Managing this thing

[Bella68]

Hi anyone, I was diagnosed with Myxoedema (Hypothyroidism).  Do you ever feel well again this thing is driving me nuts, I am alone most of the time and feel debilitated going to the local shop is such a chore, I go from one symptom to another today the numbness in my hand is a front runner, it took me ages to concentrate on the easiest of tasks such as making a cup of tea, I had to concentrate really hard.  They say you find out who your true friends are when you really need then, well I have none, so no only the pain from this illness but pain from lonelyness, I dont know what to do, I cant go on like this in a world full of people its so lonely

[Bella68]

Hi Gimel

Thank you so much for the information, I will talk to my doctor about this and let you know how I get on, I feel hopeful now.

Kind regards.

Bella

[gimel]

Your TSH exceeds the reference range currently recommended by the AACE, of .3-3.0, and is an indicator of lingering hypothyroidism.  Of much greater importance would be tests for free T3 and free T4, which are the actual thyroid hormones.  TSH is a pituitary hormone that is a pituitary/hypothalamus response to thyroid hormone levels in the blood.  TSH is far removed and does not correlate very well at all with what we're trying to affect, which is symptoms.  Free T3 and free T4 are the biologically active hormones that affect metabolism and many other body functions.  Free T3 is actually the most important because it is four times as potent as free T4 and it correlates best with hypo symptoms.

I think you will find this article to be very interesting reading and a resource for discussion with your doctor.

http://www.hormonerestoration.com/Thyroid.html

In my opinion the best wasy to treat a hypo patient is to test and adjust FT3 and FT4 levels with medication , as required  to alleviate those symptoms.  I suggest that you insist on being tested and treated by your symptoms and your FT3 and FT4 levels, not by TSH.  

[Bella68]

Thank you all so much for relying to me, sorry I havent got back to you sooner, only found the replied today, im rubbish with computers.

My TSH 6.5 and T4 10.7 and im on 50mg thyroxine, however, on visiting the doctors yesterday they said my level is back to normal and as in my other post, also said the symtoms are now in my head.  They feel pretty real to me.

Thank to you all again.

Kind regards Bell x

[Smilerdeb]

There is light at the end of the tunnel..believe me.
I really feel for you as you sound like I was before I had RAI (radioactive iodine) for Graves and Hyperthyroidism.
I ate, breathed and slept in my pj's all day long as this disease just got 'hold of me' to the stage that it was just so damn hard to feel good about myself.
As Stella said, you do need a support system and you have come to the right place by being here.
Read through some posts and you will see that we have all been to he!! and back at some stage and some are still going through it.
But you have to decide that the only thing you want in life is wellness and its up to you to take it and hold on tight to it.
read as much as you can about hypothyroidism and research, research and research until you eat, sleep and breathe hypothyroidism.
THEN get on that road to wellness....start to question Doctors/Endos and DONT STOP until you get answers and results.
If it means being a c@w, then so be it!
After all it is your life and your body and no-one has to live it, only you.
Believe me when I tell you from the bottom of my heart......
THERE IS LIFE AFTER THYROID ISSUES XXX

[stella5349]

I was in the same stupor as you for 3 years and you're right, you really DO find out who truly cares about you.

I walked through the whole ordeal basically alone too.

Yes, there is a light at the end of the tunnel and you can get better. For me, it took me grabbing those evil horns of this disease and figuring 99% of it out on my own.

At that time in my life, the internet was my best - and only friend. When I stumbled across MedHelp - I read stories and questions people were talking about and I knew - after all this time - I WAS NOT ALONE.

Yes - you can get better - but it was the absolute hardest thing I ever did for myself.

I agree with Gimel, post a bit of your history and labs results. Tell us as much as you want to discuss. The more the better.

I was always a "people person" I thought the world was my best friend until I got sick. Reality hit me hard, but now that I am a "part of the living" again -  I am stronger, knowing who really cares about me and what I need to do to survive. I am still working on straightening some things out personally, but compared to what I was before the disease hit me, I wore "rose - colored sunglasses" throughout my whole life.

It's a "mean" disease if you are not treated properly, it will tear a person apart. But it can be treated.

[gimel]

What tests were done to diagnose you with hypothyroidism?  Please post the actual numbers and their reference ranges so that we can respond better.  Also, were you put on thyroid medication?  And if so, what are you taking and how much daily?

Sorry to respond with all these questions.  There are a lot of members here who would like to help, but we need more info to go on.

Hang in there.  You'll  find a lot of people here on this Forum who have gone through similar situations successfully and are here to help and support you.