Aa
Still suffering
I posted earlier, am still looking for help, perhaps I need to re-post and restate my problem. I can provide actual labs if necessary.
I was diagnosed with Hashis with antibodies over 25 years ago. I really didn't know what was going on or what I needed to know at the time, but the doctors said I would go hypo one day but right now the test was clinically insignificant. I went to many dr.s in my earlier days and they all told me I had to get on tranquilizers and exercise, it was all in my head. Over the years with the help of klonopin, I managed to live a decent life and became a regular runner. I guess I wasn't afraid of the hyper spats because I began to believe it was stress too. In 2004 I went hypo at least the limited labs they did indicated so. No longer did anyone do antibodies tests on my and again, I really didn't know the difference. I had enormous difficulty finding the right med to use, my doctors started on too much synthroid and I eventually requested armor. The lowest dosage at first helped out greatly initially. Over the years this went up, but I still used klonopin sparingly to help me deal with the anxiety. 4 years ago I began to have server PACS and PVCs and again couldn't get my thyroid off correctly. I eventually got off the armor but that didn't take the pvc or pacs away, I still had them, until I got rid of my gallbladder. After that surgery everything seemed to settle down nicely, I began to increase synthroid gradually, I resumed a very normal and happy life. As we added more synthroid, I began to enjoy coffee, wine, all the things I could never have before. Then it happened. We had a TSH test that indicated that I was at 6.0 and even though I was feeling fine we moved up to 75mcg synthroid. Within 6 weeks I hit a wall. Anxiety, panic attacks awful. I cut back down to 50mcgs and within weeks I was fine. We tested again that summer and the labs indicated a TSH of 4.4. The doctor recommended every other day of 75 and 50mcgs. Within a month the panic and anxiety was back. This time we reduced to 25 mcg but I went hypo pretty quickly so I went back up to 50mcgs and I was okay for a while, tests came in at TSH of 3.75, doctor said we'll stay there for a while. Within 6 months I was in bad shape again so we tested TSH and a profile now ( which did not include TSI unfortunately) My TSH this time was 2.5 (odd on 50mcgs only)
My FT3 was a little to the middle to middle high range, My FT4 was the same. He only tested TG ab and the microsomial Thyroid antibodies. That test was 975 which showed a much higher than range number and the Tg Ab said < 25 whereas the range was <25. I wished I would have known to have them test the TSI. I'm feeling that I obviously have thyrotoxicosis. My doc is recommending an endo, but there are few in the Colorado Springs, I sure wished I could find a good one, even in Denver if necessary. I'm no longer on synthroid. suffering days of anxiety? / hyper/ hypo symptoms. I feel HORRIBLE. Do people actually have their thyroid removed for toxicosis? Is RAI even a viable alternative. Is stress the thing that is the trigger for my antibodies? Can anyone help? Maybe a good endo in Denver area if not?
I was diagnosed with Hashis with antibodies over 25 years ago. I really didn't know what was going on or what I needed to know at the time, but the doctors said I would go hypo one day but right now the test was clinically insignificant. I went to many dr.s in my earlier days and they all told me I had to get on tranquilizers and exercise, it was all in my head. Over the years with the help of klonopin, I managed to live a decent life and became a regular runner. I guess I wasn't afraid of the hyper spats because I began to believe it was stress too. In 2004 I went hypo at least the limited labs they did indicated so. No longer did anyone do antibodies tests on my and again, I really didn't know the difference. I had enormous difficulty finding the right med to use, my doctors started on too much synthroid and I eventually requested armor. The lowest dosage at first helped out greatly initially. Over the years this went up, but I still used klonopin sparingly to help me deal with the anxiety. 4 years ago I began to have server PACS and PVCs and again couldn't get my thyroid off correctly. I eventually got off the armor but that didn't take the pvc or pacs away, I still had them, until I got rid of my gallbladder. After that surgery everything seemed to settle down nicely, I began to increase synthroid gradually, I resumed a very normal and happy life. As we added more synthroid, I began to enjoy coffee, wine, all the things I could never have before. Then it happened. We had a TSH test that indicated that I was at 6.0 and even though I was feeling fine we moved up to 75mcg synthroid. Within 6 weeks I hit a wall. Anxiety, panic attacks awful. I cut back down to 50mcgs and within weeks I was fine. We tested again that summer and the labs indicated a TSH of 4.4. The doctor recommended every other day of 75 and 50mcgs. Within a month the panic and anxiety was back. This time we reduced to 25 mcg but I went hypo pretty quickly so I went back up to 50mcgs and I was okay for a while, tests came in at TSH of 3.75, doctor said we'll stay there for a while. Within 6 months I was in bad shape again so we tested TSH and a profile now ( which did not include TSI unfortunately) My TSH this time was 2.5 (odd on 50mcgs only)
My FT3 was a little to the middle to middle high range, My FT4 was the same. He only tested TG ab and the microsomial Thyroid antibodies. That test was 975 which showed a much higher than range number and the Tg Ab said < 25 whereas the range was <25. I wished I would have known to have them test the TSI. I'm feeling that I obviously have thyrotoxicosis. My doc is recommending an endo, but there are few in the Colorado Springs, I sure wished I could find a good one, even in Denver if necessary. I'm no longer on synthroid. suffering days of anxiety? / hyper/ hypo symptoms. I feel HORRIBLE. Do people actually have their thyroid removed for toxicosis? Is RAI even a viable alternative. Is stress the thing that is the trigger for my antibodies? Can anyone help? Maybe a good endo in Denver area if not?
Not when the "experts" base everything on just what they were taught in med school, which cannot be shown as factual, in the case of TSH.
Have a look at this.
http://nahypothyroidism.org/why-doesnt-my-doctor-know-all-of-this/
If you really want to have any credibility here, you have to provide statistically valid supporting data, not just consensus statements from medical societies. I sincerely doubt that you will find very many medical people who are experts in analyzing and understanding statistical data from scientific studies. I do. Show me your supporting data.
Have a look at this.
http://nahypothyroidism.org/why-doesnt-my-doctor-know-all-of-this/
If you really want to have any credibility here, you have to provide statistically valid supporting data, not just consensus statements from medical societies. I sincerely doubt that you will find very many medical people who are experts in analyzing and understanding statistical data from scientific studies. I do. Show me your supporting data.
I think you must have enaugh medical educations to talk at that level and not to missinterpretate scientific studies, otherwise it would be "dogmatic" conversation rather than "scientific".This is "support groups" forum, remember. Expert advices should be left to experts.
Correct me if I'm wrong here, but didn't you feel hypo on 25 mcg and very hypo on no meds? Wouldn't that indicate that your problem is thyroid related?
The last endocrinologist did an serum cortisol but we have not yet received the results back due to the insurance carrier and they way they prefer to process that type of test. The endocrinologist said he didn't think he would find much there, but he ordered it anyway.
Many doctors have a tendency to say "it's not thyroid related" once you are in range on labs. Some of them only look at TSH, some consider FT3 and FT4 as well, but most of them think everyone should be comfortable anywhere in the range. I actually went quite hyper nowhere near the top of the range, and I'm currently a little below range on FT4 and feeling no hypo symptoms whatsoever.
Refresh my memory, please. Have you had adrenals tested?
Refresh my memory, please. Have you had adrenals tested?
Slept 2 hours last night, very warm skin, very tired today. I can't help but feel that I've been here before and that is why I got off the synthroid in the first place. Is it possible to be swinging already? I feel horrible. I wished someone, anyone could clearly define hypthyroiditis and hypothyrotoxicosis for me. My MD friend is saying that none of my symptoms are thyroid related and my endocrinologist thinks it is mostly anxiety too. :-(
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I also discovered much later that consistency is so important with heart issues. Increasing was very difficult for me. Stopping and starting and big dose changes take a reall toll on the heart (not permanent, but can be uncomfortably erratic for a while). It wasn't until I got my FT3 and FT4 stabilized and got on a consistent dose that my heart went back to (better than) normal (for me).
You're right, though, we are all built differently, which is why my experiences may not apply to you completely.
One thing that often happens when we're hypo is that the adrenals step in and try to compensate for the lack of thyroid hormones. That can lead to adrenal problems as well. At the very least, if adrenals are involved, the whole system has to reblance with the thyroid hormones present again.
Some people gain weight hypo or hyper, and some lose hypo or hyper. There isn't always a lot of rhyme or reason. We just have to get used to recognizing how we, ourselves, react individually to each state (hypo and hyper)