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treatment for Familial Exudative Vitreo-retinopathy

My son (3.5 yrs) was with very low vision in his right eye. Doctor say he may have  Familial Exudative Vitreo-retinopathy. what is the newest and best treatment for Familial Exudative Vitreo-retinopathy? Who is the best doctor in US?
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535822 tn?1443976780
You may find answers to your question if you go to the eyecare Forum good luck
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