There is light at the end of the tunnel. The question is, how long is the tunnel and how many 90 degree turns are in it.
If you really don't trust your doctor, try another one. It took me a few to find one I trust. If he doesn't know, he says so. Then he tries to find out. There is some comfort in his being so honest.
He's also very good at guessing. ;>)
Have you had your adrenal glands checked out? Your GP can run tests to determine if your adrenal glands are healthy or acting up. That would save a little time when you go to see a specialist.
Good luck. Be patient, but at the same time, insist that tests be run till something shows up.
I understand how you feel. Everyone posting here does. Treatment takes forever. Tests never end. Appointments are always three months out. Waiting seems like a way of life. In the meantime we feel like **** and the doctors say that will change in a year or so.
It will get better. You may have to politely kick a butt or two, but it will get better.
does this every get better? i just went on meds for a slight case of hypothyroidism in June. At the beginning of August my heart began to pound. Resting heart rate is about 100, walking 20 ft thru my apartment it raises to 130 and just one flight of stairs shoots it up to 160. In the last 2 weeks my doc has had me try 3 different pharmaceutical grade supplements/natural meds and I am no different...I am beginning to not trust him. Can anyone tell me if there's a light at the end of the tunnel!?!?!
In early hypothyroidism, dying thyroid cells release bursts of thyroid hormone causing transient hyperthyroid symptoms. This eventually resolves and symptoms become primarily hypothyroid.
In the condition of Hashitoxicosis, you're primarily hypothryoid but have the antibodies that cause hyperthyroidism and cause temporary hyper symptoms.
Also, many hypo and hyper symptoms are the same. For instance, in both hypo and hyper T you can have palpitations, inability to regulate body temp, sleep disturbances, muscle weakness and food cravings. Your lab results will give you a better idea of what's going on.
As thyroid cells die, stored supplies of thyroid hormone are suddenly released into the blood circulation. These sudden bursts of thyroid hormone are responsible for the symptoms of hyperthyroidism. Often patients think that they need to have their medications adjusted and they suspect that their thyroid medication is too high. On other days, when they're dragging, depressed and experiencing weight gain, they suspect that their thyroid hormone replacement dose is too low.
Sudden bursts of thyroid hormone affect laboratory results. If a patient experiences many recurring bursts of thyroid hormone, blood thyroid hormone levels will be elevated. If this happens over a period of weeks, TSH levels will drop. Depending on when laboratory tests are run, it can appear as if they're now hyperthyroid. If the medication is cut, they may soon be complaining of symptoms of hypothyroidism
A definitive diagnosis can be made by biopsy, that is, fine needle aspiration. A lymphocytic (white blood cell) infiltration of the thyroid will be seen, and there will be certain cellular changes, particularly the presence of Hurthle cells.
People with equal amounts of both antibodies will have normal thyroid function.
People who are primarily hypothyroid, these antibodies will be predominate.
Thyroid hormone levels continue to fall and TSH continues to rise in this condition until thyroid replacement hormone is taken.
People both antibodies contribute to thyroid eye disease, these people have a high risk for clinically significant eye disease.
Hashitoxicosis, or overproduction of thyroid hormone may occur in the course of Hashimoto's disease, but is usually transient. Symptoms are the same as thyrotoxicosis, may include:
Intolerance to heat
Agitation, irritability, nervousness
Restlessness, sleeplessness
Exhaustion
Anxiety, depression, sadness
Excessive perspiration
Palpitations (rapid heart beats)
Diarrhea or loose stools
Weight loss despite an increased appetite and food intake
Weakness and fatigue
Loss of muscle mass and strength
Irregular or absent menstrual periods
Impotence or gynecomastia (breast enlargement) in the male
Infertility
Warm hands that tend to shake when outstretched
Shortness of breath
Smooth, velvety skin
Easy bruising
Clubbing of the fingers and toes (achropachy)
Swollen shins
Sore, watery and bulging eyes
Failure of the lids of the eyes to follow the eye downwards when looking down
Rapid nail growth, soft nails
Separation of the nails from the underlying tissue (onycholysis)
Finer hair that is less curly and tends to fall out
medlineplus/gov
Pheos are extremely rare. Extremely.
If you tried some meditation or biofeedback it might help with some of your symptoms. It certainly can't hurt any.
Exercise is good too.
I just googles pheochyromocytoma geeezz what a long word! and it said pain under rib cage and the funny thing with that is that I started getting really bad pain there when the hight heart rate started and it was wierd becuase I kept saying im having pain where my gallbladder was but I have no gallbladder .....who knows my luck I have all 3 things wrong with me....lol oh well I have a doc apt tomorrow and will try to get some tests run to find out whats going on or atleast rule out these possibilites....thank you for answering it has given me things to ask for tomorrow that im sure she never would mention to me...I usually get Morgan its just anxiety!!! I hate that answer!
Yes IST is what I think I have POTS is a cousin illness to IST....I was hoping it was caused from my thyroid but I really dont think its the case but I have heard that people can have normal thyroid tests and have hashimotos but have symptoms of hyper like the high heart rate. what is pheochromocytoma????