pregnant-questions about cystic hygroma

[momma2b]

Hi I am 19 almost 20 years old and about a month and a half ago I found out that I am pregnant for the first time. Then a few days ago an ultrasound confirmed that I was pregnant with identical twins and that i am about 11 weeks along. Unfortunantly, on one of the babies (BABY B) they found an abnormal mass on the back of its neck and head. The other baby is perfectly fine and absolutly normal. The doctor wont make an actual diagnosis until i meet with a specialist. But she did say that it could and most likely be cystic hygroma. I have reasearched it on the internet and found alot of scary things about it. Now I am absolutly terrified about what is going to happen to one of my babies. Does anyone know any good things about cystic hygroma?? Am I going to have terminate that baby?, and if so will i have to terminate both or could the healthy one still survive? They share the same placenta but are in different sacs. My husband and I are so scared please any help will be greatly appriated.

[webozo]

i am not sure how well things have turned out for you guys but i do have bit of good news for you i have a four year old grandchild that had a massive cystic hygroma. it covered all most his whole head and back. other than a webbed neck larger hand and feet than normall and a slight dvelopmental problem. he is a happy, and  healthy little boy. we did not get answers when my daughter was pregnant and we still don't have answers but he was a blessed gift and we love him dearly. the only thing we are worried about is thia was my daughters firsst child and with no real answers she dosen't know if she should have another child.

[truckercat]

Hi Cherie,

I am glad you found out you are having a girl, Faith is a beautiful name.  I have read about and keep hearing about couples with TS girls.  It seems like many of them can live fairly normal lives.  One woman wrote, maybe in this forum, or in another, about her TS girl. She may of found out later in her pregnancy about the TS, and decided to keep her little girl because of how strong her little girl was to have made it so far--she was fighting to be born.  I felt that same way with Kyra--how amazing that we fought together for 18 weeks--and I am so thankful for those precious 18 weeks I had with her in my womb.  Having a baby living with you for any amount of weeks is life changing--I will never be the same--now I am a mother with a beautiful daughter.

I am praying that you will have stength and endurance--that is what you need most for your heart right now, and for Faith's healing.

God Bless you--thanks so much for writing back--it is very healing for me to talk with other women who are going through the same thing--it means so much

Amy

[cherinsc]

THANKS so much for the love you poored out in your message truckercat!!   Got results from cvs today baby has Turner's sy.  so it'a a girl. Going to talk to genetisist tomarrow combination of cystic hygroma and TS could be bad, may not carry to term .Me and my husband decided we could not live w/ termination, and TS is really not that bad some very normal heart , kidney prob.'s scare me. I work in ICU at hospital and dialysis is a horrable life.If kidney that severe.    Anyways won't know much more for another 6 wks when I go back to spec. for indepth U/S. Please pray that CH is gone and that heart /kidneys okay that all we have to deal w/ is TS.  I am sorry for your loss, I hope you have many healthy ,happy babies in future.I though of adoption b/f all this if you have too go to adoptuskids.org and look at alll the children needing homes.I've decided not to paint the babies room (already primed) or get crib/clothes  till very late in preg cuz I know miscar. is a very real possibility and I don't want to have all that stuff and no baby to bring home.  sending out me love,prayers and thanks cherie PS: I'd like to name her Faith and thats what I must have!!

[truckercat]

Hi Cherinsc-- I am so sorry to hear about your u/s and the CH.  I am praying for all these women--lately Maricar and Tashauna (who will have follow-up u/s tomorrow.)  This is so hard and there is no way to fight--except through prayer.  God did not cause this problem or allow it--it just happens by nature, but God hears our prayers and He answers. My doctor gave us a 50/50 chance of keeping/losing our little girl, based on whether or not the CH was from chromosomal abnormality.  It was too early to do an amnio when we found out--so we just decided to pray and wait for an answer.  I wanted my little girl so badly--with or without CH, which we just found out she had Turner's syndrome from the chromosome tests they did after the autopsy.  

God showed me how to love my baby--even if she had problems--she is still my baby and I love her so very much. I think about her all the time and it's been a month since I delivered her.  I encourage you to listen to your heart, and to the doctors. I know it is hard--at first, all I wanted was for my baby to miscarry--to just be over--the nightmare and fear of having a less than perfect child--gone.  But through many signs, God changed my heart and showed me that I have so much love to give--to my baby, no matter the obstacles.  You have the strength, but you won't know you have it until the moment you need it.  you are already an amazing mother--you have planned and prayed for this child and you have a bond that is eternal. No test or diagnosis will ever change the relationship you have with your baby right now.

I am praying for a complete miraculous healing for your baby--I believe with all my heart in power of God's love.  E-mail me anytime, and if you need to talk I can send you my cell #--let me know

Take care,
Amy Savage
***@****

[cherinsc]

4 dys ago went for regular check up couldn't find H/B W/ doppler so went to U/S uterus tipped/inverted so hard to see so went vaginaly and saw my 12 wk baby dancin little arms and legs, face.U/S tech left room to get doc she said so he could see h/b but he came in and showed me that my baby had a CHygroma and they set me an appt w/ fetal spec. they u/s and worse it's septated and has fluid inbwn skin and ribs, good Hb though.I go in 2 dys for chromosome testing.You go from I can't wait to find out the sex in another 6 wks to am I even going to be having a baby and is there any chance it will be normal.The odds/stats are stacked so high against us.  I don't know if I can terminate.  Chrom. testing will help inform me better.  I prayed so hard for a baby now I pray for a miracle no chrom. defect /ch goes away or for a misscarriage.Because I don't know if I can make the decision to end it.   The only hope I've found so far is this page were some of you have had it resolve or misscar.  God Bless you all you will be in my prayers please keep me in yours  cherie

[truckercat]

Hi Maricar,

Thanks for sending me your e-mail, I will e-mail you soon.  Take care.

Amy