I still really want to see the FT3...try to get the range, too.
I still feel as I said above...I think your increases have been just too aggressive. You can be hypo as hell according to your bloodwork, but if the increases are too fast and furious, you feel hyper. The Hashi's, I'm sure, contributes its bit to the hyper symptoms, too. However, I'm voting for meds sensitivity.
I'd give myself a chance to stabilize at 50mcg...increasing is just going to make you more miserable.
Look forward to seeing your FT3.
OK I only got part of my labs back. They are as follows:
TSH 2.750 (previously 2.630 1 week ago today)
Free T4 0.85 (previously 0.82 1 week ago today)
I am still waiting for the Free T3 which can take up to a week. Based on these results I am obviously not overmedicated. So would you believe my symptoms to be medication sensitivity or a hyper swing from Hashi's? I don't know what to do about my medcation doseage. I am soooo confused!!!!
I think the problem is that thyroid research/treatment is in its infancy. We'll probably someday find that "normal" is a much wider range than we currently accept. In your or my lifetime...maybe not. In the meantime, it's better than the alternative...no treatment at all. I think, as mtkst13 said...we are more in tune to our bodies, and somtimes that's good, and sometimes it's not. Too much introspection (of which I fully admit I am at times guilty) is not so good. Sometimes we're just tired because we're tired, sometimes we're just down because we're down. It's not always more than that, but we tend to make it so. We can't blame the scapethyroid for everything!!! But it certainly does throw a wrench into the works at times, doesn't it?
hope,
hang in there. thank god you have the most treatable cancer, but that doesn't mean that you're not scared, anxious, questioning why me? and then on top of that, you have hypo yo-yo. you want normal back, and you'll get there. it'll take time but one day you'll say, "hey! i feel pretty good. i guess i'm back to normal...a different normal, but that's okay!" i had a really bad anxiety issue for a long time. i didn't think normally, and i wanted so badly to be normal again. it took time, but i'm finally okay. i know you'll be okay too.
goolarra,
my thyroid should be healed...for now. i feel that i've had flares since i was a teenager. i've always noticed a strange pattern of symptoms: lose weight, anxious, leg hairs growing really fast, mean eyes, can't fall asleep, pounding heart....followed by puffy, tired eyes, leg hairs suddenly stop growing, gain the weight that i lost, severe breathing problems, sleep walking/sleep hallucinations. eventually i return to normal, but eventually the cycle starts again. i've never had blood tests done during these phases. any time i went to the doctor with symptoms, i was told it was anxiety. so, as you said earlier, self-fulfilling prophecy....i have an anxiety disorder for which i take zoloft.
we shall see what the future brings. i guess i want the scenario above to be true because i was dismissed so many times by family and doctors. it would make me feel validated and sane!
"well maybe this is normal". When I read that in your comment, I thought..."wow, there are people who truly understand what I am going thru" and I know that is true from spending so much time out here with you all, but last Sunday, I had this very uncharacteristic mood swing that took me so low. I told my husband at one point that everyone says that thyca is so treatable and I should be fine, but part of me just wondered if it was the beginning of the end. I was really down and for just a short time, I thought "this is me for the rest of my life." It was a sad moment. Then it went away and I got back to a more normal me. Well, you know, hypo normal. : ) Up, down, tired, not so tired....But I swung back up nearly as quickly as I got that down. Honestly, I haven't done that before. Thank God. I don't want to feel like that ever again.
Very interesting...we don't hear a lot from people with temporary thyroiditis like silent or DeQuervain's (which is what I was convinced I had for a while, but no, it's Hashi's). If your thyroid is coming back to life, that might explain your hyper/hypo swings. I imagine it huffs and puffs for a while before it evens out and gets back to 100%.
I know what you mean about being more in tune, and it sometimes being good and sometimes not. If I sleep well, I'm afraid I'm getting hypo, if I don't, I think I'm overmedicated. Tired is never just tired...it has to mean something!
I really hope your thyroid is coming back...lots of luck with your decrease!