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chronic pelvic pain lasting almost 2 years
I have been suffering from severe pelvic pain for almost 2 years. I've had several ultrasounds, 2 CT scans, a laparoscopy, a cystoscopy, and a colonoscopy. I have been told that I have polycystic ovaries, however my doctor says that these shouldn't cause pain (which I don't believe). My CT scan revealed a 5mm calcium deposit that was not a kidney stone. Supposedly endometriosis was ruled out during my laparoscopy, but because there were some complications the day before my procedure was scheduled (I had appendicitis and had my appendix removed at the same time) I don't think that I am convinced that I do not have endometriosis. I guess I'm looking for suggestions or confirmation of my doctors "ruled out" causes. Also, what could the calcium deposit be? Would an MRI do me any good?
I'm just at the point where I don't know what to do anymore and I can no longer manage my pain. At this point everyone thinks that my problems are all in my head.
I'm just at the point where I don't know what to do anymore and I can no longer manage my pain. At this point everyone thinks that my problems are all in my head.
Emily...
Yes I was diagnosed after my second laparoscopy with endometriosis. I was put on birthcontrol and I believe it helped take the edge off somewhat.
I feel for your friend, this is by far the most difficult thing I've ever been through, and struggle with it every day, now my pain has radiated to my legs and my right arm/hand. Having a diagnosis helped me feel "less crazy" and validated in a sense. I took Lupron, which also helped, but the side effects were terrible, and I believe in a way, worse than the endometriosis pain.
The thing that did help me was eliminating gluten from my diet. In addition, cutting down on my sugar, meat and dairy. I read about it on an endometriosis website. That might help her.
I hope your friend gets the help she needs. You are a good friend for being so understanding and trying to help her. We aren't all that lucky.
Heather
Yes I was diagnosed after my second laparoscopy with endometriosis. I was put on birthcontrol and I believe it helped take the edge off somewhat.
I feel for your friend, this is by far the most difficult thing I've ever been through, and struggle with it every day, now my pain has radiated to my legs and my right arm/hand. Having a diagnosis helped me feel "less crazy" and validated in a sense. I took Lupron, which also helped, but the side effects were terrible, and I believe in a way, worse than the endometriosis pain.
The thing that did help me was eliminating gluten from my diet. In addition, cutting down on my sugar, meat and dairy. I read about it on an endometriosis website. That might help her.
I hope your friend gets the help she needs. You are a good friend for being so understanding and trying to help her. We aren't all that lucky.
Heather
Hello,
My friend is also suffering from chronic pelvic pain (6 years now). She has had the same tests as you, and all have come up negative. They also tell her it's in her head, but now they know there's more because her stomach is severely swollen and she cannot get out of bed without heavy dosages of morphine. She has pain in pelvis, running down her back, and it feels like a cinch is tightening around her stomach. Have you found a diagnosis yet? We are frantically looking for others who might bring light to what she has? I hope that you are in less pain now and that you have found the source - my friend is completely at a loss. Please let me know if you have any insight.
My friend is also suffering from chronic pelvic pain (6 years now). She has had the same tests as you, and all have come up negative. They also tell her it's in her head, but now they know there's more because her stomach is severely swollen and she cannot get out of bed without heavy dosages of morphine. She has pain in pelvis, running down her back, and it feels like a cinch is tightening around her stomach. Have you found a diagnosis yet? We are frantically looking for others who might bring light to what she has? I hope that you are in less pain now and that you have found the source - my friend is completely at a loss. Please let me know if you have any insight.
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