Going gluten free doesn't help everyone with a thyroid disease. I went gluten free several years ago for reasons other than thyroid. I didn't expect it to do anything for my Hashi's, and it didn't. There are different protocols out there that claim to LOWER antibodies with a gluten free, sugar free, dairy free, etc. diet. There is no cure for autoimmune thyroid disease, so if the book claims to cure Hashi's, I'd be very suspicious of it. There's a lot of discussion on this subject if you want to explore the archives.
Graves' will often go into remission. However, I've been on this forum since 2008, and I am yet to hear the first person say that Hashi's went into remission. My advice on the g/f, s/f, d/f diet is that if it makes you feels better, then by all means pursue it. If it doesn't and you're just doing it in hopes of improving your thyroid condition, you are probably going to be very disappointed. You said you tried g/f and it had absolutely no effect...
I acctually went completely gluten free last fall, for 6 whole weeks. My mom has gluten intolerance so I thought my symptoms then might be because of that. But it didn't do any difference at all. But, I did still get sugar in my diet. I'm going to juice a lot of greens and fruits, avoid all sugars and gluten again. Do you know if coconut sugar is ok? Bees honey?
I'm not really hungry or longing for anything anyways, so it'll be easy.
I can go for days not eating much at all. I cant eat anything in the am. One sandwich and an apple or a banana in the evening is all. Still my weight is the same as it always been..
But that can be because I feel depressed also.
One thing I've noticed also is that I hardly have to shave my legs and armpits these days. As to before I had to shave them daily.
I still have my eyebrows, but the ends have "chops" in them, as if tiny parts are missing.
I have no health insurance so this is stressful and scary because of that part too. I'm scared what the ENT will charge tomorrow. And what a possible biopsy will cost and so on. And then all the lifelong Rx's...
Thank you tgirlnc for your support! :)
I am sorry that you are having such a hard time and I completely empathize. If your sister has Graves and your grandmother had a toxic nodule, sounds like there is a lot of connected history with thyroid issues (I am sorry and I can relate). That said autoimmune is genetic and if your sister has an autoimmune, chances are that you have an autoimmune as well (may or may not be the same one). It is definitely like chasing a ghost...and diet is an essential area to address. If you haven't already, I would cut out gluten and sugar immediately (I know it's hard, but totally worth it...they are highly inflammatory elements to the body)....and ask the doctor to do bloodwork for autoimmune markers (graves, hashi, and others).
Also, with your sister having graves, have her check out Elaine Moore's website and information (Sorry for repeat, but Elaine and her website truly saved me). Endos and most US doctors do not know how to treat Graves at ALL....and they tend to over medicate and recommend radio active iodine as a go-to treatment (which you should NEVER do unless it is a last resort and anti-thyroid meds or natural treatments do not work)..because especially with Graves your thyroid's overactivity is a victim of the autoimmune trigger (which is the "ghost"...)...but many have put themselves in remission with diet, supplements (minerals and vitamins)..and lifestyle changes (removing toxins, stress etc.)..same goes for Hashi.
All the best to you and let me know if I can be of further help.
tgirlnc, thank you for your post! Sounds aweful, I hope that you're doing great now though!
And wow, I didn't know your thyroid could get both Graves and Hashimotos, must be the worlds most miserable double-whammy.
I hope I'll get to go to the bottom with this, and soon.
My sister who is diagnosed with Graves, went to her doctor because she thought she needed antidepressants. She has gotten so anxious and antsy. Luckily, for her, her doctor gave her some pills but he also said let's just do a blood test and check your thyroid. And the rest is history.
I just ordered a book from a woman who cured her Hashimotos in 3 months with a clean diet. She doesn't even need meds. I'm a firm believer that our diet influences our well-being completely so I'm going to try it.
I woke up this morning again with a terrible pain in my neck lump. It seems to hurt more and more. The pain was gone when I went to bed but that's because I took ibuprofen. I had to get up and take two pills again and now it feels better again.
Luckily they called from my doctor and I'm going in to the ENT Thursday, tomorrow morning.
I would get tested for Graves antibodies as well. I have Graves and my TSH is often WAAAY off from my FT4 and FT3 and eye bulging is often an indicator of Graves. Before I was diagnosed...I had the same symptoms- I had no energy, was depressed...couldn't tolerate heat..it was awful and I had no idea what was going on, until I took my pulse and it was 136 resting (why I was so tired and sleep was so hard). Also, one can have Graves and Hashi at the same time (I have a friend who has both and goes from one end of spectrum to the other). If you haven't already done so, I would immediately de-stress your life as much as possible and start eating as clean, organic and natural as possible.
Also, look up Elaine Moore- she is an expert in Thyroid disorders-primarily Graves and her website is a wealth of knowledge..it has literally saved me! Lastly, the other person who posted is ABSOLUTELY RIGHT- you must be your own advocate, I have gone through at least 4 doctors in 2 years. They have a very narrow scope of treatment and understanding of thyroid....and if you do have Hashi or Graves both are autoimmune diseases and need to be addressed as such and not thyroid disorders as most doctors would have you do. If you are in an area of the country with a good integrative doctor- I would make an appointment STAT!
Yes, they might have always been uneven, just that I reacted when my daughter exclaimed how much smaller one is to the other. I think I'm on the edge right now. I think I'm starting to see thyroid in everything, lol.
An ENT should be good in figuring out lumps in the neck, I hope I can get in soon.
I'll keep you posted, hopefully with good news! :)