Excellent post......thank you!
I need to find a doc to go with my symptoms, My Endo goes by mostly my TSH and if i'm under 1.0 i'm hyper symptoms and anything over 2.0 I'm hypo symptoms, He seems to think any symptoms i have are unrelated to my thyroid if my levels are between 0.3 - 5.0 so you can imagine the symptoms i have to put up with ughhhh.. I told one endo that i knew my levels were off because my menstrual cycle was extremely heavy again, and he said that i need to see a gynocologist because there's something wrong with my "female parts" Can you believe that idiot??? Needless to say i didn't go back to see him and that was on my first visit...
lol goolara....I think I'm the same as you.
If my TSH is under 2.3 I feel Hyper lol.
Although my Doc goes by my symptoms which is good....he told me as long as my Free's are ok...worry about the TSH last and I have found this works.
Preaching to the choir here! Also applies to FT3, FT4 and TSH results. One size does not fit all (or even most when it comes to thyroid). Nothing gets my hackles up more than someone telling me my levels should be...whatever. One hypo's heaven...
bumping this up so it doesnt get 'lost' in the postings......
BRILLIANT POSTING!
I found this very informative and oh so very true.
We are ALL different in our own rights and in our own DNA.
MY Doctor works the same way as the above Doctors but it took a long time to "convert" him.
I am on a T4 med only but the recent week has found me with the dilemma that most here would envy.
I am converting T4 to T3 TOO GOOD.
So the old adage that T4 med alone isnt any good is not true.
Its whatever suits that particular person and HOW they convert.
Great Posting and I thoroughly enjoyed reading it.
CONTINUED:
In fact, suppose one of our patients asks us, "What is the best medicine for this condition?" We always say that this is NOT the right question, because it leads some people in the wrong direction. A better question is, "Which of all the available, useful therapies might be a good one for me to start with in my situation?"
MS: There's clearly a desire to come up with one "standardized" magic bullet treatment, though, whether for conventional endocrinologists, or on the holistic end, right?
RS/KS: Over the years, we've seen some of our medical colleagues take strong stands for one particular therapy or another. Some say Synthroid is best for everyone, others that everyone should be on the active hormone T3, like in Cytomel. When Dr. Broda Barnes' work became popular, some colleagues felt that everyone should be on Armour thyroid. There are adherents to the T4/T3 combination, and even to particular ratios of T4/T3. Then it was compounded thyroid. Of course, along the way we heard that everyone could improve their thyroid problems with coconut oil. More recently, we have been told that everyone with a thyroid problem should should be on high doses of iodine, to fix not only the thyroid, but also fibrocystic breasts and even thyroid cancer.
But after working with thousands of thyroid patients, it's clear. Some people do best on standard thyroid drugs, others seem to do better with compounded mixtures. Some people are fine on Synthroid, others do best with Armour, or Thyrolar, or Naturethroid, or combinations of various drugs. Some people will thrive on 98% T4, 2% T3, others need a different ratio to feel well. Some people need iodine, others don't. The truth is -- no one treatment approach is a panacea for everyone.
MS: So, what you're saying is presenting a one-size-fits-all solution -- whether it's conventional or holistic, and whether it's coming from practitioners or other patients -- is not really in the best interest of patients?
RS/KS: That's right. The one thing we know is that "absolutes" are not trustworthy. It is unlikely that any one of our present therapies will be viewed in the future as "the one best thing for everyone." We've seen all of the above therapies do well for some people, but not for others. No one therapy is ever likely to be right for everyone.
MS: So, how can patients be sure that they are making smart decisions? They hear one thing from doctors, and another from friends or support groups. Everyone is equally adamant that they know best what the patient should do.
RS/KS: We all have been trying to educate patients that they will frequently encounter doctors who have the very narrow view that TSH tests and Synthroid are the only solution for hypothyroidism diagnosis and treatment. I think the word is getting out, and patients are increasingly knowledgeable, and looking for practitioners who take a less dogmatic view of thyroid disease.
But at the same time, patients need to realize that their friends, relatives, fellow thyroid patients, and thyroid support group leaders and members can be equally dogmatic. While well-meaning, these folks often have strong opinions about what is good for you, and what works and doesn't work and are unafraid to tell you exactly what treatment you must pursue, how to do it, and even going so far as to tell you where to buy prescription drugs abroad so you can bypass doctors completely, and how much of those drugs to take. This sort of approach can lead to serious consequences.
MS: So what do you recommend patients do when they are evaluating recommendations from anyone -- whether it be from a doctor or a fellow patient?
RS/KS: We urge thyroid patients and their practitioners to be interested and open-minded regarding each other's therapies. Any one of them might be the exact best medicine for a particular sufferer, or might not be. And we urge all who suffer from thyroid problems to become more acquainted with the wide variety of available options, and embrace those practitioners/advisors who will further explain those options to you, help you make your own informed choice, and work with you to safely carry out your chosen options.
And in support groups or with fellow thyroid patients, share your stories, but not your dogma. Recognize that what worked for you might be valuable for the next person, or it could lead to harm. Don't tell others what to do, tell them what you did and how it worked for you. Trust them to be the best healer for themselves, knowing all they know about their own lives and story. Let them make their own best decisions, and when they have questions, concerns, fears or challenges, keep an open mind. Don't try to shame others for not thinking as you do, respect each other. The ability to think for ourselves is what makes our world so special, so magnificent, so diverse. Don't try to box others in; instead, help them to expand.
MS: So what you are saying is that whether you're coming from the practitioner or patient perspective, it's still useful to take a "holistic" approach to thyroid disease?
RS/KS: Definitely. When trying to re-balance the delicate, complex thyroid system, it is not the job of the practitioner/advisor to have one favorite therapy, or a pat answer that applies to everyone. Instead, the practitioner/advisor does best by helping patients find out what actually works well in their own unique bodies. Our job is to listen, to love, to care, and to inspire. Working holistically has expanded our medical practice, with the understanding that each person is a unique combination of body, mind and spirit. Each person deserves to be honored and cherished for who she or he is. Finding balance for the challenges of the body is an integral part of each soul's journey. For those reading this today, may your journey be blessed with the support you need to find your own best path to health.
Drs. Richard and Karilee Shames are co-authors of two books on thyroid disease, Thyroid Power and Fat, Fuzzy, Frazzled? Richard Shames, MD graduated Harvard and University of Pennsylvania, did research at the National Institutes of Health with Nobel Prize winner Marshall Nirenberg, and has been in private practice for more than twenty five years. Karilee Shames, RN, PhD is a Certified Clinical Specialist in Psychiatric Nursing and in Holistic Nursing. Both doctors offer holistic medicine practice and coaching -- with a focus on thyroid, autoimmune and hormonal balance issues.