I have been poking around on this site for several years as I've been trying to get to the bottom of what is causing my debilitating symptoms. I have seen countless doctors, including virtually every specialty, and not one has come up with anything. I have gained so much weight over the last few years that when all the tests come back normal, they just tell me to lose weight. I am overweight, but not obese and feel that the weight is a symptom, not the cause since I had the symptoms when I wasn't overweight (although was still gaining weight),
The fatigue and never feeling rested is the most debilitating symptom. That said, here are my main symptoms of concern:
Fatigue (fatigue, fatigue)
Weight gain and can't lose -- like I could eat a cheeseburger and shake or a week's worth of chicken and salad and either way I gain weight
Exercise intolerance -- on the days I manage to do light exercise, I want to pass out when I'm done
Hair loss -- body and head -- dry, brittle, thin and balding
Dry skin -- I must put lotion on at least 10 times a day, slather baby oil after shower, heels are cracked and thick
Constipation
Cold intolerance
Recurrent sinus infections
Miscarriages (although also have kids)
Puffy face, eyes
Muscle aches
Joint pain -- I seen a rhuematologist for a mildly high ANA but other tests are normal.
Anxiety -- I have some stresses so can explain, but feel it is more intense than necessary. This also started around menopause (early meno at 46)
Irritable/mood swings
Forgetful, unclear thinking
Insomnia/frequent waking
Restless leg syndrome (self diagnosed)
Sometimes I have a hard time swallowing. I also have a very small bump on my throat, but it is very near the low, center (in the middle at about the collarbone level) so not thyroid. I also have small swollen glands in my neck and underarms here and there. The most recent issue, which don't think has to do with thyroid, is that my legs ache ALL the time. I can feel painful lumps on the back of my thighs. My PCP said they were fat deposits, my ob said varicose veins and rhuematologist said possible baker's cyst, but u/s was negative. PCP can't feel them, but I can run my hands down and feel them and they are not tiny -- maybe b/c they also hurt it is easier for me to tell where they are. My legs feel heavy, tired and achy and I have distinctly gained weight, mostly in my thighs.
I would say that the first symptoms were the fatigue, headache and muscle aches and came shortly after we were rear-ended. I chalked it up to residual effects of whiplash and having young kids. But even after several months of physical therapy, nothing improved.
I've had basic, routine thyroid testing done. My TSH has ranged from 0.94-2.12, but is usually about 1.6. When my FT4 has been checked it has been 1.1, until recently when it has been a 1.0 the last 3 times. I've only had 2 FT3s -- 2.7 and 2.8 and one RT3 that was at 17. These are all the typical reference ranges.
If my TSH rises, isn't it for a push to make more FT3 and FT4, so ultimately they should also go up? They just seem to hover at the same spot despite TSH fluctuations. Maybe I'm interpreting this wrong?
The last thing is that I read in one of the posts about myxedema. I have exceedingly fat arms and cannot pinch any skin (or on my thighs, or really anywhere). I can wear blouses that fit around but I can't get my arms into.
Thank you in advance for your input, advice and suggestions. I know I included a lot, but I am not sure what info is helpful or which info can be overlooked.
Please let me know if you have any questions. Thanks!
KM