To LM:
"Erks", now THERE's a delicate choice of words ! Spoken like a true gentleman, I should have known! :- )
To all:
Yes, we'd all maybe be making the trek to Minnesota, despite all that record snow! Has anyone had first-hand experience w/ Dr. Riddha Arem's thyroid clinic in Houston? My sister, who lives in Houston, has Hashi's but has a different doctor she likes. She had a horrible time both mentally and physically before she was diagnosed, and didn't even approach getting better until she went wheat/gluten free for a year.. But her hypo friend there, who was not getting better, changed to Dr. Arem and then did. She loves him, and his protocol is based on T3/T4. I'm starting to think I should make a pilgrimage. His book has helped me a lot. (bonus: no snow)
It IS astonishing that in the Great State of Mayo, doctors aren't more progressive. Here we have USC and UCLA and Cedars-Sinai and St. John's, and a little further south, Loma Linda....and yet, ziilch. My PCP has now suggested Dr. Peter Singer at USC, but when I researched him online I found he had recently given an interview to the LA Times in which he said he thought the hyperthyroid state felt akin to what it feels like when one falls in love ! RILLY? He's also a past president of the National Thyroid Association, which instead of engendering respect gives me the willies. Sad, that.
What do you think is at stake for the doctors? What could possibly possess a doctor to ignore symptoms ? They diagnosed successfully by observing symptoms as far back as 1886, I believe. More of the old and famous American mind/ body split?
I have also read of clinics or practices formed by groups of doctors and patients as well. I think it's almost like a subscription service...the doctors form a group and the patients agree to pay "X" per year to fund it. No insurance is accepted. As LM said, no hospitalization though, and so then what , in case of God Forbid?
["There is a small group here that started there own health insurance with several small clinics"]
When I mentioned 'here' in my quote above, I meant Minnesota, not this forum. I read about this 'self insured group' in our main news paper. Its based in our capitol, St Paul. I have no experience as a patient there, but I just thought its a great idea and hope that it spreads to other areas.
Its truly amassing to me that this state, with the Mayo clinic here on the south side, has no better health care than other states. The majority of doctors around here treat Hashimoto with only T4 meds per TSH values. Thats why I was still sick 10 years after diagnosis. Thyroid really is not that hard to understand, but these docs are unwilling to change and will not listen even when presented with the facts. Erks me.
I don't think LazyMoose has his own clinic (if he does, I'm going to commute to northern MN for my thyroid treatment). I think he was talking about a group that started their own health insurance company with a few small clinics... It's an interesting concept.
Whoops, LM. You GO, bro ! :- D (that suing word got you in here though, didn't it.)
And to any other brothers who chime in, Doodes, way to BE ! As I said: Strength United Is Stronger.
Still agitating for a "WIKI library page" here. Research is getting buried in the stream. Anybody ? Thoughts? LM, how did you organize your clinic ?
Cheers.
Careful. We have males working on this too. :)
One of the best firecrackers on this revolution is responding too... right LM? :)
Red, that was just excellent, what a great post ! And great words from your doctor for all of us. You're an inspiring kinda gal.
To all:
Good ideas and thoughts, every one of you. I so agree that it's not about money, it's about patient advocacy, it's about how to facilitate and if necessary, force the system to change. This forum is a powerful first step...what in the world would we do if we didn't know what others are going through and what they've done about it? I absolutely believe that old adage: Strength United Is Stronger. The information I've gotten here on the forum has saved me so much time. Since I am a relative newbie here, I am wondering if there is a part of the site I don't know about where links are posted to websites or articles that participants find to be valuable, categorized by topic? Our own little WIKI library. For instance, Stella spent a HUGE amount of time for me and gave links to information that I'm sure will be beneficial to me. I hope others will see those links too, but they'll have to wade through my stuff and I doubt many will. This knowledge needs to be shared. I have reams of paper in my office of scientific articles I've printed out for study that I've found, and that have helped me. I no longer know the links, but I would have registered them had I known where to do it. It's a winding path to get into the European medical journals and reports from clinical trials, where a lot of the more interesting information lies. There are other links I've stored on my computer. Someone on the forum told me about Dr. Aram's book, which helped to pull all the random knowledge I'd gained into focus. Does everybody know about this book ? I get the feeling from some of the posts that they don't. Saying something is interesting to read is different than endorsing it.
I'm off to bed, praying for sleep ! Any thoughts? Any other good ideas for how best to advocate? Any links to established thyroid patient advocacy groups? Any plans for going to DC and appearing before Congress with reams of paper representing our stories? I this economic climate, our struggle is going to be that much tougher, so I guess we need to be that way too.
Blessings. You Go, Girls !