Child with Graves disease, long term effects

[Beewoman]

My 7 year old son has just been diagnosed with hyperthroidism, Graves disease.  As it is so rare in children, it was misdiagnosed for some time and his levels were TS3 of 1,000!  This has come down to 343, after treatment of PTU (300mg/day) and Atenonol (50mg/day).  His symptomes were severe but he is slowly getting better.  What are the long term effects of this disease on a young child?

[kjprincess24]

My daughter is 4 when she was diagnosed with Graves Disease. Her doctor thought she may be ADHD but turns out she had Graves and the only way we found out she had Graves Disease was during her surgery to get tubes in her ears her blood pressure went up to 166/122. We had to figure out the cause of that. It has been only 2 weeks since she was diagnosed so I am learning about all of this stuff. They told me it wasn't very common in children so it kinda freaked me out but finding all of you guys has helped very much! She is taking 5mg of Tapazole and 5mg of propranolol, which I have to check her pulse rate everyday to make sure it doesn't get to low.

[annb352]

MY DTR (10Y/O) RECENTLY DX W/ GRAVES DZ. SHE HAS THE HIGH HEART RATE, BULGIN EYES, SMALL GOITER. ENDOS FIRST CHOICE OF TX IS RAI (RADIOACTIVE IODONE ABLATION) WHICH BASICALLY KILLS THE THYROID AND UR ON LIFE LONG MEDS. BUT I AM AWARE OF ATD (ANTITHYROID TX) WITH THE POSSIBILITY OF REMMISSION. I AM SO TORN. IS THERE ANYONE THAT WENT W/ RAI TX. WOULD LIKE TO KNOW WHY YOU CHOSE THAT VS ATD.

[Phyfer]

My daughter (12) has been diagnosed with Graves, just today. I have been trying to get all information on the disease, as you will know I am very scared of what it could mean for her. Maby I am just peranoid but still I am a father. Is there anyone that can help me, it would be apreciated. Contact me on the following: ***@****

[missourimule]

I am a 53yr old woman and was diagnoised with Graves disease when I was 15.  I would like to talk to you more about how this disease has affected you as you have begun aging.  Please let me know what would work for you to answer some of my questions about your treatment and how you went about it.  

Thanks

[buster101]

My daughter who is now 7 was diagnosed with Graves, in 2006 at 2 1/2. The thyroid has been suppressed for the past 3 years, and she has lived a normal happy life taking 15mg of Carbimazole daily. One of the early complications was that she also had undiagnosed coeliacs disease, which was negating the effects of the carbimazole. She has now been gluten free for just under 4 years. Eventually she will have a thyroidectomy, but only when we feel she is mature enough to cope with the operation, and obviously the older a child is, the less complicated the operation. This is just to reassure people that children can lead a normal life once the thyroid is under control. Good luck

[lovingmom07]

Well, where do I start? My son just got diagnosed with Graves disease last week. Now we are in the process of deciding on treatment. I'm leaning more towards the ablation? BTW my son is 3 1/2. I started becoming worried about him about a year ago. I had him tested through our school district for developmental preschool due to the lack of speech. He was excepted for the speech services and PT services due to his low muscle tone. He started the new school year in August. Which he loves. My son gets along with other kids and likes to interract but I can tell the other 3 1/2 yr olds are miles ahead of him. He runs funny, doesn't walk funny but does on his tippy toes when he has no shoes on. He walked when he was a year, sat up when he was suppose to, did all the milestones when he was a baby and then it just halted. I took him in for his 3 year well check and expressed my concerns with him having loose stool for 6 months (ugh) and him not being potty trained and also his developmental delays. I was crying of course during this explanation! She began to check him over and noticed the heart murmur. So off we went to the pediatric cardiologist who came back and said he had mild dialation of the pulmonary valve & aortic valve and mild to moderate mitral valve regurgitation which was causing the left side to be slightly enlarged. Went back to the pediatrician which in the mean time had run some tests on his stool, blood, muscle and everything came back fine except the thyroid. Went to the endo and he thinks he has Graves. He has the buldging eyes, rapid pulse, high blood pressure, feels warm to the touch, has sweaty feet, goiter, what else the list can go on. We now have him on a beta blocker until we start treatment. The endo said that all the symtoms including the diarreah and even the heart would get better when treatment starts. Oh I forgot to mention the cardiologist thought he might have a connective tissue disorder because of the symtoms with the heart and his loose joints. I'm going insane with questions in my brain. I don't know if there is anyone else out there that has had my experience but I'm not totally convinced that all he has is Graves? Developmental issues,loose joints,and muscle weakness really bother me. Next on my list is seeing the opthamologist. My pediatrician wanted me to go see them because people with connective tissue disorders usually have eye problems. Any input is appreciated. I guess I just need to be patient and see results myself to truely convince myself! Lots of luck and hugs to all of you!