Aa
Aa
A
A
A
Close
Avatar universal

Thanks for all the previous help, but now one more?

Dear Fabulously Helpful Pain Management Group,

I had my doctor's visit and she up my dosage of 30 mg. Morphine Sulfate from twice per day to thrice per day.  I also still need to take the four (4) 10/325 percocet as well, but so far so good.

This forum has helped me so very much before and I thank you, and then thank you again!  

Of course, I have been reading some of these posts just today and I have to questions that only you as a group can answer for me.

My pain is way, way, less with this one more 30 mg. Morphine Sulfate per day, but still having to take all four (4) the percocets as well.  

My actual question, (finally, right?) is, why when my pain days are what I consider really good at mostly a level 5 and sometimes level 4 on other days do I have absolutely noooooooooo energy?

I assumed that when my pain level was better controlled I would actually have some energy and I really don't have any at all, i.e. taking a shower is an ordeal, washing my bedding can send me to bed (at least a clean one) for days.

Also, what is the difference between hyromorphone that I've just been reading here about and what I take which I will state again is Morphine Sulfate.  Which one is stronger?   Also to whomever does this hydromorphone does it allow you any energy, and by that I do not at all mean a euphoric feeling, just some actual real life (such as our's is) energy.

I do and always will appreciate any and every bit of information I can receive on this subject.  Tuckamore, do you have any insight into this conumdrum?  I must be very naive, but I did actually think that  with a lower amount of pain I would have some actual energy but alas, do not.

Also the other dear person who posted about Hydromorphone, or any other dear member who is knowledgable about this.  Is it stronger than Morphine Sulphate at 30 mg. three (3) per day.

Thank you, one and all for being always so very patient with my diatribe and my ignorance on these subjects.

I have always turned to this group to help me suss out exactly what is correct and what is not.

Sincerely and With Great Apppreciation,

Suda

PS.  For the last three weeks I have been getting B-12 injections also, yet still no actual energy.
Best Answer
547368 tn?1440541785
Hello Again Suda,

It is great to hear from you. Welcome back!!!! I am absolutely delighted that you have better pain control.

It is often the very drug that reduces or pain that also zaps our energy. Unfortunately it can be a side effect that is difficult to avoid, especially when you are on higher doses.

Hydromorphone is more potent than Morphine in mg per mg. I think I quoted the differance on the thread you are talking about. I'll double check the figures. However that doesn't mean that you cannot achieve the same result with another opiate at higher doses.

Please don't be mislead by thinking that because Hydromorphone was effective for one person that it necessarily will be the right drug for you. That was not the posters point. What is important is that what you are being prescribed controls your pain with the least amount of side effects. There is no one miracle narcotic that words universally well for everyone.

Actually your levels sound pretty good. I rarely have a day let alone an hour at a level 4 or 5.  Again I must say that I am delighted that your pain has been reduced to those levels. You deserve to be as comfortable as possible.

B12 injections can take close to 6-8 weeks to improve your deficiencies and improve your energy. Even than the differance can be subtle.

Thank You for updating us. If I haven't been clear with my answers please ask again. :) We are so glad that you found us, returned and are happy that you are comfortable here. We are glad to have you. :)

My Best to You,
~Tuck
19 Responses
Sort by: Helpful Oldest Newest
Avatar universal
hello there from manitoba. i have just read about your comments about the oxy vs hydromorphone and i happen to be on both these meds. hysro is 12 mg and oxy 10. now, you were mentioning tired all the time, tell me about it. i take the hydro 3 times a day and if pain in between then i take an oxy 10mg's. now, i do have pancreatitus and if you know anything about that, then you will understand the chronic pain that i have. i do have the chronic pain and i somewhat have my pain under control. right now, i would have to say a 5-6 and i have had very bad days where i would say 9-10, BUT, all said and done, i have found that since i have been on the hydro with the oxy, weyyyyyy more tired and yeh, sometimes to take a shower is just impossible. i like reading this stough for i like to find out what every body else;s exp. are. everyone is diff. for sure, but it is very interesting to know that there are alot of people suffering and we do need these meds. to keep us going so we can live a happy pain free life. thanks for listening.
Helpful - 0
547368 tn?1440541785
Some ppl just do not care if things are not picked up. They seem perfectly content to live in a bit of a mess. That is certainly there prerogative.

The problems come when living quarters are shared with someone who is neat and tidy. Someone that cannot live with the butter open on the counter, a dirty knife next to it and the bread left out with the tie off the end. Absolutely irritating to ppl like me and apparently like you too Suda.

So what to do? Leaving it goes against your grain. But when you are physically challenged sometimes you just have no choice. Why increase you pain and have more down time?  Chronic horrid pain and excellent, immaculate housekeeper are words that just don't fit together. Learning to close an eye to untidiness can be difficult. Try to set your priorities. Bread crumb and a dirty sink vs bedridden pain seems like a simple choice. I know that it is not always so easy. It's taken me some time and retraining but I can walk past someone else's mess....most of the time. My mind equates cleaning with pain. So I pick and chose what is important in the overall scheme of things. The world will not end if my counter is cluttered today and I am not a bad person if my floor needs sweeping.

JadedSweetheart is correct. I break down the tasks in small time increments. Instead of "cleaning the kitchen" I make it several broken tasks like wiping down the counters, sweeping the floor, cleaning the sink, etc. These tasks are not done in one cleaning sprint, rather divided up over the course of a day...or two if need be. When the tasks are completed it is a feeling of accomplishment and joy that I am not confined to bed for the next two days.  The heavy stuff gets hired out....or a relative or friend steps in to help now and again.

Remind yourself of the important things in life. The old saying, "Don't sweat the small stuff" certainly applies in pain management.  

We are glad you have rejoined us.  Together we can make the journey through pain management less difficult...maybe even enjoyable. :)
Helpful - 0
Avatar universal
Glad to hear you've got some pain relief.  It's such a process, isn't it?  I'm finding for my long-lasting pain relief the Fentanyl has been best.  I was given Dilaudid in March after my surgery.  At the time, I was kind of afraid to take it because it is so strong, and it turned out to do nothing.  Like eating a tic tac.  They increased it 3 times and then ended up switching me back to the oxycodone but a higher dose.  Oxycodone seems to work best for me on the BT pain, though there are times nothing helps it.

I understand about the lethargy.  I get that a lot, too.  I also think it's from the pain mostly.  Though, maybe it wouldn't be a bad idea to have some blood run.  Sometimes I think when we have CP we think everything is related to it.  There's a small possibility you could have some virus or infection you don't know about that's causing this.  It happened to me nearly 2 years ago.  Never did get to the bottom of it but it did resolve eventually on its own.

Best of luck and hope you continue to post.
Helpful - 0
356518 tn?1322263642
Suda,
  I was reading the leaflet that came with my Hydromorphone and it says that 5- 10 mg of Hydromorphone is comparable with 30 and 60 mg Morphine sulfate respectfully.
Just thought I would mention that.
Helpful - 0
356518 tn?1322263642
Now Jaded Sweetheart do not be so quick to sell yourself short! You are a great asset to this community and you help others here with kindness and compassion and we love having you here:)
Helpful - 0
Avatar universal
On thing I have found as an amazing resource for cleaning when you don't have much time or energy is called FlyLady.  I'm not going to post the website or plug it.  I just have found it helps me do little things 15 mins at a time and makes me feel somewhat empowered when I can do these things.  I am not a natural cleaner, so it is easy for me to overlook some mess, but when things get out of hand, they just overwhelm me.

Ps.  I first responded to this post because you called us "Fabulously Helpful"!  I am not nearly as fabulous or helpful as the wonderful members here, but to be grouped in as so is nice. :D
Helpful - 0
356518 tn?1322263642
I know what you mean about other's being messy! Last year my Son had two roommates that would not clean! I go to my Son's once a week and clean and do laundry and get groceries for him.( I know I should let him do this but hey I am a Mom and will do it as long as I can.) My Son tells me not to do these things but I have to:)
Anyways my Son is the type that does not like messy home/apt. He will clean up behind himself. But the others were terrible! I would go and spend all day cleaning mostly their mess and finally my Son said enough and told the other room mates that his Mom would no longer be their maid and they need to clean up behind themselves, he knew it was useless to tell me to stop so he made them start cleaning:)
It worked but they were terrible before that! I would do all laundry clean bathrooms and kitchen and living room and the fridge oh my!
It is hard to make others understand they may be ok living in filth but some do not want to!
As long as you keep doing it they will continue to make the mess and not lift a finger.
Helpful - 0
Avatar universal
Dear, Much Needed Group,

I thank you all for all your comments and suggestions.  I do absolutely know that one med may work for this person, but not that person.  I'm, sadly (barely living) proof of that situation.

As to being sleepy, it is not that I am sleepy at all really.  It is simply almost absolutely no energy to get up and do the necessary things i.e, bathing, straightening the kitchen a bit, et. al.  

As usual, Tuckamore and the rest of you great people have come to my rescue, once again!

I do believe that Tuck has my problem down when she? specified that chronic pain, even however much it may be controlled is simply exhausting to live with on a daily basis!!

So very sad, but so very, very true.  

I believe that what I must do now is stop caring if the other adults I live with clean up after themselves at all.  I do clean up after myself, but have always tried to keep at the least kitchen and main bathroom cleaned.  But, I must begin to train my brain to overlook all the solvenliness (sp) that I must live with on a continuous basis and simply clean up after myself!  That is so very, very much easier said than done for me, but physicially the truth of the matter is I absolutely can't take care of other adults messes, nor care when I see it.  I am barely able to clean up after myself as mentioned earlier.

Again, thank you, thank you and thank you as always!  You guys/gals are my sounding board, my touchstones and my hope!

Big Hugs,

Suda

PS.  Right now I have cleaned up the kitchen again!  There I go, it will take some time to change, but it is simply not worth wrecking my health.  Sooooooo, I am going back to bed, yes at noon here my time and live with my heating pad for as long as I can.

Helpful - 0
356518 tn?1322263642
Hi and welcome back:)
I must say that Tuck is right in that just because one medication works well for them it does not mean it will for you or that it will effect you in the same way it does them.
I just started the Hydromorphone on Friday and it has been great for me. I am not tired like I was taking the oxycodone and I do not get a euphoric feeling from it either. It does control my pain and I am sleeping much better. I have noticed I have more energy because I am not as tired as I was with the other medication. I got up at 8 am and got dressed and fixed breakfast and got things ready for the beach and I wasn't tired and I have been moving around pretty much all day. Taking breaks in between to post here. But I feel so much better.
Everyone reacts differently though.
Helpful - 0
Avatar universal
I completely understand not having the energy to do the things we need to and would like to do.  I had this problem last week and thought I had an infection.  I'm not sure if it's the new med or depression over the increase in pain that is making me feel SO similar.  I have to get geared up to take a shower and I had to have my husband's help in cleaning the house, I was only able to do some of the kitchen.  I barely have the energy to remind the kids to do what they need to do.  I don't know what I would do if my son was visiting at his father's house and couldn't walk the dog for me every day.  

I hope we both get some help for the exhaustion soon!
Helpful - 0
Avatar universal
It's so true about how wonderful MH is. We have the very best people on here as you already know!!

Again I just want you to know I'm very glad that you are getting relief finally from you meds!!!

I really hope that you will keep in touch often with us here. After all YOU are one of us!!!

Good Luck, My Friend........Sherry
Helpful - 0
547368 tn?1440541785
Suda,

Thank you so much for your very kind words. Many of our members are just like me and more so. They are willing to help and knowledgeable. I am so very glad that my information was beneficial to you.

Ahh Spelling! Even with spell check it is a challenge.


Jaded Sweetheart,

You bring up an Excellent Point...one we don't always think about. Dealing with Daily Chronic Pain and the challenges it presents is exhausting! Absolutely exhausting. Most every thing we do takes much more energy than it take the "normal" person.  

A PMP once told me that when I tried to do the "normal" activities of every day life it was equal to someone without pain attempting to train and be fit for the Olympics in Twenty Four Hours!  A good analogy for many of us.

What's the one word I can use every day to describe how I feel, tired. Chronic pain is not only physically exhausting, it's mentally exhausting.

Thanks for reminding us.

My Best to Both of You,
~Tuck
    
Helpful - 0
Avatar universal
Dear Jaded Sweetheart,

Thank you for responding.  I know about lethargy, but this is total exhaustion and sad to say I've never taken any opiate pain medicine, or any pain medicine that ever worked, got rid of the pain.  

I'm lucky I'm getting some help, so I'll just have to allow the pigs I live with to clean up after themselves.  I always clean up after myself!  It's simply not feeling enough energy to go to dinner with friends, at the most once a month, and some days, not being able to handle a shower and all the other things that go along with it.

Again, thank you very much!

Sincerely,

Suda
Helpful - 0
Avatar universal
Dear namnam46,

Thank you for your reply!  Whatever would we do without this site?  I'd be totally lost!  I feel totally lost most days, but if it get worse than usual I come on here for some commeraderie (sp).

Sincerely,

Suda
Helpful - 0
Avatar universal
I was also on MSContin, but only for about 3 months.  I was on 2 or 3 a day, I don't recall.  I found it controlled most of my pain, but not the BT, and I didn't really have adequate BT meds at the time.
I, too, get sleepy when I get good pain relief.  I have talked this over with my husband (who was on opiate therapy for years before we met) and our thoughts are that pain is exhausting.  Sometimes pain can keep you awake and agitated and when you finally get relief you just want to heave a sigh of relief and pass out.  
Also, different meds affect people differently.  For some people oxycodone keeps them up at night, others can take a small amount and feel drowsy.
I don't know much about the extended-release hydromorphone, or hydromorphone ER.  I've never taken it.  I am taking 4 mgs of dilaudid as a substitute for oxycodone 30mg and I don't feel it works very well. I am also slightly more tired on the dilaudid than i was on the oxycodone.  Part of my problem is it just never really takes the pain away in a significant amount.  I just feel so worn out all the time.
Other people feel it works great, though.  
I'd say talk to your doctor about it and see if it's something you can try, and if it doesn't make you less drowsy, go back to the MSContin.  However, I have found in PM that if you find something that works for you, you might want weigh whether it would be worth the risks to switch to something that might not work well.
I hope you get your energy back!
Helpful - 0
Avatar universal
Dearest Tuckamore,

Once again my life saver with the knowledge.  I'm being upbeat about most days being a 5 or a 4 on the pain scale, but no matter, because it's just better.  If it doesn't continue I'll (as you would so wisely advise discuss this with my doctor).

Thank you over and over because I totally didn't understand why I still really couldn't get up and do much at all what with no energy and all.

Thank you, Thank you, and Thank you once again.

Sincerly,

Suda

PS.  Of all people, what with all my disaterous previous medicine reactions, I absolutely know that one help this person, but may do nothing for another.

PSS.  Don't worry at all about any mispellings!  That's one big thing I have noticed with my brain, I can't spell at all anymore and I used to be able to spell polysyllabic words with nary a second thought!

PSSS.  Ha!  As fabulous and necesssary to me, you and all involved it's the knowledge, comfort, and commiseration we mostly all come here for.  But one would think they could manage to put in a spell check.

One again, thank you, thank you, and thank you!!!!!!
Helpful - 0
547368 tn?1440541785
I wanted to double check the potency information I posted yesterday, especially after I noted one place where I had a typo in the name of the drug. The information was correct.

Hydromorphone is thought to be 8-10 times stronger than morphine. You may be more familiar with it's brand name, dilaudid. It was prescribed for me one time, just hours following a complex surgery. I experienced great pain releif from it...but I immediately developed hives over my entire body. Story of my life. :)

Hope this additional information is helpful.
Helpful - 0
Avatar universal
Hi Suda,

I'm so glad that you checked back in with us!!  

As usual, the MH Voice of Reason - Tuck (as you referred to her in your last post), gave you EXCELLENT information once again!!

I'm very glad that you are having much better pain control.

CONGRATULATIONS!!

I hope that you will stay in touch with everyone here more often.....Sherry   :)
Helpful - 0
Have an Answer?

You are reading content posted in the Pain Management Community

Top Pain Answerers
Avatar universal
st. louis, MO
317787 tn?1473358451
DC
Learn About Top Answerers
Didn't find the answer you were looking for?
Ask a question
Popular Resources
Find out how beta-blocker eye drops show promising results for acute migraine relief.
Could it be something you ate? Lack of sleep? Here are 11 migraine triggers to look out for.
Find out if PRP therapy right for you.
Tips for preventing one of the most common types of knee injury.
Here are 10 ways to stop headaches before they start.
Tips and moves to ease backaches