Muscle Aches

[FTB4]

I was diagnosed with Hashimoto's in September of 2008, The MD at that time told me my thyroid was not enlarged and started me on 75 MG Levothyroxine, he later upped it to 100 MG, I was not doing ant better so in Jan of 2009 I went to an Endocrinologist he confirmed I had Hashimoto's and took me off of the generic levothyroxine, my ths was around 5.5-6.0 He started me on synthroid 1.0MG, now last month he reduced it to 88mg because my ths was now lower than it should be, I have all the symptoms of Hashimoto's (Not Just a couple) I get muscle cramps that jump around from day to day, and my neck is stiff and achey most of the time, I get cramps in the calves of my legs, aches in my hips and legs at night in bed.  Without sleep medication I would only sleep 2 hours and cant manage to go back to sleep. I also go through periods of a constant runny nose in the mornings that some days last for most of the day, my Doctor says this symptom is not related, although It did not occure until I started on the thyroid medication.
Sorry about the drawn out statement, My question is "Is there folks out there that are having the same symptoms as mine?  And how long do you have to be on the hormones before the symptoms start easing up, it seems to me mine are getting worse instead of better. Any info would be appreciated. Thank You

[jojo449152]

I too have the muscle aches, behind my knees and carpal tunnel and finger pain.  My dose of synthroid was increased to 88 mcg from 50 beginning Jan., long story short my tsh was 3.57 with dose of 50 mcg  is now 1.74 (tested last week) with higher dose.  This week I am feeling better, don't want to jinx myself by saying I am feeling better, just trying to enjoy being almost pain free.  I started synthroid in July 08, so that is how long to get here.  I expect to have pain again with the up and down of Hashis.

[laura1967]

Hi there and welcome! My endo specializes in thyroid and Hashi's. He told me that a hashi patient should have a tsh supressed to .50-1.0 in order for the body to start to heal and to become symptom free. Anything over this and you are hypo level. You should also have a free t4 and free t3 tests done which are the actual active hormone levels in the body....TSH shows pituitary function more so. You may even have a conversion issue which would only be seen by the free t3 and free t4 levels.
Yes your symptoms are hashi related.....I had an OLD endo who undertreated me for 2 yrs as i got sicker because even though he was an endo, he did not understand hashimoto's....so I kept getting sicker. Then I found this new endo who explained everything and told me yes these are hashi symptoms and here is why you are so sick. Dont settle.....find a good dr who understands what having an autoimmune disease is and the havock it wreaks on our thyroids!
He also told me that for the length of time you have been sick....undertreated, etc.,,,,,it can take twice as long to heal. The healing process can be a long one so don't get discouraged. It has been painfully slow for me. But that is why we are all here for each other.