Aa
Is it a death sentence?
I have just been diagnosed with hashimoto's disease and I have beside myself for the last two days with grief. I have been looking into this hideous disease and there is nothing nice about it.
Will I lose my beautiful hair? Will I become fat?
I just read it can also cause death: "As hypothyroidism becomes more severe, there may be puffiness around the eyes, a slowing of the heart rate, a drop in body temperature, and heart failure. In its most profound form, severe hypothyroidism may lead to a life-threatening coma (myxedema coma)."
How do I cope with this?
Will I lose my beautiful hair? Will I become fat?
I just read it can also cause death: "As hypothyroidism becomes more severe, there may be puffiness around the eyes, a slowing of the heart rate, a drop in body temperature, and heart failure. In its most profound form, severe hypothyroidism may lead to a life-threatening coma (myxedema coma)."
How do I cope with this?
18 years since TT, AND still working full time....
Now I am sure if I go without my medication for months it would be a different story...
And no you will NOT BECOME FAT.....
Now I am sure if I go without my medication for months it would be a different story...
And no you will NOT BECOME FAT.....
"People who have good doctors and take their pill once a day and feel well don't get on forums to brag about how great they feel."
- Couldn't of said it better. Although some us on non-synthetic replacement hormone feel better spreading out of daily dose to 2 or 3 times per day.
I think most people feel pretty good on the standard treatment and go on living without even knowing the details of what they even have LOL.
Maybe 10% that need constant fine tuning of thyroid med and even less that need natural thyroid to feel better (should be the last straw).
The first step is understanding what this is all about and this is the most educational forum out there I think, so you're one step ahead of what limited info most Dr's will tell you in their 5 to 10 minute visits.
Hoshimoto does differ a little from regular low thyroid without antibodies breaking down your thyroid. Hashi is really an autoimmune inflammation disease that mostly goes after the thyroid. Some do have more intense symptoms than regular low thyroid, but there are other supplements and solutions to help cope. People hear have been though it all.
If anything positive came out of this for me it was learning about complete body health, and I'm not talking about prescription drugs - although my natural thyroid med is prescription. Before I got educated on treating Hashi, several ego freaks Dr's kept me sick for years under their "under treatment" plan. I am one of the few that has been though the ringer with Hashimoto, now I know more about it than any Dr I've met. Several even told me so, that's the scary part.
As far as weight, I think its important that everyone find some kind of physical activity that you enjoy - then its not work. I'm a big fan of people getting outside (and dressing for it), trying something new that you never did before. For me indoor gyms are convenient and good for when its too hot or too cold out, but kind of boring.
Keeping informed and up to date is the key to feeling better, you've already started.
- Couldn't of said it better. Although some us on non-synthetic replacement hormone feel better spreading out of daily dose to 2 or 3 times per day.
I think most people feel pretty good on the standard treatment and go on living without even knowing the details of what they even have LOL.
Maybe 10% that need constant fine tuning of thyroid med and even less that need natural thyroid to feel better (should be the last straw).
The first step is understanding what this is all about and this is the most educational forum out there I think, so you're one step ahead of what limited info most Dr's will tell you in their 5 to 10 minute visits.
Hoshimoto does differ a little from regular low thyroid without antibodies breaking down your thyroid. Hashi is really an autoimmune inflammation disease that mostly goes after the thyroid. Some do have more intense symptoms than regular low thyroid, but there are other supplements and solutions to help cope. People hear have been though it all.
If anything positive came out of this for me it was learning about complete body health, and I'm not talking about prescription drugs - although my natural thyroid med is prescription. Before I got educated on treating Hashi, several ego freaks Dr's kept me sick for years under their "under treatment" plan. I am one of the few that has been though the ringer with Hashimoto, now I know more about it than any Dr I've met. Several even told me so, that's the scary part.
As far as weight, I think its important that everyone find some kind of physical activity that you enjoy - then its not work. I'm a big fan of people getting outside (and dressing for it), trying something new that you never did before. For me indoor gyms are convenient and good for when its too hot or too cold out, but kind of boring.
Keeping informed and up to date is the key to feeling better, you've already started.
Death due to hypothyroidism is virtually non-existent. As Danie said, the only people who die from it are the ones who receive no treatment.
There''s not reason to lose your hair or get fat, either. You have to first educate yourself so you can be your own advocate, then find a doctor with whom you can work who will treat your symptoms, not just you numbers.
Bear in mind that a lot of what you read on the internet is written by people who are not satisfied with their treatment and are not textbook cases (virtually all of us on this forum). People who have good doctors and take their pill once a day and feel well don't get on forums to brag about how great they feel.
I have Hashi's, too. I think you're overreacting. In the spectrum of things that could go wrong, something that can be treated with a little pill every day is a lot better than most of the alternatives. It presents some challenges in getting that little pill right, but once that's done, you can do anything in life you could do before. I have my meds stabilized, and aside from the fact that I got hooked on the thyroid subject, life goes on pretty much like it always has. I still have a full head of hair, my weight is the most stable it's been in my whole life. Damn, I wish there were a pill to cure being 61! LOL
So, let's get started with that education! What tests have you had? If you have results, please post them with reference ranges that vary lab to lab and have to come from your own lab report. If you don't have a copy, ask your doctor for one and start keeping your own history. If you jot down meds and symptoms just before the draw on the lab report, you will start to see a pattern developing of where you feel best.
Are you on meds, or is your doctor suggesting them?
There''s not reason to lose your hair or get fat, either. You have to first educate yourself so you can be your own advocate, then find a doctor with whom you can work who will treat your symptoms, not just you numbers.
Bear in mind that a lot of what you read on the internet is written by people who are not satisfied with their treatment and are not textbook cases (virtually all of us on this forum). People who have good doctors and take their pill once a day and feel well don't get on forums to brag about how great they feel.
I have Hashi's, too. I think you're overreacting. In the spectrum of things that could go wrong, something that can be treated with a little pill every day is a lot better than most of the alternatives. It presents some challenges in getting that little pill right, but once that's done, you can do anything in life you could do before. I have my meds stabilized, and aside from the fact that I got hooked on the thyroid subject, life goes on pretty much like it always has. I still have a full head of hair, my weight is the most stable it's been in my whole life. Damn, I wish there were a pill to cure being 61! LOL
So, let's get started with that education! What tests have you had? If you have results, please post them with reference ranges that vary lab to lab and have to come from your own lab report. If you don't have a copy, ask your doctor for one and start keeping your own history. If you jot down meds and symptoms just before the draw on the lab report, you will start to see a pattern developing of where you feel best.
Are you on meds, or is your doctor suggesting them?
Death would only happen if you were not given replacement thyroid hormone. I am alive without a thyroid at all. Basically with hashimoto's your thyroid will eventually self destruct and you will need to be on a pill (if you don't already). With a good thyroid doc to help you find stable results, you should lead a normal and happy life. If you post your lab results with normal values others can help you with that. Good Luck,
Danielle
Danielle
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