Synthroid supposedly the best...

[Shedding01]

Hello, if anyone answers or cares to read a link that I found of great help.

I was one Levoxyl for almost a year and was inconsistent with the dose and started to lose hair and got dry skin.

Instead of just taking the 25 again I was told to take the 50 mcg everyday.  I knew it was too much but my GP said everyday.

My gut said no more than twice a week and I should of listened after only being consistent again with 25 mcg Levoxyl for 6 weeks and know how sensitive I am to meds in general.

Please always listen to your gut!!!

My body had a rare reaction to the higher dose and my blood pressure went down and my heart rate up.  Horrible 15 days on the 15 and almost 3 weeks on the 25 with my body not changing back to how it was when I was on the 25.  

Finally I just had to stop taking it and it took 2 days before my BP went back up and HR down.  Finally I could think again and most importantly sleep and function in general.

I was given synthroid as a try which I took 25mcg for 10 days and had some GI pain and cold like symptoms that tapered off but I was incredibly hungry and tired all the time.  

My BP stayed at a healthy range but every time I took the synthroid my pulse would dro to 66-68.  For me this is my pulse when I sleep.  

Day 11 I thought hey let me try a Levoxyl 25 and the next morning I was awoken to a pulse of 94 and was sadden that I don’t know what will be.  I took a morning dose of synthroid 25 and with 45 minutes my pulse was back at 68 and I was sleepy but  nauseous as well.   I actually was regurgitating a little bit in my mouth which is pretty gross and unpleasant.  I feel asleep  and finally woke up to euphoria,  nausea,  and severe loopiness.

This still beats having a low blood pressure and a high heart rate.

I decided to stop taking the meds or any meds for a few days and try the love oxo again but from what I was told most likely I will have the same outcome  as I did the one day of taking it.   I’m on day two now and finally feel medication, Synthroid, finally coming out of my body a bit.   I may just wait a full week for half it to leave my body or even more possibly before trying the Levoxyl 25 again  which is crazy to me how I was so successful on it for over and close to a year and now my body is rejecting it and most likely will again.

I’m subclinical but symptomatic with hair loss and dry skin I would never take this drug if I was not symptomatic.

3 months of  pure misery.  I can only imagine how others feel who are full blown hypo and required to take this drug or any t4 drug.

My thoughts go out to you all.  

My question is has anyone experienced having a low heart rate and fatigue after taking Synthroid, I know it’s a low dose, but it’s the proper dose for me.   I’ve been tested pretty much for everything just recently I are in/ferritin /diabetes/B 12/all the rest I can be tested except for cortisol.   Stress is what started this so I wouldn’t be surprised I may ask if they can fax me to get the blood work just to know but will be making an appointment with an endocrinologist must wait 6 to 8 weeks and wish I could take something now and that interim t4 but sick of feeling sick.

I honestly am afraid of Synthroid, it’s a different drug, pricey, and who knows if it will cause other problems or even resolve the hair issue I have  or make it worse.

This is amazing link that I found, talking about all the things I could possibly happen taking Synthroid, things that a lot of you feel and her shunned by your doctors telling you it’s in your head and it’s not.  I know what I felt and was told no one gets joint pain, for example just recently.  Please don’t let anyone tell you it’s in your head when you know it’s not and of course always advocate for yourself.

https://mentalhealthdaily.com/2016/01/21/synthroid-levothyroxine-side-effects-adverse-reactions/

[gimel]

You are very welcome.  We want to help any way we can.  

Please take a look at this list of symptoms and see how many, if any , you have.
    
    Mental and psychological ailments such as depression
    Faintness and dizziness
    Weakness and fatigue
    Heart palpitations
    Emotional hypersensitivity
    Inability to cope with stress
    Social anxiety
    Muscle weakness
    Headache, scalp ache, or general body ache
    Severe or dull lower back pain
    Extremely sensitive skin
    Nausea, diarrhea, and vomiting
    Abdominal pain and hunger pain despite an empty stomach
    Extreme craving for salty foods
    Anxiety and jitters
    Clumsiness and confusion
    Motion sickness
    Insomnia and dark circles under the eyes
    Low bladder capacity and symptoms of IBS
    Irregular or non-existent menstrual period

[Shedding01]

Sorry again for getting to personal and the grammar.  When I had my blood tested I was down to a 2.9 tsh and a t4 in the 74th percentile.  So the 25 Levoxyl was working or perhaps the 25 days of 50 pushed it, but I was on the 25 for almost 3 weeks before blood test and when my doctor saw that she said 25 works just fine for you and no more 50.  She also said the 50 is such a low dose and kept repeating it under her breath and I said hey you know I’m sensitive to a lot of meds and have to always take low dosages.  

The list you provided.

When I was on the 50 Levoxyl I had all typical hyper symptoms except high BP and hunger.  

When I know take Levoxyl 25 high heart rate and BP.  Hoping that will D/ C once I try it once more.

On synthroid after stomach cramp tapered off, I was tired all the time and had a lower HR after taking the medication.  But it was within range still but for me 68 is sleepy time.  Also had monster hunger.

I don’t know if I waited longer if the excessive hunger and fatigue would of tapered off as well and perhaps the drug lowering my HR.  Which is a odd one.

After taking the Levoxyl one day on day 11 of taking the synthroid and resuming the synthroid day 12 I had euphoria and loopiness and extreme   Nausea Which got better toward the evening and finding take it day day 13,14,15,and not planning on taking it day 16.  It took more than three days for the fatigue to go away and 2 for loopiness.

I feel like I’m wired wrong lol

I’m actually lucky not to have the other side effects and not too many but the ones I have aren’t allowing me to function on either drug.  I’m just feeling like my self now day 4 off all meds.  

I  actually went to a Cvs a further destination and started getting daily things I need.  

I naturally have depression so it makes this harder on me.  I also naturally have anxiety and hence the stress affecting me more and that’s something I need to work on.

It just gets so frustrating when I was doing well and now feel like my body is falling short on me.  One thing after another.  Being afraid that I’ll deal with this for another 12 weeks and synthroid will fail me.  

I’m taking time away from others and I apologize.  Making a appointment with a endocrinologist and have to wait and make some decisions already and put on my big girl pants already.

Thank you for all you do for so many.  Your truly have a big heart.

I will look at your page soon.

Thanks again:)

[Shedding01]

I’m  commenting on my own post so I don’t know if you receive it but I thought I file he was balancing out after getting off the med now day for and  awoken  to severe nausea, hot flashes, which caused anxiety.    I read the journal and it says typically when people get off of the medication they don’t have adverse side effects please excuse me if I read it wrong I’m not at my best at the moment.   I can’t even get off the med  and feel better.   I don’t understand, I have completely lost my appetite and just feel horrible.  No I’m not I’m out of menopausal age nor am I experiencing it earlier think goodness, got tested for that as well.

Guess all I can do is wait and see and make a  appointment for 6 to 8 weeks when endocrinologist is available.

So Odd how  I could be doing so well for so long and now I’m falling apart when I’m not even taking the medication.   From my iPhone the system will not allow me to comment on something I’ve already commented on that someone else has written nor well let me send a message.

Thanks again

[gimel]

With your reaction I know you are convinced that the problems are solely the result of the Levo and Synthroid.  There are additional sites that link T4 meds to numerous symptoms, mostly due to excessive dosage, some due to even taking small dosages.    As another possibility for the problems you have, there are several things you should consider.  First is that the small starting dose of T4 med is not additive to serum levels.
It actually just substitutes for natural thyroid hormone, because when starting on thyroid med, the body reacts by reducing the level of TSH, and thus decreasing the stimulation of the thyroid gland and reducing the output of natural thyroid hormone.   Since serum levels are the sum of both natural thyroid and thyroid med, the net effect is usually little or no increase in serum T4 levels.   So many patients find that their symptoms get no better and some actually get worse when starting on a small dose of thyroid med.   Only when the T4 dosage is high enough to essentially suppress TSH, will further increases in the T4 med start to raise your serum levels, and relieve hypo symptoms.   So what were your levels of Free T4 and Free T3 from before and after taking the 25 mcg of T4?  

Next thing to consider is that there are a couple of variables that can significantly  affect the reaction to thyroid med.   Low cortisol level is one and low ferritin (iron) is another.  In fact, although typically not even tested,  it is recommended that any cortisol issue be corrected before starting on thyroid med.  Have you been tested for either of those, and if so, what were the results and reference ranges shown on the lab report?

One other thing.  In the link you provided it mentions adjusting T4 med according to TSH level.  That alone raises an alarm for me about the knowledge of the authors of the link.  Thyroid med dosage should never be adjusted based on TSH.  It should be adjusted as needed to relieve hypothyroid symptoms, irrespective of TSH levels.   If you want to confirm what I have said here, please click on my name and then scroll down to my journal and read the one page summary of a paper on Diagnosis and Treatment of Hypothyroidism: A Patient's Perspective.  

[Shedding01]

I wrote to you another question you were kind of to answer that I have had all those tests done the ferritin, iron panel, anemia panel, vitamin panel.   Was told  no call meant the doctor had reviewed it and all was well but I have still left a message on the nurses line to confirm.    I was also going to request if they’ll actually do it I may say no and go to a specialist and cortisol  Bloodwork test tomorrow once I get the labs fax number.   I wish you were right but in this case with the levoxyl  no one gets low blood pressure and a high pulse day one of taking the medication.  

And just like my question was has anyone heard of anyone getting low blood pressure and High pulse from this medication.   No one even an endocrinologist office has heard of this effect.  

So many things can affect side effects,  estrogen, testosterone,  all  hormones and birth control, even Advil.

I actually had a pharmacist review all my labs and have spoken to many pharmacist and only teo have said that they have heard this as a rare condition from having too much medication, instead of high blood pressure.  

They know my therapy, other meds I’m on, and said if I was able to take the medication with no issues before I should again but there is a chance that my body has build a resistance to the medication, Levoxyl  and all I can do is  trial and error.  I understand it takes time to get used to a medication as well as when you’re on a low-dose it can actually change things but for hypo sub clinical person like myself low doses is all we need.   It worked until I foolishly let it leave my body and instead of titrating in my body again and going from there I took too much of a high dose and had an adverse reaction.

All I can do is try to get in and which I did one day and had the same reaction with a high poles waking me up in the morning when I was still on the Synthroid and just starting out on it 10 days as I mentioned earlier.

I was 1 million times it was something else and I could just fix that not even have to deal with these medications or something as easy as supplementing stress due to a Cortisol level  but as I was told all I can do is just try to take it again.

As far as the Synthroid goes I should’ve given it more time and waited to see if the tiredness and excessive hunger would go away just like the stomach cramps and nasal drip did but it’s always in the back of my mind how the Levoxyl  worked so well and now I realize how lucky I was to of had something work so well on the first try and resolve all my problems within 12 weeks.

Honestly I’m scared of taking Synthroid for another 12 weeks and still having her loss because many do unfortunately and everyone reacts of course differently to medications which makes me crazy because I hate inconsistency.  

I took Levoxyl 25  after taking Synthroid 25 for 10 days and on the 11th day felt OK, but pressure showed low I redid it and showed normal day of or evening of.   Then I was awoken at 7:30 in the morning to a  fast heartbeat and checked it and it was at 94, I didn’t have any bad dreams, no anxiety, and when I share this with the pharmacist they said most likely I will have the same reaction unfortunately I just sometimes happens, adverse reactions, they’re rare, but seem to happen to me with other meds as well so I’m more subjective to having one even though again I wish I could take it like I did before   Feeling nothing but a little nasal drip and in 12 weeks have my issues resolved.

Like I said I’m a scaredy-cat and I did wait a long time for my body to adjust back to the 25 after taking the 50 of the Levoxyl.   It just didn’t take and my heart had to pick up the slack due to my low blood pressure to the point that I had to put an ice pack on my chest because I started to feel bruising.    I had to look at everything and the entire picture, I’m suffering, and I am hurting my heart potential he be making a pump harder and circulate blood in my body.


A dose of 25 of any t4  drug should not make anyone’s heart pound that hard nor lower anyone’s blood pressure in the first place.

I’ve been called a unique case, a puzzle, so many things it’s  unbelievable.

I’m taking a chance getting off the Synthroid clearing my body as much as I can and going to try Levoxyl   One more time, I could still fill the Synthroid and my buddy even today, so I’m going to give it some more time, even though I was told it didn’t matter that I took it while I was taking Synthroid, the fact that I woke up with a high heart rate is abnormal especially with the low dose of 25.  

I did not catch that they just assessed based on TSH in the article of course I should be more about if as you know doctors actually just do TSH and typically T4 only.    And just look at numbers.    

The main purpose of the article was to let others know that when doctors tell him it’s in their head it’s not in their head and when they know something isn’t right to speak their mind and advocate for themselves.    Joint pain does exist from taking the medication,  as does many other side effects.   If I hear my doctor say one more time joint pain, never heard of it, I will scream LOL, no I will print it all out highlight it and hand it to her.


This thyroid world is a horrible world and honestly I wish I ran like my sister.  Who already has a life and is nine years older than me and has teenagers well self-sufficient but oh she couldn’t be bothered.    Lives nine minutes away, ignored my cries  of having panic attacks,   Begging her to come over to let me have a nap and  ignoring me, telling her I was starting to have panic attacks from the stress and just ignoring me.  I’m sorry but what a selfish witch of a sister I have. I should of found a life for myself instead of taking care of my father who is not a good man my entire life so far.   The dementia actually made him a little bit nicer but he still nasty and only wants to please himself and doesn’t care about other peoples feelings and is extremely selfish and it comes out still.

For me to be going through all this crap which again sound superficial, all the money I’ve spent, all the sadness of experienced, it wasn’t worth it!!!!

I feel like I lost three years of my life and I keep trying to continue and fix it and because of taking vitamin D I made it worse, and now my body won’t tolerate a medication it has been tolerating all this time.

Things just gotten worse.   I hate how  ungrateful my family was with  all that I did and my sacrifice of my health, but I have to accept it.

Sorry, falling off topic getting too personal but my stress levels are much higher when I first started taking the Levoxyl  then they are now but I will try to get in and thank you for responding and your kindness.