I HAVE AN STD THAT ISN'T PROPERLY DOCUMENTED ANYWHERE

[pete209]

Hello, I have had a very rare chronic STD for 10 years and as yet haven't had a diagnosis.

I contracted the condition after unprotected sex with a girl that I knew quite well.

Within 48hrs of intercourse I came down with what felt like flu, very severe symptoms, extreme nausea, swollen glands in the neck and very discoloured glans of the penis (pale and shrivelled).

The glands in my neck went down after a couple of weeks but the genital symptoms persisted and have never gone away.

I also have a number of symptoms that I have to deal with everyday as a direct result of this infection. The list is a follows

Chronic redness and burning of the penis with sticky glans and strong smell.
Burning during or after urination and an inflamed urethra where trapped urine leaks out after urination.
Rectal moisture & secretions and burning with an unpleasant sweaty smell.
Profuse sweating from the groin perineum and buttocks.
Unusual chills and shivers all over the body with unusual pins and needles sensations in random places all over the body.
Occasional feelings of nausea, headaches behind the eyes and unexplained sweating of the body.

This condition may sound extreme or an exaggeration but unfortunately it isn't. I also know that the girl had this condition too as it appears it was common knowledge amongst her friends. She also have a problem with profuse vaginal bleeding which no doubt was a result of this infection too.

My question is what do i do? I really want some answers and help.
Im 31 now, everyone around me is getting married, I've lost my mojo completely, and have to self diagnose as it seems Drs simply don't know what this condition is yet.

I have seen many very senior specialists and the only person who recognized this problem was a dermatologist, in fact he expected me to have this condition before i showed him my problem.

I've been told my story sounds similar to herpes except after the initial illness it's different. I really want to isolate the pathogen and if nothing else help and support people in my position. I keep praying that one day anti virals will solve this problem.

  

[gracefromHHP]

first off you need to stop thinking you have some sort of "new" std!!!  Really, what is the benefit to assuming that ?  

[pete209]

Hi Grace, thanks for the response.

I can appreciated that this doesn't sound like anything that is currently documented. My problem is that I am absolutely certain of how I contracted it.

The person I caught this infection from was known to have long term sexual health problems, although little was known about the details.

Assuming that you knew it was an std and nobody knew what it was, what would you do in my situation?

Thanks again

[gracefromHHP]

herpes igg blood testing is useful for the most part.  gum clinics do not offer it, you need to seek out testing privately in the UK.  your symptoms do not sound like they are due to herpes.  

nothing you've mentioned sounds like some sort of exotic std that hasn't been named yet or anything.  honestly this doesn't sound like it's std related at all.  

continue to follow up with the dermatologist as well as apply the topicals you've been given.

grace

[pete209]

Hi, thanks for the response.

I should have mentioned that I have been tested for absolutely everything other than the hsv antibody tests which apparently aren't that helpful anyway.

It seems strange that nobody knows this problem, I know from my own experience and research pretty much what it is I'd just like to put a name to it. I'd like to know what family of viruses it is in.

I assume that it isn't prevalent because you always have symptoms and so people are less likely to pass it on.

I wonder what the odds of me catching this illness were? 50000/1?

It could be that it's more common than I think. My dermatologist said there is nothing that can be done other than apply cream. He did also say that it was quite common, which I find quite hard to believe.

[JessyJames2010]

You were at zero risk from your ecounter with the stripper 5 months ago.

See a doctor for all these symptoms as they appear to not be related to STDs.
I know this is an STD forum, but If I were in your shoes I'd get a CBC, electrolyte check, and check blood glucose.   Talk to a physican about all this, they can help you more than anyone here.  Also they can refere you to a urologist for your pelvic pain.  

[Badmistake211]

I feel like im going through the same issue, except i had protected sex with a stripper 5 months ago, i've always had redness in my testicles and a red ring around the head of my penis. Ive tested for many STD's and HIV many times all negative. i just recently tested for Herpes which i am waiting on results even though i have never had any types of outbreaks. I know i was tested for one of the Hepatitis but not so sure which one but it had came back negative. All of my friends think im crazy and dont believe me because doctors are coming out saying everything is fine. But its not i'm having pain and burning feeling in my shaft and testicles, nausea at times in the morning, my lower back is aching me right now, Swelling in my gums, swollen glands in the neck, headaches, and blurred vision. I just want this to go away. How is my blood work coming back just fine with all this happening to me? I do hope they find the problem for you and I will pray that we all become healed some day. God bless