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4616538 tn?1357543078

Living with Mycoplasma Genitalium??


I'm a straight 34 year old guy, after ending a relationship with cheating GF,  got diagnosed with Mycoplasma Genitalium all this being around 2 1/2 - 3 yrs ago.., went to the Dr., after a series of consecutive STD tests that all showed negative results.. Based on my recurring symptoms (clear discharge, burning, testicle inflammation and swelling) the 4th Urologist that I saw finally recommended me to take the test which revealed the mystery behind it all...

As you probably all know, MG is a fastidious pathogen that lacks a cell wall, making it impossible to diagnose and to treat, most urologists treat it as a NGU, they recommend introductory AB's (like 1 week of doxy and cipro) that are meaningless to cure from Mycoplasma G. infection. My problem is that all of this happened while being called exaggerated on my symptoms by Drs., meanwhile time was passing by, and the infection progressed further down my prostate, even I recall one Dr. telling me it was psychological!!.

When I got the results, I ended having as treatment a course of Azithromycin 1gm dose, then 500mg for 7 days, waited couple of weeks to see results, but symptoms persisted, in fact they came back more severe and to my luck, new symptoms appeared: back pain, swollen joints, cold sores on tongue and skin redness (which I never had before), This was a immune reaction and according to the Infectious Disease specialist teamed with my Urologist back then, they assured me that with a course of 14 days of Moxifloxacin and Flomax (prostate pill) I was going to be ok//, nothing got better, at that time I was a nerve wreck, lost my job, with a bunch of other good things in my life..  

Basically, what I'm trying to find out is if there's really a cure for strong strains of MG, that are shown to be resistant to even Moxifloxacin, if so, what is the protocol>??, or is it recommended to take a new / longer course of Moxi (been several months since my last intake) I'm I find hard to believe that urologists don't answer simple questions like this nowadays---  

Its really frustrating to me that this disease is now labeled "treatable" not "curable" according to the recent 2 urologist specialists I have seen, This cannot be??, I've been robbed of my privileges of enjoying unprotected sex with my partner and eventually kids, because of this??

I want to know if there are other people on the same boat as I am?
To please come forward and share your experiences-
and also want to know, If you have found any alternatives to the treatment that worked?
62 Responses
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Avatar universal
i like to ask questions to dr.HHH or Hooks so pls let me know how should i do that..thanks
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Avatar universal
I'd like to hear about the natural treatments!
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Avatar universal
Hender was these tests for myco done with urine or swab? Thanks
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Avatar universal
I think I'm in the same situation as the Op, I've went thru several different courses of antibiotics cipro, doxy, flagyl, cefuratrax something and even moxy. And still have this clear discharge along with slight pain in and around scrotal area. Thank god hsv and hiv was negative too. My doc will be sending me to a infectious disease doc. God help us please!
Helpful - 0
Avatar universal
Hi,

You mentioned you treated your M. Genitalium with azithromycin several times , but each time symptoms returned.  Then I assume symptoms diminished initially after taking azithromycin before eventually returning.  

So I'm not sure how symptoms could diminish at all if what remains should be azithromycin-resistant strain of M. Genitalium.  How long after taking azithromycin did symptoms return?  Perhaps it could be azithromycin may have analgesic properties that can alleviate symptoms for a short while.  But if symptoms don't return until a few weeks later, the possible analgesic property of azithromycin doesn't come into play.

So it seems azithromycin still has some activity on your M. Genitalium infection.  A long course of azithromycin could be effective.
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Avatar universal
Hi,

How soon after contact did you experience symptoms of infection?

How did you get tested for M. Genitalium?  I heard most labs aren't equipped to test for this.

Thanks.
Helpful - 0
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