Okay, so firstly let me explain that alveoli cannot habe small hole without collapsing... the mechanisms of breathing requires your transmural and tranplueral cavities to become more negative then atm to be able to inhale. Think about it like a ballon, your not opening the balloon by inhaling, you actually flating it with negative pressure.
1. Has she and other here been evaluated for pulmonary vascular and cardiac conditions?
If not i recommend the following...
Spet v/q
exercise right heart cath
Cardiac mri
I have been through the ringer the past 3.5 years. I know how tough this is. I have had pe's misdiagnosed, an asd missed and another l to r shunt, that hopefully can be closed.
I was a medical professional and am now a professional patient. If there is anyway I can help by answering more questions or explaing details please pm me.
Trust your gut, and dont let md's tell you your fine when you know you are not.
Blessing to you all!!
Hi,
I read this since I am chatting with NanonsHealth. I too am really sorry for your daughters situation. I wish her all luck in the world. And I read she has been tested thoroughly without finding the cause.
The other day i read about a football player suddenly getting sick from something called pneumothorax, or collapsed lung, him having to rest for a long time until the lung is back to normal size again.
What would happen is that air leaks from tiny holes in the alveoli to the surrounding lung sack, causing the lung to not work properly since the opposing gas pressure in the lung sack prevents the lung to expand properly. I imagine this would feel something like not being able to catch a deep breath. However, I don't know if this condition comes in different difficulties or only as an acute thing. If there is a mild and slow form i don't know. Besides, they have probably already checked her for this.
Please tell her I wish her the best of luck.
Hello Frizzle, I am so sympathetic and understanding of what your daughter is going through because I myself am 27, and am having major issues in trouble breathing with doctors already giving up in my predicament. You say your daughter has been having trouble breathing, what is this sensation like? Is it shortness of breath as if she can't get a full breath and only a percentage of her lungs are being used? Is her chest tight on certain areas or across the board? When she breathes in, does it feel like she is breathing through a straw? Is she manually breathing without purposely trying too? I only ask these questions because a lot of them relate to how I feel, and I can only list things off on what your daughter may have; Chemical pneumonia, reactive airway disease, and IPF are some things that popped into my mind, but I'm unsure of whether or not your daughter has already been tested for things such as these. Just shooting spitballs here but I don't think inflammation in the lungs can be seen by an xray test, so I'm wondering if she may have some kind of idiopathic inflammation and the doctors just can't find it with their testing.
I honestly don't know if this post has really given you any information you don't already know, I just want you to know I am sort of in the same boat and it always makes me upset to hear someone in so much pain. I wouldn't wish chronic pain on anyone, it is a nightmare.