Sport injury -- I really hope the doctor was joking, because that's just not cool. Get real. There's something going on and it needs to be discovered what's causing all of this. If the doctor wasn't joking -- find a new doctor! Seriously! Pain is not a joking matter, especially for a mom who needs to be super-mom!
Diet and eating -- I'm only speaking from my own experience here and have no expertise in anyway aside from my own experience.... I started eating lots of probiotic-rich foods after my rupture and it seemed to help. At the very least it prevented me from getting constipated which was the last thing I wanted while having such pain passing even just gas. I drank kefir, ate sauerkraut, ate low-carb yogurt, drank kombucha... anything that was high in probiotics and low in carbs (which are sugars). The foods are easy to get down while feeling swollen (not bulky), have high nutritional value, and can help calm the chaos in your body. Initially I hated the taste of all of them, but within a week was craving them. I truly believe they made a big difference for me in healing. I cut out all grains (carbohydrates which are converted to sugars) as they feed bad bacteria that are in your intestines and just focused on veggies, meats (minimal at first because of bulk), and probiotic foods. Can't say how it might work for you, but felt that it helped me a lot, and it's definitely worth the effort if you can avoid further problems and medical expenses. Don't know if you're familiar with the GAPS diet (maybe since your son is autistic you know about it?), but it might be worth exploring as a guide to healing. It's a big undertaking, but can be amazingly healing. Google it if you're unfamiliar.
Sorry I can't be more helpful, but hope that you will soon find relief and be on a path to improved health! You're a really important component in your son's life and the best thing you can do for him is to be sure you're healthy!
All the best!
I don't have specific experience with what you're dealing with physically, but might suggest a couple of things to have checked out. You mentioned free fluid in the pelvis but didn't say if they knew if it was blood or if it was cystic fluid, and maybe they don't know. If it was/is blood, that is a serious irritant and it will take a while to reabsorb. For me, it took 3 weeks, and then it tapered off pretty quickly. During that time though, it felt like I was giving birth everytime I had to pass something through my intestines or bladder. Before it was discovered that I had a ruptured hemorrhagic cyst I completely felt like I was in labor, or had a blocked intestine, or a kidney stone, or something "not gynocological." I had never been aware of having cysts prior to that and had no clue what was going on, only that there was ongoing achy bad menstrual-like pain and then unbearable bad pain in the entire abdomen.
The weight gain -- have the doctors responded to that at all? Have they run endocrine-type tests? Hormone tests? That seems like a lot of weight to be only related to swelling. What are they telling you about it?
The colonoscopy and the endoscopy -- what would they be looking for when doing those tests and how are they thinking it might be related? I've had both of those, but associated with checking for celiac disease damage, not anything related to cysts or free-fluid in the pelvis.
Sport injury -- I really hope the doctor was joking, because that's just not cool. Get real. There's something going on and it needs to be discovered what's causing all of this. If the doctor wasn't joking -- find a new doctor! Seriously! Pain is not a joking matter, especially for a mom who needs to be super-mom!
Diet and eating -- I'm only speaking from my own experience here and have no expertise in anyway aside from my own experience.... I started eating lots of probiotic-rich foods after my rupture and it seemed to help. At the very least it prevented me from getting constipated which was the last thing I wanted while having such pain passing even just gas. I drank kefir, ate sauerkraut, ate low-carb yogurt, drank kombucha... anything that was high in probiotics and low in carbs (which are sugars). The foods are easy to get down while feeling swollen (not bulky), have high nutritional value, and can help calm the chaos in your body. Initially I hated the taste of all of them, but within a week was craving them. I truly believe they made a big difference for me in healing. I cut out all grains (carbohydrates which are converted to sugars) as they feed bad bacteria that are in your intestines and just focused on veggies, meats (minimal at first because of bulk), and probiotic foods. Can't say how it might work for you, but felt that it helped me a lot, and it's definitely worth the effort if you can avoid further problems and medical expenses. Don't know if you're familiar with the GAPS diet (maybe since your son is autistic you know about it?), but it might be worth exploring as a guide to healing. It's a big undertaking, but can be amazingly healing. Google it if you're unfamiliar.
Sorry I can't be more helpful, but hope that you will soon find relief and be on a path to improved health! You're a really important component in your son's life and the best thing you can do for him is to be sure you're healthy!
All the best!
I am dealing with almost all of those symptoms as well. I am 28 and have been dealing with this for several years now. One doctor performed something I can't remember what its called but pretty much a colonoscopy and endoscopy at the same time just to tell me he saw nothing wrong. I was told I have IBS and that I had cysts on my left ovary. One of my cysts ruptured when I was about 23. After that things just got worse. My periods went from lasting 4-7 days to only having like 2 days of a normal period and a couple of days of spotting brown blood. I finally went to a specialist and was diagnosed with endometriosis. It sounds like that is what is wrong with you also. Good luck, I hope this helps
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