hashimoto's confused

[megs4413]

i was dx'd with hashi's about 5 years ago. i had always been hypo and developed goiter. i had a nodule that was benign in one lobe that went away after treatment. i've had two children in the meantime. after my second child was born i had an episode of thyroiditis. i went extremely hyper and my neck became so swollen that i almost couldn't breathe. they had to put me on steroids to take the swelling down and they took me off my synthroid. i have been miserable for months. apparently when i had my levels drawn a little more than two months ago, my TSH was 20.6. does that even sound possible? the endo never followed up (kept cancelling appointments and doesn't give results over the phone). my primary doc gave me a script for 75mcg yesterday and redrew the TSH and i'm waiting to hear the results. i am just so confused. and i feel like ****....any ideas?

[rayneweather]

I feel so bad for you that you have felt that bad and your doctor won't take the time to care for you.  The thyroiditis sounds like a very severe case.  I'm guessing it was diagnosed as post-partum thyroiditis?  I definitely agree w/ Venora on getting another endo and I always urge everyone to make sure it's someone that sees *lots* of thyroid patients.  Endos who treat mainly diabetes are not usually great at treating thyroid problems.  Like Venora said it may take 4 (sometimes 6) weeks for the medicine to fully kick in but at least now you'll know where you're starting from as opposed to what you were more than 2 months ago.  If after the 4 weeks your tsh is coming down but not dramatically they may increase the dose to make the decline more rapid.  If you need to know of a good endo you can always post another thread letting us know where you live; one of us may happen to live near you or know a good endo near you.  Welcome to the board and please feel free to ask any questions  you have.

Rayne

[Venora Moonwind]

get a new endo give the 75mcg about a month to kick in to get your labs drawn. i hope you feel better soon. stupid endo should be made to be hypo so he know what it feels like.
Love Venora