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Storm question
A woman here at work has Hashi's and is apparently, per a new Dr, in the midst of a thyroid storm. He told her there's nothing to treat it with until it calms down. That sounds so whack that I just have to check if that's right.
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wow you are so well-informed in this!!
I will definitely keep this in mind and ask my doctor.
I believe my primary doctor did run some of these test like magnesium levels and told me they were normal.
I will definitely keep this in mind and ask my doctor.
I believe my primary doctor did run some of these test like magnesium levels and told me they were normal.
This is all quite interesting. She was told had the antibodies for Hashis but not for Graves. Without seeing results won't really know of course. Seriously doubt she'll question any of this since she is one of those who thinks merely because he's a clinic director that he's THE best and knows what he's doing.
Oh well....maybe the opportunity will present itself along the way to discuss it again with her.
Oh well....maybe the opportunity will present itself along the way to discuss it again with her.
BTW - it was exactly about 2 years after I had RAI that I developed HUGE issues. That what I meant by "early stages" :)
Let me say - that most RAI patients find a few things run together.
1. Magnesium depletion is very common with RAI patients
2. A block of conversion off T4 meds is common too and requires the doctor to think some out of the box with labs and not run just the TSH. The FT3 and FT4 ratios are more important to look at - if you are finding that increases of just T4 meds isn't relieving some syptoms. - AND why I stress this for you - the palpations are common in comversion issues. Palps can be both hyper - and hypo symptoms. As a Graves patient myself and the RAI - hypo w/ Hashi antibodies mised in - undiagnoised when Graves - palps were present both times w/ me. For me - I now can look back and I can say they are different - but in the beginning I just knew I got them.
3.Another thing could be - and not very common is a reverse T3 is going on. You could be storing your direct hormone w/ conversion of T4. Both Free T3 (low) and RT3 issues can be resolved by adding a T3 medication in with the T4 - or solely going on just T3 meds for a time could put you in a much better place with your condition.
4. Ferritin depletion is common too.
5. Celiac and gluten /lactose intoleraces develope and the MCC fillers in the T4 meds could be backfiring on you now. If this is an issue you could find Canadian combo natural thyroid which is still an FDA approved shipped Rx. - could benefit you - since it is the lesser of the MCC byproduct is used in that medication. Doctors are hard to allow this however.
Thos are the top things basically that could be irritating you with your condition. Of course it could be anything - but I bet if you learn and push on those 5 things w/ your doctor you could see improvement quicker than just increasing your T4 Synthroid.
.
1. Magnesium depletion is very common with RAI patients
2. A block of conversion off T4 meds is common too and requires the doctor to think some out of the box with labs and not run just the TSH. The FT3 and FT4 ratios are more important to look at - if you are finding that increases of just T4 meds isn't relieving some syptoms. - AND why I stress this for you - the palpations are common in comversion issues. Palps can be both hyper - and hypo symptoms. As a Graves patient myself and the RAI - hypo w/ Hashi antibodies mised in - undiagnoised when Graves - palps were present both times w/ me. For me - I now can look back and I can say they are different - but in the beginning I just knew I got them.
3.Another thing could be - and not very common is a reverse T3 is going on. You could be storing your direct hormone w/ conversion of T4. Both Free T3 (low) and RT3 issues can be resolved by adding a T3 medication in with the T4 - or solely going on just T3 meds for a time could put you in a much better place with your condition.
4. Ferritin depletion is common too.
5. Celiac and gluten /lactose intoleraces develope and the MCC fillers in the T4 meds could be backfiring on you now. If this is an issue you could find Canadian combo natural thyroid which is still an FDA approved shipped Rx. - could benefit you - since it is the lesser of the MCC byproduct is used in that medication. Doctors are hard to allow this however.
Thos are the top things basically that could be irritating you with your condition. Of course it could be anything - but I bet if you learn and push on those 5 things w/ your doctor you could see improvement quicker than just increasing your T4 Synthroid.
.
Thanks for your response. I was talking about over 2 years when I had the RAI but I am looking back now and I felt that I took my health lightly. I have been feeling better than when I was hyper and that's for sure but you are right about the hormones dropping and going up causing us a lot of symptoms and suffering.
However, lately I have been working with my RE and they like my TSH to be below 1.5 for fertility and that's why I have been taking a higher dose of 122mcg
It's been so stressful too which I am sure is not helping. I had a failed IVF cycle which was heart-breaking and I am now about to stary the 2nd.
recently I've been having palpitation and shortness of breath and my doctor put me on a heart monitor for 48 hours but haven't got back to me yet.
I think some of it is due to the thyroid and of course to the anxity and stress I am under with all this IVF stuff!!
I hope this nightmare ends soon!
However, lately I have been working with my RE and they like my TSH to be below 1.5 for fertility and that's why I have been taking a higher dose of 122mcg
It's been so stressful too which I am sure is not helping. I had a failed IVF cycle which was heart-breaking and I am now about to stary the 2nd.
recently I've been having palpitation and shortness of breath and my doctor put me on a heart monitor for 48 hours but haven't got back to me yet.
I think some of it is due to the thyroid and of course to the anxity and stress I am under with all this IVF stuff!!
I hope this nightmare ends soon!
Rose - I wanted to come back to this regarding the RAI.
As totie stated - its a process for sure when RAI - I131 is taken. your body is being shocked to a degree and will react. Many doctors breeze past this RAI and think is no big deal but in reality - its worse for many and patients have different reactions after they do RAI more often then they ( the doctors) were taught.
I had such a slow death of my gland and it took over a year for things to simmer down. The doctors thought I was nuts complaining all the time and palps were my biggest worry when I went in. Little did I know then that I was Hashi/Graves and when they did RAI - my body was rearing a war against it for me. On top of that - RAI destroyed my saliva galnds on my right side of my neck and the effects of that didn't rear up for almost - almost 2 years after the RAI ablation. If I wanted to pick it totally apart now and look at what this did - I may had been better off seeing what could have happened if I would have rejected doing RAI. But on the flip side I could have definately died - due to storming repeatedly if I hadn't down the RAI either.
In your latest post Rose - it sounds the basic information on your doctor's evaluation is shotty and brushing you under the rug. Putting your legs up isn't going to relieve anything and its not your blood pressure that's causing you to faint. Its the drops and release of hormone that is causing you problems for sure.
In this early stage though - it so hard to really diagnois it when it happens. Hormones drop and rise at unprepared times and you can't for the most part - get emergency care and see where you are when it started happening at that moment. Let alone call the doctor and see him weeks after to do labs and really know where you were when it all happened.
As totie stated - its a process for sure when RAI - I131 is taken. your body is being shocked to a degree and will react. Many doctors breeze past this RAI and think is no big deal but in reality - its worse for many and patients have different reactions after they do RAI more often then they ( the doctors) were taught.
I had such a slow death of my gland and it took over a year for things to simmer down. The doctors thought I was nuts complaining all the time and palps were my biggest worry when I went in. Little did I know then that I was Hashi/Graves and when they did RAI - my body was rearing a war against it for me. On top of that - RAI destroyed my saliva galnds on my right side of my neck and the effects of that didn't rear up for almost - almost 2 years after the RAI ablation. If I wanted to pick it totally apart now and look at what this did - I may had been better off seeing what could have happened if I would have rejected doing RAI. But on the flip side I could have definately died - due to storming repeatedly if I hadn't down the RAI either.
In your latest post Rose - it sounds the basic information on your doctor's evaluation is shotty and brushing you under the rug. Putting your legs up isn't going to relieve anything and its not your blood pressure that's causing you to faint. Its the drops and release of hormone that is causing you problems for sure.
In this early stage though - it so hard to really diagnois it when it happens. Hormones drop and rise at unprepared times and you can't for the most part - get emergency care and see where you are when it started happening at that moment. Let alone call the doctor and see him weeks after to do labs and really know where you were when it all happened.
Sorry to hear that it caused all of this to you!
My doctor didn't do any testing and he wasn't even concerned. He said that if I feel like this again I should sit down and elevate my feet so the blood flow returns to the head. He said that the heart was bounding so fast that the brain couldn't catch up with what was going and that's why I passed out.
My doctor didn't do any testing and he wasn't even concerned. He said that if I feel like this again I should sit down and elevate my feet so the blood flow returns to the head. He said that the heart was bounding so fast that the brain couldn't catch up with what was going and that's why I passed out.
I'd like to go back to the original statement on Hashi's being in conjuction with the thyroid storming.
That is not something true. Hashi's has nothing to do with storming, Only Graves disease is linked. Hashi's is a process of the thyroid killing the glad - hense low function as with hypothyroidism. Graves is the over production and storming can occur.
Now if the co- worker has both antibodies then the possibility of storming could take place. If that doctor is linking ONLY Hashi's to her condition and treating her as a storm - she definately needs to find a new doctor,.
That is not something true. Hashi's has nothing to do with storming, Only Graves disease is linked. Hashi's is a process of the thyroid killing the glad - hense low function as with hypothyroidism. Graves is the over production and storming can occur.
Now if the co- worker has both antibodies then the possibility of storming could take place. If that doctor is linking ONLY Hashi's to her condition and treating her as a storm - she definately needs to find a new doctor,.
C, good idea and will see what she might know. Do know it's her Hashi's bouncing from hypo to hyper but to what extent don't know.
a true thyroid storm can be life threatening ..
Perhaps she had very hyper levels and they coined it with that phrase ?
C~
Perhaps she had very hyper levels and they coined it with that phrase ?
C~
I did have one storm before RAI, but also another one after wards, that is why I had to have the TT, my heart was not slowing down any. My doctor told me my thyroid was not slowing down fast enough for my organs to catch up, that waiting for the RAI to kill it off was not an option in my case, so did the TT two days later. I was a strange case though.
Your body sounded like it was adjusting , although I NEVER fainted with a storm, I was bouncing off walls. Too this day I do get heart palpitations. The cardiologist told me that my heart would from time to time as he calls them "hiccups" (palpatations) from time to time, but nothing that would cause a heart attack.
Exactly what did the doctor say caused your fainting? You know in my opinion the storms altered my entire way my body works....let's just say I am not normal...
Your body sounded like it was adjusting , although I NEVER fainted with a storm, I was bouncing off walls. Too this day I do get heart palpitations. The cardiologist told me that my heart would from time to time as he calls them "hiccups" (palpatations) from time to time, but nothing that would cause a heart attack.
Exactly what did the doctor say caused your fainting? You know in my opinion the storms altered my entire way my body works....let's just say I am not normal...
Can you explain a little bit more about thyroid storm? I did read about it and was wondering if I actually had it after my RAI treatment.
Few days after my RAI treatment, was doing some work around the house, started sweating and feeling exhausted. Went to take a shower to calm down but my heart beat were super fast!! felt terrible! Few minutes in the shower felt my heart was about to come out of my chest! felt lightheaded and yelled at my husband. Last thing I remembered was my husband calling 911 and found myself lying down in the tub!
It was the first time I faint and fortunately my husband was there or else I would have fall and broke my head.
called my doctor and went to see him and he said it has nothing to do with thyroid or your treatment.
He did not take it seriously and I was mad!
I was fine after that for the most part but here I am 2 years later and still have occasional palpitation along with normal TSH levels.
Do you think I had a thyroid storm?
Thanks.
Few days after my RAI treatment, was doing some work around the house, started sweating and feeling exhausted. Went to take a shower to calm down but my heart beat were super fast!! felt terrible! Few minutes in the shower felt my heart was about to come out of my chest! felt lightheaded and yelled at my husband. Last thing I remembered was my husband calling 911 and found myself lying down in the tub!
It was the first time I faint and fortunately my husband was there or else I would have fall and broke my head.
called my doctor and went to see him and he said it has nothing to do with thyroid or your treatment.
He did not take it seriously and I was mad!
I was fine after that for the most part but here I am 2 years later and still have occasional palpitation along with normal TSH levels.
Do you think I had a thyroid storm?
Thanks.
My experience with hitting two thyroid storms, (graves/hyper) was that I was immediately hospitalized. It screwed up ALL my organs. My heart rate was 140 sitting calmly down, down to 88lbs, my body thought I was diabetic (never was nor am I), so I needed insulin shots immediately, my potassium level all whacked, protein in my blood.
I can't believe she is not in the hospital. A thyroid storm is very dangerous to the heart....
I can't believe she is not in the hospital. A thyroid storm is very dangerous to the heart....
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