input on rai treatment

[es72]

i had my surgery on the 2nd and had a total done and  friday i will see the endo guy for the 1st time.he will i am sure go over the process of the treatments and what i need to do to prepare.i only know about it from reading on it and it doenst tell me much other than it will be "ok". anything input on this from a "real " person would be great. and i guess i will then start my meds, which i am on nothing now.

thanks

[Venora Moonwind]

I get my levels checked every 6 weeks.The RAI isolation isnt so bad and its only for a few days.You will do fine.
Love Venora

[es72]

it was cancer so they removed the whole thyroid. i dont know what dx is though. i dont know my levels but i am assuming that what the endocronologist will be telling me on friday and that i also wont start any medication until after the rai.  they did tell me that me calcium levels are good so no meds for that.
i will find it diffucult to stay away from my kids though.. begining of school and you need to be there. i dont have any pain but i do feel tired though, but i always felt that way. can you share some side effects from the rai?
i assume then i will "live" at the dr's office then with the constant checking on my levels huh? should i then assume that i wont be going back to work for awhile?
thanks
Eileen

[GHA]

I'm right there with you.  I had surgery to remove my left lobe in June due to a large "hot" nodule which I was assured would not be malignant.  Well it wasn't; however, the thyroid tissue was.  So back to surgery in July to remove the right lobe.  RAI is scheduled for October 1.  I wouldn't do it before then because my 2 daughters have birthdays in August and September and my endo told me I wouldn't be up to hosting a party once I went off the meds.

So, September 16 I stop my Cytomel and start a low iodine diet.  October 3 I get the RAI.  I have to stay away from my family for at least three days.  On October 6 I will start Cytomel and Synthroid.   I've read and been told that I will have joint and muscle aches and be exhausted from the day I stop the Cytomel until I get back on a therapeutic dose of meds.

Let me know if you have any questions.

Gerry

[redhed87]

YOu will be okay, but not being on meds leading up to RAI is the tough part- at least for me.  My tsh climbed very high.  I am still working on lowering it with medication.  If you don't know what to bring, eat etc preparing for RAI, just post and this forum will help you so much.  It helped me.  Was is cancer?

[Venora Moonwind]

Welcome to the forum.did you get a cancer dx? the Raiisnt so bad but the prep leading up to it is a killer.Tell us your story .I had substernal goiter removed that had cancer in it.I am ok now.
Love Venora