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125112 tn?1217273862

OT: Women-how do you feel women are treated, as patients?

The reasons that I am asking this here, is that this forum is active and the majority being women. Too, due to having a chronic condition (pre and post diagnosis's)that has and continues to require follow-up etc.

What I have heard from many women and in having my own experience, I am beginning to think that many women are not being given the consideration they deserve, as patients.

I'll give you a brief story, my last visit with my Dr.
My hormones have been out of whack, essentially since the birth of my last son almost 3 years ago (June will be 3 years). I cut myself some slack and gave my body time. Thinking, I'm getting older and I had two children (last two) rather close to one another. After about 5 months post delivery, my system tried to "get up and go" but flopped. My last memory for 05 (regarding this subject) is that I skipped 2 months. In 06, my periods became VERY heavy, closer together and then became very sparse.

ALL of my life, my cycles have been 38 days and period lasting 7 days. All 4 of my children were born 2 weeks "late." That is what the doctors thought but they were not "late"...seemed to go right along with my "late" cycle (that I have had since I first began menses.) So, my periods became closer: 28 days (like many/most women) and my menses cut short by half ( 3 days ).

Cont.
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Avatar universal
I know exactly how you all feel I have had many symptoms for the past six months. The doctors could not figure out what was wrong so they said I was depressed with severe anxiety, I said of course I have anxiety there is something wrong with  me and know one can figure out what it is. They continued to say it was psychosomatic and put me on lexapro, now I still don't feel right, can't get any answers, and going to have one hell of a time getting off the Lexapro. Also I have had Graves for ten years.
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Avatar universal
abl
Hey you!

Do you really have to ask?  Okay here goes my opinion...we are totally screwed!!!!!!!!!!!!!!  Both genders!!!!  Male/ Female patients, male/female doctors...it doesn't even matter!  If we had a system set up where Doctors got paid if their patients were healthy (like in other countries), then I bet they would be looking for solutions to our health problems.  Doctors may not like women as much, because we ask more questions and want to share our stories, because we feel it is important to give as much info as possible for a better diagnosis (of which they don't have time for) and men may seem easier because they probably just sit and listen, take their drugs and go.  But, i think we both get horrible advice from Doctors who get too much of their information from the pharmaceutical rep. that was just in their office.  Don't forget too that women's health only recently came into play in clinical trials.  They didn't even know that heart disease was teh number one killer in women, because they didn't keep stats on women!!!!!!!!!!!!  Can you believe that.  They did drug testing and trials on men, and just assumed that what would work for one would work for the other.  Huh?  So, of course we know thyroid's not a big problem for men, so...well you get where I am going with this.

I have found it incredibly difficut to find a good doctor, let alone great.  None of them listen, none of them have the time, and I don't feel like any of them are even smarter than I am...and that's not saying a whole lot.

So, we have to educate oursleves the best we can, find out the "why's" of it all ourselves, and try to not get too scared when we find something on the internet that says we are going to die from the symptoms that we have just listed.  

There needs to be a return to Doctors who want to be pioneer's...because with the epidemic rises in breast cancer, thyroid problems, autism, diabetes, etc...whatever they are doin', isn't workin'.  It's time to go back to the drawng board!!!

Take care you!

Abl
Helpful - 0
125112 tn?1217273862
Am I just jaded- to think if thyroid issues primarily affected men, instead of women...that there would more of an urgency to get it figured out?

How did they detect your cancer? Lord have mercy...having a thryoid issue is bad enough, to have one involving cancer...I'm sorry chitchat.

I could not imagine walking around with cancer and being told, "you're fine!" To eventually find out that no, indeed you were not.




Helpful - 0
125112 tn?1217273862
Previous to this Dr. my last was a female but I gave her up. To be fair, I may have overwhelmed her.
I have had problems trickling and then bam! the "faucet" turned on full blown in Jan/Feb of 06.

In '05 I remember complaining to her about the major hair-loss I had been experiencing and she relied, "Doesn't that suck." Yeah...so much so that I ended up chopping off my very long hair to short, on account of it.

I live in a small community (island)and we only have 3 doctors (2 own the practice). That's it. I think I would have better luck elsewhere.

I totally hear you about your symptoms and "all is normal." I have mixed feelings, in that I don't think all emphasis should be placed on labs and yet, labs should be readily used/utilized. I think to only consider labs isn't a good thing and yet, failure to test isn't good either.

For example, could somebody have a thyroid problem (auto-immune) despite normal TSH, having many symptoms? If so, shouldn't a broader thyroid panel be drawn? So I understand they can't treat unless it has reached a certain number but it would be nice to know if something is going on.

From what I have read, it seems like thyca can be present despite normal tests.

I have a host of symptoms but my doctor said, "Your CBC looks good (save for when I had infections) and you look good." No complaints, yet...I sure in heck don't feel good!

Again, I do understand the toll that stress takes on the body. Under stress, I have felt it affect my neck/shoulders. Under severe stress (last marriage), I have seen it screw up my menses, experienced some hair loss, acne, some weight loss and feeling tired.

What has been going on these past few years...is not due solely to stress. I always bounced back. I haven't been "right" since the birth of my last son.

I'm just not me. This has affected my parenting, marriage...and I am not doing even a half way decent job at caring for my home. Quite frankly, I suck...but this is not me. If that can be understood. My mind says one thing but my body is saying another.

I've been doing everything that I can, to improve my life. Diet, sleep, hobbies, working on my mind and praying. While I can say there have been some small improvements...I'm not where I should be. Far cry from it.

In the beginning, I just assumed that well...I'm getting older and dealing with two small children again but you know...so are a-lot of other people but they are managing quite well.

If I honestly thought taking psychiatric meds would resolve most my physical symptoms...I'd be on it like white on rice!

My compassion for women (and really, people in general) has grown immensely due to my experiencing. With that, at least some good has come from this.
Helpful - 0
125112 tn?1217273862
Without a doubt, in this world exists hypochondriacs. I won't dispute that BUT...the few should not influence the overall attitude a Dr. has about women or their symptoms.
It is better to truly listen and investigate 10 hypochondriacs...if it means finding a genuine problem with 1 person. Dr.s must keep an open mind.

Too, I believe in Science but I realize that so much is unknown. One day, there will be more answers for some things that is currently unknown.
Another reason that Dr.s (and any person) should keep an open mind.
Helpful - 0
168348 tn?1379357075
Yes, ThyCa can be present with normal levels ... I am living proof as well as others on the board.  Yes, medical science has some catching up to do but it is in a slowdown when it comes to thyroids it seems :0

C~
Helpful - 0
125112 tn?1217273862
"It is better to truly listen and investigate 10 hypochondriacs...if it means finding a genuine problem with 1 person."

In saying this, I don't think 10 out of 11 people are hypochondriacs. Simply trying to express my attitude about it, even if it (10 out of 11) were true.
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Avatar universal
hmmmm... hopefully this won't offend anyone and please don't flame me. But here is my thought.

I agree to a cetain extent that women are tsk-tsked more often or blown-off by docs. But I also think there is a reason for this. I believe they are more emotional and tend to exagerate or become preoccupied with issues--- not ALL women or even most but I think particulary with the thyroid this is a hot button. AND I believe this is why I wasn't treated for so many years. Doctors don't take it very seriously unless they see those TSH numbers off wack. I think so many women run to the doc complaining they are tired and overweight and need to blame it on something so thyroid tends to be the scapegoat. So even though no other symptoms match and doc rules it out, they jump up and down and yell THYROID. Now, certainly it IS indeed the issue with many women. But come on now... if you are obese and tired-- look in the mirror first and look at your eating and exercise habits. From my understanding hypothyroid can account for only about 20 lbs. So in effect, as in life, a few overzealous ruin if for those that do have true issues.



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Avatar universal
Don't get me wrong, I totally agree doctors should take it more seriously... I am frusterated beyond belief than I spent the first 20 years of my adulthood untreated and it took cancer to do it.

I had low body temps, always freezing, high cholesteral in the 300's, infertility probs, PCOS, miscarriage, low blood pressure, I can't tell you how much better I feel, like a whole new person. I was normally sleeping 10-12 hours everynight and always freezing and no matter what I could not lose that extra 20 lbs. In only 6 weeks on meds I have effortlessly lost all the weight and now sleep a normal 6-8 hours and have boundless energy. Also the first regular 28 day menstral cycle in my life. So I even feel anger about the situation.

But also think it is just human nature for docs to react like they do and not raise an eye everytime a woman yells THYROID and complains of symptoms without labs confirming-- most especially the weight and tiredness symptom. I can almost guarantee every woman that I talk to about my thyroid issues that is overweight will make a comment about how THEY TOO have a *thyroid* problem because they are overweight and tired but docs won't do anything about it. Makes me want to scream!
Helpful - 0
125112 tn?1217273862
Beings that this has happened to you, you must wonder how many other women (and men) this has/is happening to i.e. 20 years of symptoms.

How many people must fall through the cracks. We can't blame the hypochondriacs. I understand that Dr.s aren't miracle workers, that it takes time...but there is absolutely no excuse to ignore or poo-poo patients on account of the hypochondriacs. I don't believe in complacency.

I worked in Pharmacy for a short time but even in that short time, I saw how over-confidence in oneself or complacency could possibly create a deadly scenario. Worst case scenario but it's possible.

I think good doctors are those who have much experience, listen well, have good instincts, a drive for investigation (compulsive personalities) and always keep people in their best interest.
Not all people are suited for their job, I don't think.

As for weight gain and fatigue...what I have found with most people complaining of this, don't think (or know for that matter)of thyroid.

I've blamed this, mostly myself for the way I had felt in the past. Having worked towards self improvement, can't say that I have improved to where I should be.

In '05, I had high cholesterol (what!?) and during the summer, was hiking all up and down the mountains and didn't lose an ounce. Unlike me. Last year, my cholesterol was normal and I lost weight. I blamed anxiety (lasting 1 month) and of course, in having my tonsils removed I lost a-lot of weight. I've been fighting to keep weight on. Oddly, during a short period...I gained 8 lbs. Though lost it again.
For the most part of 2 years, I have literally been ice cold (hands and feet and ALL the time.) Not a sensation but literal.
My husband has gotten angry, when I place my hands or feet upon him because they are honestly that cold.

I developed a short "warm" period, back to freezing and now back to warm. I have been on BC pills for nearly a month, maybe it has something to do with it. Unless I am just going through another "warm" phase. Time will tell.

Personally, I think people know their body better than anybody else. With experience (being in tune) and being intellectually honest, can determine what is normal and what is not.  

My experience with women has been that they are prone to second guessing and self doubt. I for one don't think they automatically come to conlusions. Some people DO but I don't think the majority do.



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Avatar universal
I think I treat my health like my Dad - ignore it and it'll go away.  That said, I don't go to the doctor's unless something is VERY wrong and I can't take it anymore.  When I told my doctor I was having a hard time swallowing and I had this bulge on my neck he put me off for over a month - wait and see.  My co-workers finally talked me into getting something done about it and I had a 3.8 cm cyst drained & ultrasound found very enlarged thyroid with 20-some nodules.  My doctor, male, still does not believe me when I say swallowing is still difficult - says it's an 'emotional response'.  I wasn't 'emotional' until my thyroid malfunctioned.  So, I specifically asked for a referral to a female endo.  In my opinion...Yes, doctors are geared more for male patients in most regards.  But women too are taught to be nice and polite, don't argue or make waves.  BTW, my Dad passed away at age 67 from heart failure.
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Avatar universal
with the experience I have had over this last year,I am more convinced than ever we must diagnose ourselves.My pcp totally missed my goigter during my annual physical.
The FNA didnt show any cancer and dont get me started on the thyroid/bi polar connection.I should have  my thyroid checked years ago.And then theres the IBS.I had suffered from IBS since 1978 after the birth of my oldest daughter up until my tt last year.Male and female doctors both have blown me off.

I got a good surgeon that found my goiter during a breast lump biopsy.He listened.I have a good endo now that listens but I have also learned(from this forum)what to ask.

WE have to start looking at the docs and ourselves as partners in our healthcare and the docs must do the same.No more of the "I am the doctor and you arnt".Only then will we begin to get competant health care.

Btw  My dad died at 67 too because he left up his healthcare to the docs and didnt take any responsability for his own health.It use to make me angry.Now it saddens me that we could have had lots  more time together.

So thats what I think.
Love Venora
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168348 tn?1379357075
I have found that "women" Dr's sometimes are the best .. don't get me wrong, many of my specialists are great male Dr's, but the women .. well, I think they have the propensity to be better :::: listeners :::: and can certainly relate.  

My Endo is female as well as my OB/GYN .. yet I do like one of the other OB/GYN's too ... he is male.  I had changes in mood swings, ups and downs, concentration issues, anxiety, fatigue and 2 yrs worth of periods 2X month and the list goes on and on ..

(This was about 4 yrs ago).  They did Thyroid screening and all normal so they did ultrasound and found functional cyst which eventually burst, they did an endometrial biopsy "just to be certain" and all was normal.  Baby #3 & 4 were very close so probably just an adjustment being tired all the time, etc, etc. etc. blah blah blah .... even tried Zoloft but that had side effects so we stopped it and Ativan once a month helped right before my monthlies.

So I ask myself and the dr's this ? .. why the sudden constipation, dry skin, 20 lb wt. gain in 1yr and my answer is that since all the labs are "normal" that it is all part of "getting a bit older".

OH, I also have muscle/joint pain in my ankles from 4:00 AM until awakening ev. night .. nice, huh? and all labs are normal sooooooo I'm not sure what to say except even my female Dr. has done all she can do w/o an answer that is related to my thyroid (but I do still wonder).  I really do.

I have found, for the most part, the female Dr's won't make remarks such as "All woman 40+ blame it all on their thyroids ...." I've had that told to me once, too by a male Dr. & this was recently ---> grrrrr.

C~
Helpful - 0
125112 tn?1217273862
My doctor tried to tell me about "getting older" (yet, did not concede that I have been experiencing perimenopause), stress and having given birth. I understand stress and what it can do to the body. Stress has not been the cause of my 2 1/2 year bogus menstrual cycle. As for giving birth, that was over 2 1/2 years ago.
He ended with saying, most women who are experiencing menstrual problems would be delighted to have yours. Excuse me...not if it was not normal for them!
Would he have said the same to a woman who normally experiences 28 days, 3 day menses...who changed to having one every 19 days and lasting 1 1/2 days.

It shouldn't be about the majorities "normal" but your normal.

It isn't my menses alone that bother me, other than they are pointing to a problem and I have experienced some crappy symptoms on account of it. Just since Christmas, I have experienced the flu (vomit/temp), uti/kidney infection and now a cold. In the past, I might get sick once every 3 years.

Anyway, this has been my last experience. Overall, I get the impression that our small clinic will only treat you (the person) well if you are on death's door or have been given a diagnosis...by some other doctor.

In talking to other women, I am getting the feeling that many women are not being treated right. I know there are wonderful doctors out there but I am beginning to think they are rare.

Your thoughts?
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