Hi there, where about are you in Oz ?, my Dr is useless .Been absent as I'm so darn tired I feel as if I could sleep forever :-(
Hey I am also from Oz! Perhaps you could come visit my dr! You are right to keep trying as I just put my weight aside (try going from 60 to 95kg!) and tried to concentrate on all my other issues instead (& so missed getting my thyroid tested until recently). I know some of these immune things have similar symptoms & I don't know much about MS, but first I was told I had IBS and then Crohns disease (& to eat more fibre even tho I kept telling them it made me sicker!!!!!!!) (both wrong!!) But I think malabsorption might present in a number of these illnesses, and perhaps protein is naturally harder to digest. If your gut isn't emptying then is can't be digesting properly I would think. The worst part is when I got down to eating not much more that stewed fruit & moosh, I still couldn't lose weight as the body just shuts down in the end. If you are gluten intolerant, it only takes a tiny bit to give you a reaction, it took me a bit to realise gluten was in so much food. I don't have much to suggest other than keep trying & don't let the doctors wear you down. Best of luck
I am almost Gluten free as I thought what with being diagnosed lactose intolerant I may have developed gluten/wheat hassles too so I have nearly phased them out ,I will have to see a Dr specialising in nutrition before I go crazy I have seen a nutritionist but she just said cause I also have IBS ,MS & the gut emptying problem just up the fibre which did & bloated even more as the multiple health probs I also am hard to get a 100% diagnosis the Dr's get so cross with me as if I am vain !, it's my health I am worried about & the extra weight is not helping at all.I was never much of a meat eater but I did love chicken but even that gives me gut pain so you are right I am probably deficient and a bit malnourished as I am to the point I stress so much I even weigh out 10 grams of raw nuts & a cup of fresh vegetables for dinner.
So glad you saw someone that really helped you out & I too would be eternally grateful as I feel like a fat anorexic !!.
Cheers from Australia & thanks so much for posting:)
Have you tried a gluten free diet? I am hypothyroid but also gluten intolerant (some of the symptoms are similar) & also pernicious anemia (also some similar complaints). I knew straight away that the celiac diet was right for me (within a week I had improved significantly). I am close to your age & it has taken me 15 years to get worked out finally, so keep trying anything you can think of, as I am a new person compared to me six months ago. Doctors often focus on one thing, & most often decide its nothing important (stress!), but in my case in was several things making me hard to diagnose. Also I gave up eating meat a long time ago as I coudn't digest it (it just sat in my stomach giving me cramps) but that too caused me deficiencies, so even tho I was getting fatter, I was malnourished. (a fat anorexic!) I now take Bpep capsules (hydrochloric acid) when I eat meat. I went to a doctor specializing in nutrition & he tested everything he could think of to get me worked out (eternally grateful) I don't know if that will help you, but good luck.