My son has fluid on his lungs...

Question

Thought I was going to a routine u/s to determine weight bnut it ended up i was sent to a specialists. He is 2 lbs 8 oz.

He has right Pleural Effusion (about 1cm of unknown fluid surronding right lung) 
He has to have a needle put into the sac around his lungs and draw the fluid to find out what it is.

There is so much more i just need ot regroup.....

sherrysb · Answer

God never gives us more than we can handle. You, bf and baby will be fine.  Trust God

ethyl563 · Answer

Hi just a little bit of hope for you, when I was pregnant with my DD they tested me for all sorts of stuff, I did refuse the amnio, they told me that there was all sorts wrong with her. In the end I was induced at 39 weeks, she was fine and is now 22years with 2 of her own. Sometimes things do turn out well but either way you will love your child no matter what. Try and focus on your love for your child, prepare for the worst but expect the best. I pray you can find it within yourself to stay strong and focus on your love but, I do understand it is easier siad than done. 
Sometimes it helps just to write out every thing you are feeling not matter what it is, I think all of the loveing women on this site will stand by you throughout this and will always be here for you no matter what you say.

prevatt77 · Answer

Everything is going to be just fine.  I will be praying for you.  Please keep us posted.

Courtcoop · Answer

Hi All,

They have ruled out Downs so the only other option is another genetic syndrome they usually do not test for.

I go to one of the top perioneonatel (sp?) tomorrow at Beth Israel Hospital in Boston, all of my DR's pulled some strings to get it.

I will keep all of you posted tomorrow PM when I get back.

have 2 kids · Answer

Sorry you are going through this.  Have they given you any ideas what they feel is wrong with him?   I know the fingers and high nuchal fold are associated with down syndrome but you had that ruled out with amnio.

mamom15 · Answer

I am so sorry for what you are going through.  As we are approximately the same age ( I am 40) and our due dates on almost the same date, I have been following your story.  I too live in the boston area.  My prayers are with you.

melimeli · Answer

Good luck... many prayers to you and your baby!!!

Courtcoop · Answer

Well, more calls from DR today...she thinks is almost 100% genetic (vs viral) looking at amnio results, etc. from previously:

1. Nuchal fold was high~~~ 5.2mm at 16.5 weeks
2. Left fingers are clinodactyly (this was at 16.5 weeks)
3. Short femur bones (measuring 3 weeks behind developement)
4. questionable echogenicity of kidneys
5. right pleural effusion

Me and BF have been on phone all morning to get into prenatal specialists in Boston at least by Thursday.

melimeli · Answer

I am so glad you boyfriend is coming home.. let me tell you when my sil was pg they did a million u/s and swore that the baby was going to be a "little person" midget.  Well she was just fine... short for a while but has caught up with my dd (they are one day apart) they are 7 now...  I will pray for your little guy and try to stay strong for your baby.. he is inside you and can sense his mommies fears...

Juliaschill · Answer

Sorry to see you are hurting, will send lots of prayers your way!

limpet · Answer

I am so sorry. I am praying for you and your baby.

Pum · Answer

I am so sorry you are going through this. Cry as much as you want and don't worry about it hurting him. Mother guilt is always going to happen anyway. There are so many unknowns here you can't help but be concerned but he is the same sweet boy he was yesterday and you are the same mummy you were yesterday.
Take care.

Ecologic · Answer

I am very sorry about the news... though doctors are not 100% sure so stay hopeful!

adgal · Answer

Boy, you have had your fill of bumps haven't you.  But you know what, this too will turn out fine, I truly truly believe that.  I don't pretend to know alot about this, but I do know that the vast majority of the time there are several reasons things can happen that are not a problem, with only 1 being a problem..did that make any sense?  So far your little man has come through every potential problem and he will this time too.  I can't wait for you to have your answers so you can enjoy again.  In the meantime, you know I am thinking about you and Noah.  XOXO

blessedmomof3 · Answer

Oh hunni, I am so sorry. I am praying this all works itself out before your next US and you can relax. I know it must be so hard after all you have been through this pregnancy, and I only wish you and your DH peace! Please let us all know as soon as you know anything, we will all be thinking of you.

Courtcoop · Answer

I wish no stress, I have been good this whole pregnancy (not crying) even when I heard Noah was probabaly a DS baby...I think it has been so emotioanlly draining this preganancy that I have hit a wall and now cannot stop crying...

thank you girls...his daddy took the first flight home tonight...happy I do not have to go through this physically alone

prevatt77 · Answer

Court,

Try not to stress sweetie, everything will turn out okay, just believe and pray and it will all work out.  You have came a long way and you need to keep fighting.  Please keep us posted.

rdh1981 · Answer

Prayers are headed your way! I know everything will turn out great you just wait and see!

Courtcoop · Answer

He is 2lbs 13oz by the way...sorry

Courtcoop · Answer

They want to wait a few days to see if it resolves, stays same or gets worse then will do the procedure that day (Friday-ish). 

My specialists picked the best specialist in Boston for this procedure. Cannot imagine a needle going into my little mans chest...he moves so  much..

They also said he had a short femur (i am 5'2" and dad is 5'6")...measuring 24 weks vs 28 weeks... so  DR. said this all could be related to Noonans disease .

Tomorrow I go for a full blood work up to rule out a virus he may have gotten. Also have an echo cardiogram for him to rule out the fluid coming from his heart (which looks fine)

All my appts are now weekly (ultrasounds) and being done by the high risk hospital in Boston. I will also deliver in Boston vs. the local hospital I have been going to.

Was told most likely will deliver early and need to be monitored very closely.

This is all I know at this time..the waiting and unknown begins....

ita17 · Answer

Oh hun, I'm so sorry that you're having to go thru w/this ;-/  Please stay strong, & be positive, & try real hard to not stress, it's so not good for you or your baby.
{{{hugs}}}
laura