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For those that are still Hurting
Floks, I have been through A LOT and for those that know my story, I think I finally found the answer.
I had uprotected oral about 3.5 months ago, and I have been in discomfort ever since. I have had tests upon tests.... and tons of antibiotics.
I finally just quit using antibiotics for a month, met with 3 other urologists, and the 3rd seemed like a winner. (that is out of about 7) He ordered a 3 glass study/culture, semen culture & a antibiotic sensitivity study. I had cultures before in the past while on antibiotics and all of them were negative, and all of the doctors said it did not matter.
Any how, on this culture they found steptococcus group B, enough to be concerned about. The doctor put me on a weeks worth of Bactrim.
Folks for the first time in a LONG time I have been pain free. I was having prostate discomfort, bladder pain and ofcourse pain in my shaft. I have been on Bactrim now for 24 hrs.... and I am just simply amazed.
I guess the moral of the story is that you have to advocate for yourself & don't give up. I went through at least 7 doctors and around 1500 if not more.... just to finally find a doctor that would do one of the most basic and routine methods of trying to find a cause & the appropriate cure for UTI issues.
I had uprotected oral about 3.5 months ago, and I have been in discomfort ever since. I have had tests upon tests.... and tons of antibiotics.
I finally just quit using antibiotics for a month, met with 3 other urologists, and the 3rd seemed like a winner. (that is out of about 7) He ordered a 3 glass study/culture, semen culture & a antibiotic sensitivity study. I had cultures before in the past while on antibiotics and all of them were negative, and all of the doctors said it did not matter.
Any how, on this culture they found steptococcus group B, enough to be concerned about. The doctor put me on a weeks worth of Bactrim.
Folks for the first time in a LONG time I have been pain free. I was having prostate discomfort, bladder pain and ofcourse pain in my shaft. I have been on Bactrim now for 24 hrs.... and I am just simply amazed.
I guess the moral of the story is that you have to advocate for yourself & don't give up. I went through at least 7 doctors and around 1500 if not more.... just to finally find a doctor that would do one of the most basic and routine methods of trying to find a cause & the appropriate cure for UTI issues.
your ph in your urine is 8.1, normal is around 6 when it goaes that high that means there is an infection present, like cbp, hmmm, how much bactrim are u taking, like per day how many milligrams,e u didnt put the bactrim
September 15 (off of meds)
• Sonar of Bladder, testicles, vas deferens, epididymis – all normal
• Sonar of prostate – size normal – calcifications noted
• Semen analysis – essentially normal
- volume 1.8
- motility of 60%
- Ph of 8.1
September 15 (off of meds)
• Sonar of Bladder, testicles, vas deferens, epididymis – all normal
• Sonar of prostate – size normal – calcifications noted
• Semen analysis – essentially normal
- volume 1.8
- motility of 60%
- Ph of 8.1
This is unbelievably good information. I am so happy that you have likely found your problem! It took remarkable determination and that's impressive.
Thanks a lot for your post Jimmy. I forgot to come back to this thread and did not see this until today. Since I still have symptoms myself, this may be helpful to me. Thanks again and take care!
• Normal Flora collected from urethra swab test
• Normal Sonogram for bladder, testicles, vas deferens, epididymis,kidneys
• Normal Sonogram for prostate size.
• Normal or unremarkable DRE (Digital Rectal Exam)
• Normal or unremarkable DRE (Digital Rectal Exam)
• Normal or unremarkable DRE (Digital Rectal Exam)
Yes the history is extensive, and yes it could appear that I suffer heavily from OCD. But here is the deal. I am in Thailand, and most the doctors here do not go through the same type of heavy training that the doctors do in the states. Also, English is sometimes an issue, so I wrote everything down becuase usually they can read Englsih.
Any how, Streptococcus is rather common in women, it is located in their gastro tract, and vagina. It is usually benign. Men can get it too, and even then it is usually benign, it just colonizes and does not cause any real issues. But it can if things such as trauma, HIV, high intake of antibiotics set them off balance. In other words giving the bacteria an upper hand.
In my case, I don't know for sure what happened. Did I get it from the girl? I don't know. Did I get it by taking so many antibiotics, thus killing off any natural predators for Streptococcus? I don't know, and I can't find any research regarding that theory. Did I get an infection started after the MD scraped me severely while performing a swab test (trauma)? I don't know, but I do suspect that is the case.
But ultimatley I think we got this beat... I am pain free... for the first time in a long time. I was really starting to think it was all in my head, I was really ready to give up! Thank goodness I finally got a good doctor. Good luck folks and sorry for the long post.
• Normal Sonogram for bladder, testicles, vas deferens, epididymis,kidneys
• Normal Sonogram for prostate size.
• Normal or unremarkable DRE (Digital Rectal Exam)
• Normal or unremarkable DRE (Digital Rectal Exam)
• Normal or unremarkable DRE (Digital Rectal Exam)
Yes the history is extensive, and yes it could appear that I suffer heavily from OCD. But here is the deal. I am in Thailand, and most the doctors here do not go through the same type of heavy training that the doctors do in the states. Also, English is sometimes an issue, so I wrote everything down becuase usually they can read Englsih.
Any how, Streptococcus is rather common in women, it is located in their gastro tract, and vagina. It is usually benign. Men can get it too, and even then it is usually benign, it just colonizes and does not cause any real issues. But it can if things such as trauma, HIV, high intake of antibiotics set them off balance. In other words giving the bacteria an upper hand.
In my case, I don't know for sure what happened. Did I get it from the girl? I don't know. Did I get it by taking so many antibiotics, thus killing off any natural predators for Streptococcus? I don't know, and I can't find any research regarding that theory. Did I get an infection started after the MD scraped me severely while performing a swab test (trauma)? I don't know, but I do suspect that is the case.
But ultimatley I think we got this beat... I am pain free... for the first time in a long time. I was really starting to think it was all in my head, I was really ready to give up! Thank goodness I finally got a good doctor. Good luck folks and sorry for the long post.
7) Never have I had a semen culture.
8) Urethral burning onset seems to be after an aggressive swab x 5 weeks ago (June 29th)
9) All test performed where done while under antibiotic treatment
10) No mention or investigation of an adenovirus has been made thus far.
11) I do not know if I have ever been tested for gonorrhea.
12) Through more research, I have found that Erythromycin, along with Cravat can cause musculoskeletal issues such as pain. I doubt I ever had Rieghters syndrome. I was probably in pain due to the medication.
13) September 15 requested a semen culture and received a semen analysis, so naturally no study for bacteria was performed.
14) September 25 Urine culture is POSITIVE for streptococcus. The urine culture was taken while I was OFF of MEDICATIONS, while all other previous cultures were taken while on medication.
Summary of meds taken
1) 5/19/07 Zithromax 1.5 g single dose
2) 6/1/07 Doxycycline 4 days 2 capsules per day
3) 6/14/07 Zithormax 1 g + 250 mg following day
4) 6/20/07 Erytrhomicin 4 x per day 15 days
5) 7/10/07 Cravit 500mg Twice Daily x 6 days
6) 7/17/07 Rocephin 250mg single IV dose
7) 7/18/07 Rocephin/Ceftriaxone 2 gram single doze IV x 14 days
8) 8/22/07 Tinidozale 2g x 3 days
Summary of Tests:
• Positive Chlamydia test (swab,Slide, Microscope & liquid used)
• Positive for Chlamydia Pneumonia IgG
• Positive for Mycoplasma pneumonia
• Positive Sonogram for prostate calcifications
• Positive Urine culture for Streptococcus Group B
• Negative White Blood Cell Urethra swab test the following day after positive Chlamydia swab
• Negative Syphillis 1&2
• Negative urinalysis no culture
• Negative Urinalysis after 48 hrs
• Negative Urinalysis after 72 hrs
• Negative Urinalysis done with a prostate massage
• Negative Urinalysis after 48 hrs
• Negative IgG study for Chlamydia trachomatis
• Negative PCR test for Chlamydia trachomatis
• Negative PCR HIV study at 28 days post exposure
• Negative HIV Antibody study at 28 days post exposure
• Negative HIV Antibody study at 7 weeks post exposure
8) Urethral burning onset seems to be after an aggressive swab x 5 weeks ago (June 29th)
9) All test performed where done while under antibiotic treatment
10) No mention or investigation of an adenovirus has been made thus far.
11) I do not know if I have ever been tested for gonorrhea.
12) Through more research, I have found that Erythromycin, along with Cravat can cause musculoskeletal issues such as pain. I doubt I ever had Rieghters syndrome. I was probably in pain due to the medication.
13) September 15 requested a semen culture and received a semen analysis, so naturally no study for bacteria was performed.
14) September 25 Urine culture is POSITIVE for streptococcus. The urine culture was taken while I was OFF of MEDICATIONS, while all other previous cultures were taken while on medication.
Summary of meds taken
1) 5/19/07 Zithromax 1.5 g single dose
2) 6/1/07 Doxycycline 4 days 2 capsules per day
3) 6/14/07 Zithormax 1 g + 250 mg following day
4) 6/20/07 Erytrhomicin 4 x per day 15 days
5) 7/10/07 Cravit 500mg Twice Daily x 6 days
6) 7/17/07 Rocephin 250mg single IV dose
7) 7/18/07 Rocephin/Ceftriaxone 2 gram single doze IV x 14 days
8) 8/22/07 Tinidozale 2g x 3 days
Summary of Tests:
• Positive Chlamydia test (swab,Slide, Microscope & liquid used)
• Positive for Chlamydia Pneumonia IgG
• Positive for Mycoplasma pneumonia
• Positive Sonogram for prostate calcifications
• Positive Urine culture for Streptococcus Group B
• Negative White Blood Cell Urethra swab test the following day after positive Chlamydia swab
• Negative Syphillis 1&2
• Negative urinalysis no culture
• Negative Urinalysis after 48 hrs
• Negative Urinalysis after 72 hrs
• Negative Urinalysis done with a prostate massage
• Negative Urinalysis after 48 hrs
• Negative IgG study for Chlamydia trachomatis
• Negative PCR test for Chlamydia trachomatis
• Negative PCR HIV study at 28 days post exposure
• Negative HIV Antibody study at 28 days post exposure
• Negative HIV Antibody study at 7 weeks post exposure
• Diarrhea onset after finishing medication.
• Flu like symptoms (nausea, headache, slight sore throat, fatigue) onset shortly after finishing medication.
August 5 (off meds)
• Urethra burning minimal.
• No bladder pain
• Right testicle pain more prominent
• Coccyx pain more prominent & sometimes throbbing, decreases after bowel movements
• Nausea
• Slight Fatigue
August 16 (off of meds)
• Urethra burning almost gone
• Slight bladder pain
• No testicle pain
• Coccyx pain has dissipated, but is still noticeable
• No nausea
• Fatigue is now a non-issue
August 22
• Tinidazole 2 gr. X 3 days
September 15 (off of meds)
• Sonar of Bladder, testicles, vas deferens, epididymis – all normal
• Sonar of prostate – size normal – calcifications noted
• Semen analysis – essentially normal
- volume 1.8
- motility of 60%
- Ph of 8.1
September 15 (off of meds)
• Perineum discomfort
• Lower urethra area feels tender like a bruise
• Definite discharge during Bowel Movement
• No testicle pain
• Coccyx pain has dissipated, but is still noticeable
• No nausea
• Fatigue is now a non-issue
• Erections are weak & slightly painful
• Lowered libido
Points of Interest:
1) According to the doctor in Changmai on June 20th, I was positive for Chlamydia on June(swab, slide, microscope, liquid added) (I am not sure if the doctor actually visually saw Chlamydia or saw WBC’s)
2) On June 21st a swab test at another location found a WBC of 1. They said I was negative for Chlamydia based on that test.
3) Tested Negative PCR for Chlamydia on June 29th.
4) IgG test showed NO antibodies for Chlamydia trachomatis
5) The initial positive test result for Chlamydia appears to be a false positive?
6) Took Tinadazole for possible Trichonomas
• Flu like symptoms (nausea, headache, slight sore throat, fatigue) onset shortly after finishing medication.
August 5 (off meds)
• Urethra burning minimal.
• No bladder pain
• Right testicle pain more prominent
• Coccyx pain more prominent & sometimes throbbing, decreases after bowel movements
• Nausea
• Slight Fatigue
August 16 (off of meds)
• Urethra burning almost gone
• Slight bladder pain
• No testicle pain
• Coccyx pain has dissipated, but is still noticeable
• No nausea
• Fatigue is now a non-issue
August 22
• Tinidazole 2 gr. X 3 days
September 15 (off of meds)
• Sonar of Bladder, testicles, vas deferens, epididymis – all normal
• Sonar of prostate – size normal – calcifications noted
• Semen analysis – essentially normal
- volume 1.8
- motility of 60%
- Ph of 8.1
September 15 (off of meds)
• Perineum discomfort
• Lower urethra area feels tender like a bruise
• Definite discharge during Bowel Movement
• No testicle pain
• Coccyx pain has dissipated, but is still noticeable
• No nausea
• Fatigue is now a non-issue
• Erections are weak & slightly painful
• Lowered libido
Points of Interest:
1) According to the doctor in Changmai on June 20th, I was positive for Chlamydia on June(swab, slide, microscope, liquid added) (I am not sure if the doctor actually visually saw Chlamydia or saw WBC’s)
2) On June 21st a swab test at another location found a WBC of 1. They said I was negative for Chlamydia based on that test.
3) Tested Negative PCR for Chlamydia on June 29th.
4) IgG test showed NO antibodies for Chlamydia trachomatis
5) The initial positive test result for Chlamydia appears to be a false positive?
6) Took Tinadazole for possible Trichonomas
• Urinalysis showed normal after 72 hrs culture
July 8th
• Right testicle pain essentially gone
• Hip pain more prominent
• Slight burn upon urination
• Abnormal urine stream/flow
July 9th
• Hip pain more prominent both frontal and rear
• Lower back pain, seems to pulsate, scale of 1-10 rate at 6
• No burning during urination
• No discharge noticed
• Slight burn during ejaculation
• Neck pain has decreased
• Abnormal urine flow/stream
• 200mg Celebrex taken 10:00 PM Pain diminished significantly.
July 10th
• Appointment at Bumungrad Int. Hospital at the Infectious Disease dept.
• HIV antibody test taken, Negative result. (7 week post exposure)
• Physician ordered Cravit 500mg x 1 daily 7 days, with the instructions that if the symptoms begin to subside, to continue the medication for another 3 weeks
• Physician suspected Rieghter’s syndrome/Reactive Arthritis
• Hip and back pain diminished
• Began medication at approx 9:00 PM
June 11th
• Slight right testicular pain
• Lower back spasmodic type pain during ejaculation
• Slight burning with ejaculation
• No remarkable burning during urination
• Very slight hip pain
July 15 Right Testicle pain
July 16 Sight testicle pain and slight burning in urethra
July 17
Received 250 mg IV of Rocefin
Felt 100% perfect for about 12 hours, then testicle and coccyx pain started to return
July 18
Placed on 2 gram Rocefin x 14 days Doctor suspects prostitis
Felt improvement very little pain, still had slight burning in urethra while under medication.
July 28th
Urinalysis done on Urine with a prostate massage Negative
48hr Urine Cultures Negative
August 4 (off meds)
I have been off of meds now for 4 days
• Urethra burning still present during voiding
• Slight bladder pain/discomfort
• Testicle pain questionable
• Coccyx pain very slight
July 8th
• Right testicle pain essentially gone
• Hip pain more prominent
• Slight burn upon urination
• Abnormal urine stream/flow
July 9th
• Hip pain more prominent both frontal and rear
• Lower back pain, seems to pulsate, scale of 1-10 rate at 6
• No burning during urination
• No discharge noticed
• Slight burn during ejaculation
• Neck pain has decreased
• Abnormal urine flow/stream
• 200mg Celebrex taken 10:00 PM Pain diminished significantly.
July 10th
• Appointment at Bumungrad Int. Hospital at the Infectious Disease dept.
• HIV antibody test taken, Negative result. (7 week post exposure)
• Physician ordered Cravit 500mg x 1 daily 7 days, with the instructions that if the symptoms begin to subside, to continue the medication for another 3 weeks
• Physician suspected Rieghter’s syndrome/Reactive Arthritis
• Hip and back pain diminished
• Began medication at approx 9:00 PM
June 11th
• Slight right testicular pain
• Lower back spasmodic type pain during ejaculation
• Slight burning with ejaculation
• No remarkable burning during urination
• Very slight hip pain
July 15 Right Testicle pain
July 16 Sight testicle pain and slight burning in urethra
July 17
Received 250 mg IV of Rocefin
Felt 100% perfect for about 12 hours, then testicle and coccyx pain started to return
July 18
Placed on 2 gram Rocefin x 14 days Doctor suspects prostitis
Felt improvement very little pain, still had slight burning in urethra while under medication.
July 28th
Urinalysis done on Urine with a prostate massage Negative
48hr Urine Cultures Negative
August 4 (off meds)
I have been off of meds now for 4 days
• Urethra burning still present during voiding
• Slight bladder pain/discomfort
• Testicle pain questionable
• Coccyx pain very slight
STD Journal
May 18th 9:00 PM Exposure: Receptive Unprotected Oral & Protected Vaginal with a CSW (Commercial Sex Worker)
Female complained of painful intercourse and had heavy bleeding. (Supposedly unexpected bleeding) She also had a fairly recent “Bikini Scar” and stated that she had undergone a surgery & that she would have had laparoscopic surgery, but could not afford it. She also seemed to have been suffering from an upper respiratory illness. She stated that she was currently on medications that made her feel nauseated. I never engaged in kissing, or administered Oral sex on her.
May 19th 7:00 AM Felt a slight tingle sensation in urethra & slight sore throat
• took 1.5 gram Zithromax
May ? 4 days doxycycline did not take 7 day dose due to adverse reaction (pain hands feet, eye pressure etc.
June 15th 28 day post exposure HIV antibody test Taken (Negative)
28 say post exposure PCR HIV test taken (Negative)
June 16th 8:00 AM 1.250g Zithromax
June 20th tested positive for Chlamydia at a small clinic, test was a swab test, with some type of fluids added to the slide & analyzed under a microscope.
Placed on Eurothromycin 4 X daily for 7 to 21 days
Diagnosed with epididymitis within right testicle
Symptom Right testicle pain
June 21 Second opinion at Changmai International
o Tested negative for Syphilis 1 & 2 (Blood test)
o Tested negative for UTI/NGU based on a White Blood Cell count of 1 (Swab)
o Diagnosed with epididymitis in right testicle
June 25 Pain in bladder, ex-ray taken of pelvis, a white area was noted on left area of bladder, considered un-remarkable by the physician. Given 2 more weeks supply of erythromycin, instructed to take them if needed.
June 29 after taking Erythromycin for 9 days as directed was tested at Bumungrad International Hospital:
1) Test indicated “Normal Flora” source C/S (cotton swab) urethra (very painful)
2) Test at 48 hrs Negative source 20 ml urine
3) PCR DNA Negative for Chlamydia source 20 ml urine
Firs Flow urine sample was approx 6+ hrs since last voiding
July 5th stopped meds based on meds becoming intolerable and based on the negative test result on May 29
July 6th Right testicle pain appeared on a level of 1-10, pain was around a 7
July 7th
• Slight burn upon urination
• Hip noticeable hip pain (pain in joint) (bilateral)
• Abnormal urine stream/flow
July? IGG study done
• Positive for Chlamydia pneumonia
• Positive for mycoplasma pneumonia
May 18th 9:00 PM Exposure: Receptive Unprotected Oral & Protected Vaginal with a CSW (Commercial Sex Worker)
Female complained of painful intercourse and had heavy bleeding. (Supposedly unexpected bleeding) She also had a fairly recent “Bikini Scar” and stated that she had undergone a surgery & that she would have had laparoscopic surgery, but could not afford it. She also seemed to have been suffering from an upper respiratory illness. She stated that she was currently on medications that made her feel nauseated. I never engaged in kissing, or administered Oral sex on her.
May 19th 7:00 AM Felt a slight tingle sensation in urethra & slight sore throat
• took 1.5 gram Zithromax
May ? 4 days doxycycline did not take 7 day dose due to adverse reaction (pain hands feet, eye pressure etc.
June 15th 28 day post exposure HIV antibody test Taken (Negative)
28 say post exposure PCR HIV test taken (Negative)
June 16th 8:00 AM 1.250g Zithromax
June 20th tested positive for Chlamydia at a small clinic, test was a swab test, with some type of fluids added to the slide & analyzed under a microscope.
Placed on Eurothromycin 4 X daily for 7 to 21 days
Diagnosed with epididymitis within right testicle
Symptom Right testicle pain
June 21 Second opinion at Changmai International
o Tested negative for Syphilis 1 & 2 (Blood test)
o Tested negative for UTI/NGU based on a White Blood Cell count of 1 (Swab)
o Diagnosed with epididymitis in right testicle
June 25 Pain in bladder, ex-ray taken of pelvis, a white area was noted on left area of bladder, considered un-remarkable by the physician. Given 2 more weeks supply of erythromycin, instructed to take them if needed.
June 29 after taking Erythromycin for 9 days as directed was tested at Bumungrad International Hospital:
1) Test indicated “Normal Flora” source C/S (cotton swab) urethra (very painful)
2) Test at 48 hrs Negative source 20 ml urine
3) PCR DNA Negative for Chlamydia source 20 ml urine
Firs Flow urine sample was approx 6+ hrs since last voiding
July 5th stopped meds based on meds becoming intolerable and based on the negative test result on May 29
July 6th Right testicle pain appeared on a level of 1-10, pain was around a 7
July 7th
• Slight burn upon urination
• Hip noticeable hip pain (pain in joint) (bilateral)
• Abnormal urine stream/flow
July? IGG study done
• Positive for Chlamydia pneumonia
• Positive for mycoplasma pneumonia
Yeah, I would like to read your original posts as well. Been having constant discomfort 3 months already, without any clear diagnosis from anyone...
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