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Underdeveloped Lungs - is there any hope?

I have had a difficult pregancy since the start with bleeding at weeks 7, 8 and 11. It waas discovered I had a blood clot causing the bleeds but the hope was this would just disappear. At 19 weeks my husband and i went for a private scan as my husband works off shore and would be away for out routine 20 weeks scan. At the scan we were told that I had significantly low fluid and to go straight to the hospital. We arrived and were scanned only to be told that there was not enough fluid and I was offered a termination. We were absolutely gutted. The hospital arranged for a follow up check with a consultant a few days later. At the follow up the consultant explained that he felt that the lack of fluid was due to potters syndrome - no kidneys - but arranged for this to be confirmed at Yorkhill Hospital by a Professor of Fetal Medicine. We arrived at this appointment thoroughly depressed and very tired. To our surprise the Professor scanning me said he could clearly see the kidneys and bladder and that the problem was placental - tghe blood clott from the beginning was still there and had damaged it. He told us he felt that there was enough fluif for the baby to develop but had concerns over premture labour. We left feeling completely shocked and trying not to get too excited. This situation continued until I was 25 weeks when, as predicted, my waters broke and I was admitted to hospital. II received steroids and stayed in for a week being told that most women deliver within 48 hours, and most of the remainder within 2 weeks. The hospital explained that the more hours, days and weeks I could gain would make all the difference. Well last Mondayy I reached 31 weeks and attended my usual weekly scan only to be told that the lungs were measuring small (pulmonary hypoplasia) and the consultnat believed the baby would die shortly after delivery which is a section scheduled for 36 weeks. I feel completely crushed and cannot believe that my little fighter has come this far only to be told this. I am now looking for a miracle and any stories of people who may have experienced anything like this. I have a possible 4 weeks until delivery and need some hope to keep me going.
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Avatar universal
Girl God has plan 4 ur son. they told me my son would die and i had him @ 25 weeks 6 days. Doctors don't know everything. you just need to leave it in God's hands because my baby had a similar prioblem and a PDA. Its ok just pray.
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1102290 tn?1278499953
Keep praying... Miracles do happen. I went into labor at 19weeks, bed rest for 105 days... several courses of steriods and my daughter arrived via emergancy c-section at 32 weeks.  Her lungs were okay - we had to have shots monthly (I forgot what they are it has been 8 years) to prevent against RSV and she did have a lot of chest colds and ear infections - but PERFECTLY HEALTHY NOW.  She spent 10 days in NICU with Ecoli from a rouge uti that we did not catch because I was on bedrest... but every minute does count in her development... Trust me... it is really hard to understand how hours help... but they do.. and think of it this way.. they were very wrong before... u/s are not perfect and neither are the techs and Dr's that interupt them... keep your fingers crossed and you are in my prayers....
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