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Muscle aches?

Has anyone else had severe muscle aches with Hashi's? I still haven't been technically diaganosed with it (only as unspecified hypo for years now) but I have been having really bad muscle aches. My labs this week came back as:
TSH 97.62
T4 Free <0.25
TPO 4930.9
Antithyroglobulin 1768.8

I know that my levels are high and I am scheduled for an ultrasound on Monday morning, but I can't seem to function at all anymore!! I feel like my arms weigh about 500 lbs because they hurt so bad! I am currently on 150mcg of levo, which has been increased numerous times! Anyone have this issue? Any feedback would be great! Thanks!
4 Responses
393685 tn?1425816122
At the level of TSH you have - I am totally suprised that your post only reflects muscle aches.

Yes at your level many people experience muscle aches and heaviness a major problem.

I hope when you see your  doctor, he/she considers increasing your meds at your next visit.

Hope you feel better
Avatar universal
I have diagnosed Hypothyroid/Hashimotos in May 2006 since then i am complaining muscles /joint ache to my Endo but it doesn't seem he is really registering my complaint . My muscles pain are too much that i can't do much physical work . My TSH level is keep bouncing up/down every  other test . My current test TSH 0.38 (range= 0.4-4.000. FT4 1.10 , FT3 3.4 . TPO Ab 144.
I am male, even if i make shave in the morning , my muscles hurt . I am also having headaches every day .

Is this common to have Headache/Muscles ache in Hashithyroditis ?. My doctor perform so many other test to rule out other possibilities but those all came back negative. I also have numbness in my arms in night , it even fall sleep.

Your tsh level is way high , i am surprise you only have muscles ache , any other symptoms  ?.

Guys please post so we will know other people also having muscles ache /headache/joint pain/hair loss ..
Avatar universal
I have hashi hypo. I had muscle aches in my upper arms when my tsh was around 11. The muscle aches stopped as my tsh came down!! (After months on synthroid). I also had terrible carpal tunnel in my wrists, and a feeling of terrible weakness in my wrists, arms and hands. This has greatly improved now that my tsh has come down, though sometimes I have a mild form of it. I've also had many (almost daily) headaches (even migraines) since the time of my diagnosis. Don't know if the synthroid has anything to do with the headaches?. Aseis9128, a tsh of 97 is extremely high and is certain to cause many symptoms!  You most feel awful. Most hypos try to get their TSH down to 1, so you are way out of the normal range!!!! Yes, that will cause muscle aches and a lot more!!!! Your MD should be able to do a blood test for "thyroid antibodies" to determine if you have hashimoto's, which I guess is what the Antithyroglobulin of 1768.8 is, and that is also very high!!  I'd say it's hashimoto's. But, the ultrasound is also a wise move to see what else may be going on. Unless the ultrasound  indicates otherwise, you should definitely be prescribed synthroid or levothyroxine!!! And definitely have the thyroid levels in your blood checked every 6 weeks (that's standard)!!!!! You probably need a HIGHER does than you're currently taking. You can google the long list of symptoms for  hashimoto's hypothyroid. Each of us here has a different combination: constipation, aching joints and muscles, fatigue, mind fog, carpal tunnel, hair loss, weight gain, depression, heart palps (yes, hypos can have heart palps, I did!), tingling sensations in feet and limbs and elsewhere, dry eyes, dry skin, etc, etc. -- FYI, I've had numerous neurological tests and blood labs, even brain and spine MRI and nothing else is wrong with me, all my strange symptoms are from hashi hypo. Work with your MD/endocrinologist to get a diagnosis and proper treatment. Good luck! Feel better!
Avatar universal
I've had hashi's for 14 years.  I developed myalgia's in the last few years.
I've had Dr. Lupo help out, and my doctors are trying to figure it out here.
My myalgia's are horrendous sometimes, or were, and my thyroid levels
were all fine.  My antibodies are way higher than yours, and the feeling is
I may have Polymyositis or some other autoimmune disease.  Perhaps
you can look into this idea, but considering your levels, maybe they are the
issue.  I know you can have myalgia's with uncontrolled thyroid disease.

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