Seeking help.

[ameliabunting]

I was diagnosed with Hashimotos Disease at 9 years old..  Skip to now.  I am 23.  Last year I had two nodules which grew quickly over 3 ultrasounds.  They wanted to biopsy me but when I went in for the biopsy they could not find a thing.  Now I am having problems breathing, I have SEVERE pain in my leg which I was taking Lortabs for but I got off them myself because there are so many other things wrong with me and being 23 and on the amount of Lortabs I was taking seemed like a distraction to the doctors I saw.  The leg pain I feel is what doctors tell me is "Sciatic nerve pain but you are too young for it."  Helpful.  I also have anxiety and panic attacks so they like to give the easy answer and tell me that my anxiety is causing everything.  Last time I went to the ER because I was in so much pain (legs).  I told them I did NOT want pain medicine, i wanted them to just make sure it wasn't a blood clot or something because I was in tears over how bad it hurt (it was also on my birthday so I def. did not feel like being in the ER.)  I had the worst doctor ever.  He told me I should have never been on pain medicine (even though I told him I didn't want any and quit myself because I was sick of hearing doctors opinions.)  He actually put his hand in my face when I tried to tell him I had Hashimotos, said that pins and needles that I told him that came and went did not exhist.  Called me a liar!  I was in a panic attack at the time so I guess he just thought I was crazy.  The hand in my face really helped the panic attack.  This @$#(#%* gave me a Ativan, came back in 30 minutes and asked me if my legs felt better.  I told him no but my panic attack was gone and left.  I will never go to the ER again no matter what.  I went to my ENT who ordered the ultrasounds for my nodule last year and he looked down my throat and said it was swollen and red and told me I had heartburn (Which I do) but saw nothing pushing on my windpipe.  He ordered another ultrasound which I had today and the nodules are back.  The Ultrasound tech is not allowed to tell you this of course but 1. I recognize the nodules, and even if I didn't know what I was looking at she asked me if I had the biopsy yet.. I said "Why are the nodules back?"  and she said "I am not allowed to tell you."  My throat has been sore and it hurts where the nodules are.   My legs constantly hurt.  I have ulcers in my stomach.  I get pins and needles but I think it is just poor circulation or something.  Underneath my ribcage I get spasms which feel like cramping (left side).  Another inch below that is burning which I assume is the ulcers.  I have had bowel issues for years which are getting progressively worse.  I won't get into details.  I currently take no medication except for .112 mcg of Synthoroid and I take probiotics and multi vitimens.  My GP who does the thyroid testing levels for me has wanted me to get my levels tested and told me the paperwork was waiting at the lab.  I have went to the lab 3 times and each time the paperwork was not faxed, so I called her, and  she said she would fax it over, I go back and it's not there.  No one knows what is going on and quite frankly none of my doctors give a toot except for my ENT, he has always been a good doctor.  I have lost complete faith in doctors.  I don't even tell my ENT anything when he asked do I have any other symptoms because I am afraid he will blame it on anxiety as well.  I even asked my GP for antidepressents if she thought my anxiety caused everything and she would not give them to me.  She said I need to see a psychiatrist.  But the psychiatrist is booked up for 6 months and guess what, she never made my appointment.  Everytime i speak to her she interrupts me and repeatedly says "Yeah yeah sure sure sure."  i can't even concentrate.  I won't waste my time ever going to her again.  If anyone has any advice or opinion I am open to it.  Thanks

[Barb135]

The first thing you need to do is go to your doctor and "hand carry" the lab order to the lab, rather than depending on the doctor to fax them, so you can get your blood work done.

I doubt that ALL your symptoms are thyroid related, but if your thyroid levels are not adjusted properly, that can certainly worsen them.

With Hashimoto's the antibodies attack and destroy your thyroid, so it eventually stops producing hormones that are vital.

Be careful when looking for an endo.  Not all endos are experts in thyroid care, since many of them specialize in diabetes.

[neurotic]

You are very young to be suffering like this...the pains and symptons are not in your head....May I ask, are you seeing an endocrinologist...if not you see one..they specialize in the thyroid.. and how did you a get a diagnose of Hashimoto...are you aware that Hashimoto   disease, also known as chronic lymphocytic thyroiditis, your immune system attacks your thyroid gland. The resulting inflammation often leads to an underactive thyroid gland (hypothyroidism).

go to this web site it will give you more details..
http://www.mayoclinic.com/health/hashimotos-disease/DS00567/DSECTION=symptoms...

I wish you luck and hope you get the answers and relief that you need..

[ameliabunting]

I am almost always nauseous to the point I dry heave once a day.  My lymph nodes were swollen (one in groin and one in neck.)  But this was a while ago and I haven't been back to those doctors since.  I also get random pains that come and go everywhere.  My memory ***** hence the two additional comments I have added to this.  Do you guys think I'm crazy yet?  I feel like I am going to suffer alone with the outside world thinking I'm crazy for the rest of my life.  I hope I do go crazy and then maybe the suffering will numb itself.

[ameliabunting]

I am always either hot or cold, rarely ever comfortable.  I sometimes sweat at night and I have headaches or migraines at LEAST twice a week.  I take nothing for them because I started getting sick from Excederin Migraine (only thing that would touch the headaches).  (Diarrhea and stomach burning pain.)  My spleen has been enlarged everytime someone has checked.  Once again I welcome any suggestions or opinions.